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Help me please

Have your say about anything of concern to the diabetes community. This is your platform to make complaints and discuss the best way to solve them. We aim to assist you in any way.

Re: Help me please

Postby Fraddycat » October 7th, 2012, 1:16 pm

Dear Whitby Jet so sorry to hear about your injury, wishing you a speedy recovery and strength to resist the stupidity of the NHS. With best wishes from a fellow Taubist (when is the feast of Bernstein by the way?)

Jane x
Eat you your meter !!
Meds: Metformin 2 x 500mg Simvastatin 40mg Lisinopril 5mg
HBA1C: Mar 10 = 8.9; Jul 10 = 7.7; Feb 11 = 6.4; Jul 11 = 6.7; Feb 12 = 7.8; Jun 12 = 7.6; Oct 12 = 6.3; Feb 13 = 6.0
Started low carb high fat eating in Jul 12
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Re: Help me please

Postby smidge » October 7th, 2012, 2:05 pm

Hey Whitbyjet!

You poor thing! I can't really add much to what the others have said but just wanted to show you some support! I often have doctors telling me to get my BG higher - they're a complete nightmare. In your situation, without insulin, you stand absolutely no chance of dying from a hypo. Tell them that stress raises your BG and so you would appreciate it if they would stop stressing you and kindly allow you to manage your diabetes as you are an expert in that! Hopefully your stay in there won't be too long.

Take care and keep smiling.

Smidge
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Re: Help me please

Postby Nikkig » October 7th, 2012, 2:57 pm

Hi there WJ - lots of hugs get better and get out ASAP! :!:
Diagnosed May 2012 HBA1C - 15.4
August 2012 HBA1C - 7.7
Diet only control with low carb/low glycemic load
Lost 21lbs down 2 dress sizes
19/11/12 - HBA1C - 6.4
Further 7lbs lost

Non illegitimus carborundum
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Re: Help me please

Postby angua » October 7th, 2012, 3:42 pm

Ohh WJ poor you ....

I know just how you feel - its really scary when you have no one to rely on except the nurses and doctors and you have to either 'make a fuss' which seems to somehow mark you out as 'awkward' or cowtow whereupon you then become the 'ideal' patient.
Just try to stick with your decision - its your choice but if you do come up against the shouty types who only want this for your own good, try to stick to a really simple non inflammatory line to fend them off.

I know its a horrible situation to be in and I hope you can go home soon

sending lots of hugs

Gilly x
note to self: food is fuel, not entertainment - get a life
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Re: Help me please

Postby carty » October 7th, 2012, 3:55 pm

Hi WJ
Sorry you are in the hands of the NHS at the moment it is a terrible place to be :thumbdown: I agree with the rest of the sensible people on here ,tell them that you manage your DB very well yourself and your pelvis doesnt need carbs
Chin up :) CAROL
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Re: Help me please

Postby Unbeliever » October 7th, 2012, 4:14 pm

So sorry to hear about your injury Judith. I hope you are not in oo much pain. I suppose its hardly surprising that the staff will re-iterate NHS advice. In fact I suppose it is a plus that they are even aware of what you are'are not eating. In some hospitals they don't even notice when their patients are not eating at all!

If you are not on any medication and wish to follow your normal diet I can't see what it has to do with them. Your normal diet has not caused them any problems- just he opposite. I suppose the Dr means well but I know if I am forced o eat more carbs han usual ,apart from the effect on my bg levels I feel very sick!

I should just stick with the food that is brought in for you - you will hardly be unusual i just rejecting hospital food.

Good luck , hope you are better very soon, you have enough of a fight on your hands with your injury wihout having to fight the staff too.
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Re: Help me please

Postby WhitbyJet » October 7th, 2012, 7:20 pm

Awww THANK YOU to all of you for replying. Two nurses have made notes of this forum they promised to check things out at the very least.
Am getting effective pain relief but it's uncomfortable and inconvenient to have to lie still and wait for the fracture to heal.
Hb1ac March 2012 - 5.1
Hb1ac June 2012 - 4.8
Hb1ac September 2012 - 4.9
Hb1ac January 2013 - 4.9
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Re: Help me please

Postby Grazer » October 7th, 2012, 7:45 pm

So sorry to hear about your situation. How sad it is if even hospital staff don't know you're not going to get a dangerous hypo on diet only or metformin. Surely they know that non diabetics spend nearly all their time in the 4s? And they don't get hypos. Just refuse their stupid sandwiches.
Type 2, diagnosed Nov 2010. HbA1c then 8.2%. Mar 2011, HbA1c 5.9%.Dec. 2011 5.9%. May 2012 5.7%

150-180grams carbs per day + exercise (mainly golf!). 2x500mg Metformin SR per day.
Support testing for T2s http://www.diabetes.co.uk/petition/
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Re: Help me please

Postby CathyN » October 7th, 2012, 8:21 pm

Best wishes for a very speedy recovery.

If your very sound reasoning doesn't wash with the nurses, you can, I think, just dig your heels in and refuse to co-operate. Not ideal, but it might come to that. When I read your story - you posted it a while ago - I was amazed at what you'd been through and the incredible inner strength you have. It would be a disaster if they were to force you off the diet that you KNOW works for you and your diabetes.

Keep strong.
Type 2

diet and exercise controlled

Finger Prickin' Good !!
HbA1c June 12 - 6.5
HbA1c Aug 12 - 5.9
HbA1c Nov 12 - 6.3 ( keeping positive ...)
HbA1c April 13 - 6.2
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Re: Help me please

Postby wiflib » October 7th, 2012, 8:28 pm

How on earth have you managed to do such an injury? It must be very painful and as for being in hospital, I'd dislike it too and I work in one!
I'm surprised they are remotely interested in your diabetes, especially as you're not on insulin. Next time a helpful nurse asks to check your BS just say no thanks.

A speedy recovery to you.
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Re: Help me please

Postby angieG » October 7th, 2012, 9:11 pm

Get well soon!!

If they want you to eat carbs, tell them that they give you the runs.....they won't want you laid still and have to clean that up!! :lol:

Stick to your guns....if you are not exercising you don't need any extra food anyways :x

Best wishes for a speedy recovery
Angie
If you see someone without a smile give them one of yours :-)

Nov 2010 initially Type 2
LCHF HbA1c 39 (5.7%) Aug 2011
HbA1c 88 Aug 2012. Gad antibody test 1943.0.
Re-diagnosed as Type 1, started insulin 7 Aug 2012
Nov 2012 HbA1c 52
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Re: Help me please

Postby FergusCrawford » October 7th, 2012, 10:54 pm

W.J., what a pain in the ...
Hope you start to feel better soon.
Had similar probs re food when I was in Hospital. all Sunday food was sandwiches so wife started to bring in "red cross parcels" of chicken salads <G> .
Rest of ward wanted same :lol: :lol: :lol: .
Hospitals don't know "diddly squat" about diabetic food requirements. It was I can' t eat that, and I can' t eat that, and it took over 24 hrs of "hunger strike" to get them to realise that I WOULDN'T eat the cr@p they wanted me to eat!
"I'll take that to Avisandum!"
Fergus Crawford :Type II Diabetic,Bleed stroke survivor,CKD.
Xpert diabetic Grad, completed BDEC online (I know i'm type2 but still did it)
HbA1c was 6.0, 5.8, 5.6, 5.7 now 5.4
Chol 3.8,Trig 0.69,HDL 1.26,LDL 2.2
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Re: Help me please

Postby Dillinger » October 8th, 2012, 11:14 am

Hi WJ,

So sorry about this - I hope you are not in too much discomfort.

I would say first of all; as long as you are conscious and coherent your choice on how to deal with your diabetes takes precedence over anything anyone in hospital may think; you are in hospital not jail; you decide how to manage things.

If you do want to have a discussion about this with them, which of course you don't have to, then here is a good letter to the American Journal for Clinical Nutrition about 'essential nutrients' that you could show them. You'll note that carbohydrate is not on this list; it is shocking that health care professionals don't seem to know this, whereas teenagers doing GCSE Biology do...

The well written letter also notes that whilst there is "no evidence from which to conclude that extreme restriction of dietary carbohydrate is harmless, I was surprised to find that there is similarly little evidence to conclude that extreme restriction of carbohydrate is harmful."

As has been discussed many times; you cannot logically prove a negative, but only a positive; therefore failure to provide any evidence for the harm of low carbing can be taken to mean it does no harm, and we may act on that basis until actual evidence is shown to contradict that.

http://ajcn.nutrition.org/content/75/5/951.2.full

Here's to a swift recovery.

Best

Dillinger
Type 1

HbA1C 6.3, Levemir, Apidra, Lisinopril, Metformin, omega 3, vitamin D3, Alpha Lipoic Acid

There's more to life than books, you know. But not much more.
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Re: Help me please

Postby Ann19 » October 8th, 2012, 7:13 pm

WJ. I can't add anything further to the great suggestions already given, let's hope that they DO read the forum as they have promised. I hope that you soon start to feel better, Thinking of you (((((((HUGS)))))))

Ann
HbA1C diagnosed Mar 11 at 7.7, Jun 11- 7.2, Aug 11-6.3, Nov 11-5.9, Dec 11-5.8, Mar 12-5.5, Jun 12 5.9, Sept 12 6.1, Dec 12 5.9
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Re: Help me please

Postby WhitbyJet » October 9th, 2012, 7:15 am

What a lovely bunch of people you are, thank you so much for cheering me up.

Hello to nurse Jessica and nurse Jean, I know that both of you have been lurking here. Incidentally nurse Jeans relative is a DSN. Both my nurses have certainly taken note and looked around the forum, they have certainly come back to me asking more questions.

I fractured my pelvis falling off a horse, the treatment in my case is complete immobilisation, pain relief and plenty of patience, a new skill I am forced to learn.

If things go according to plan I will be able to walk using crutches in about 6-8 weeks from now.
As far as my diabetes is concerned I have reached a compromise, my friends and family are bringing meals and I have agreed to do my own testing 4 times a day. The consultant agreed with that said to leave me to my own devices if it ain't broke don't fix it is what he said.
The nurses are happy to know I am eating view initially freaked because "carbohydrates are essential" but now we have settled that little argument. Besides I am LOW carb and not NO carb.
Once again thanks to you all for your support and funny messages. My friends are trying outssome new recipes for me and once I get a toggle for the laptop I will be posting you some recipes.
Stay healthy and safe all of you x x
Hb1ac March 2012 - 5.1
Hb1ac June 2012 - 4.8
Hb1ac September 2012 - 4.9
Hb1ac January 2013 - 4.9
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