I was diagnosed about 14 years ago, and had excellent care back then. Now I am wondering why the system has just fallen apart, as I don't get half the things done that I was used to
The PCT in this area, Rhondda Valleys, South Wales, have cut so much of the care I was used to, and some of the checks that used to done - yearly hospital appointment, doctor checking between that appointment - and I am down to seeing my GP once a year, and no diabetic speciallist. I went to see my GP a couple of months ago, complaining of lack of energy, sleeping badly, headaches and also odd symtoms in my legs.
Well he did listen and arrange with the practice nurse to take bloods for testing, all 11 vials of blood! I got a call from the surgery to see the nurse again, as they had to repeat some of the test, which I did, and waved goodby to another 4 vials of nlood. I did ask why this was being done, and was told that one of the test results was a bit high and they wanted to run the tests again.
Well, I got an appointment to get the full results of the test, and to discuss what was needed, in view of some of the results. I was told that my kidney function was no so good, and I would have to have a scan, and maybe a needle biopsy, and then see a kidney specialist to explain what the problem is. I had the scan, no biopsy, and no specialist appointment to tell me what was going on.
When I saw the diabetic nurse at my GPs surgery, she said that I would have to have a kidney function test sometime soon. She also told me that the kidney function was diagnosed 2 years ago!! Nobody told me anything about kidney problems, neither the hospital or my GP. I then find out that is quite common for the kidneys to be affected, it is called Diabetic Kidney Disease, and you don't know if you got a problem until someone tells you.
Well, I amnot happy with the level of care I am getting, although I can't afford to see someone privately, so will just have to keep asking about anything else that diabetes may affect, and hope that I get the right answers.