DLA for your child

[char nd jay]

we applied for courtney who is 2 and was dignosed in march this year she was award middle rate care , was told to expect high rate as i hardly sleep with testing her n what not bt i wqas happy with middle rate it helps pay for her trips to the hospital and extra things for her diabeaties like gluco tabs n stuff like that!
we got adviced to write stuff like ..
testing
wash and dry cournteys hands to make sure her fingers are clean and dry- 3 mins
warm hands/feet up if cold b4 testing-5mins
pt clean needle in lanchet and prime ready fro use -2 mins
place new clean testing strip in 1 min
prick finger and sqweeze for blood 1 min
wait for testing result 1 min
wash and dry hands/feet again to make sure area is clean again to stop infection _ 3 mins

same wit injections and explain how we have to wake her up get her out of bed then settle her down again
same with hypos how we have to make her eat take gluco gel and stay with her till her suger levels reach normal goood levels then settle her again n list times

also rember your ment to base the form on your childs worst day soo far

like courtney had a fit b4 so we pt in her hospital trip the amberlance etc

hope this can help xx

[rockin_plumber]

We also got awarded middle care rate for Joshua.
Just dont let the forms put you off, they may take a while!!!
And base it on your worst day as advised...

it helps pay for her trips to the hospital and extra things for her diabeaties like gluco tabs n stuff like that!

We sent a request to our doctor regarding gluco-tabs and they got added to Joshua's repeat prescription so may be worth a try.

[devera67]

hi my son was diagnosed 2 months ago and my nurse helped me fill my form s out me and my husband work 16 hour a week each we claim working tax and child tax can any one please let us know what we can claim for my son he has type 1 diabetes age 23 month s now thanks x

[elainechi]

you can claim after 3 months of dx.request a paper form and enlist with you paediatric diabetic nurse to help you fill it in .there are a few sites you can google to help too. your child tax credits will go up as well.your child will be labelled disabled or severely disabled but do not get upset by that phrase. good luck.its not easy to fill in x

[dot]

And base it on your worst day as advised...
]

Agree - our DSN said to write down the diabetic parent's day from hell on the form. Get middle rate for my 14 year old. No trouble with it at all thankfully.

Luckily the day from hell hasn't happened yet

[callumsfather]

Elainechi

You mentioned that your” child Tax Credits went up as well” I would be interested in mote info on this, thanks

[elainechi]

well as a single parent on a moderate wage .i already got child tax credits. then when i got dla for my now 12 year old daughter it automatically went up. the first year i had dla i got the higher level but this is now middle rate. hope this helps.

[devera67]

hi every one i have had a disision and it was a good one for us and thomas but dont understand .they said they start to pay out when he has had type 1 for 3 months why is this any one know why they do this thank you

[StephAjcm]

My son is just coming up to having been diagnosed for 2 years. We only found out fairly recently that he is entitled to this and have been wading through the form. This link has been really really helpful http://www.diabetes.org.uk/Guide-to-diabetes/Living_with_diabetes/Financial_entitlements/Disability_Living_Allowance/

His nurse told us he would be automatically eligible but that the rules are you have to have been diagnosed for 3 months.

[rachelsnj]

Elainechi

You mentioned that your” child Tax Credits went up as well” I would be interested in mote info on this, thanks

This was done automatically for us. We received a letter to say that the DLA had been awarded to our daughter and then we got another letter to say the tax credit disabled amount had been awarded aswell. We did not apply for the increased tax credit it is done by the DLA who inform the tax credits dept.

[devera67]

hi every one i have been granted la for my son who is 22 months old with type 1 but have been told that dla wont start paying till he has had for 3 months why is this and will we be back dated or just wht we will be intitled to xx
thank you x

[lochnessy]

hI all, My son is 10 and has type 1 diabetes diagnosed a year ago, i claimed DLA and got the high rate but i am now in the process of claiming again as a year has passed and have now had the decision back that hes only entitled to the low rate the reason being he is now old enough to take responsibility himself, i am at the moment appealing against this as i do not agree with this at all, he may be doing some things himself but only having diabetes for 1 year i myself find this hard to control and this is a life threatning condition i feel so digusted. Has anyone else had this problem and could give me any help or tips ??? thanks

[pplprincess5480]

Hi, my daughter Lottie is 5 and was diagnosed T1 almost 2 years ago. We get the middle rate of the care element of DLA and have done from 3 months after Lottie's diagnosis. I filled in the forms myself and had no problems with the claim. I did include a care diary for a weeks worth of care. It included everything that we did to care for Lottie and how long it took. I left it up to them to decide what was care that was extra to that of a 'normal' child.

I also claim Carers Allowance as I would be unable to commit to any work at the moment with Lottie's diabetes being so variable and unpredictable. If you are claiming DLA for your child and not working because of the care your child needs then you claim. I included the same care diary in this claim too.

[partygirl1980]

Hi All,

I am new to this group so plz be gentle lol.

I need help in filling out my DLA form for my 5 year old son who was diagnosed in May. Never claimed anything from the state before so at a loose end.

Thank you in advance

A very tired mommy
xx

[kndge9584]

Andrew gets low care for help with getting around and medium rate for help with personnal care. I also applied for and was granted a carers allowence, as i was unable to continue working as Andrew had such a bad period of illness with his diabetes that i had to take a lot of time off and out of work. But can still work up to 16 hrs a week, but only work 5hrs a week.
Any questions? i'd be glad to answer if i can
Suzi x

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