A place for users of non-diabetic medications such as statins and beta-blockers to discuss side effects, issues and their experiences.
by viviennem » October 10th, 2012, 9:56 am
My local GP practice have announced, in our monthly local Newsletter, that they are changing all patients currently on 40mg or more (

) of Simvastatin, over to Atorvastatin because of the side effects.
Just thought I'd share that with you all
Viv

. . . but what do I know?
Every headache isn't a brain tumour!
It's more about what you do tomorrow than what you did yesterday.
Type 2 since April 2010, 3 x 500g Metformin, well controlled by low-carb.
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viviennem
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by Squire Fulwood » October 10th, 2012, 10:02 am
I know that this post is not going to be very helpful but I couldn't resist making a comment.
I started with Simvastatin and had severe side effects (couldn't walk for a month). Something else was tried. I can't remember the name and within a couple of weeks I had a similar reaction. The third kind of pill made my shoulders feel as if they were glowing and I couldn't move my head.
What I am saying here is that, for me, a change of pill just means a change of side effects. My record now says, "Intolerant of statins" and they are no longer prescribed.
Oh yes, I nearly forgot. They never improved my cholesterol at all.
It's not my fault your Honour, they made me do it.
People with type 2 deserve the chance to test
Support the petition - http://diabetes.co.uk/petition
Hba1c 42 on 3/9/12 BMI 31.98
Hba1c 46 on 9/4/13 BMI 32.34
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by catherinecherub » October 10th, 2012, 10:19 am
viviennem wrote:My local GP practice have announced, in our monthly local Newsletter, that they are changing all patients currently on 40mg or more (

) of Simvastatin, over to Atorvastatin because of the side effects.
Just thought I'd share that with you all
Viv

Pfizer's patent on Atorvastatin expired in May of this year and so there are generics available now. Simvastatin was much cheaper before the expiry but now the price is comparable. Makes you wonder if your surgery would have done this without the drop in price.

It is better to have an open mind than one closed by belief. Anon.
A fanatic is one who can't change his mind and won't change the subject. Winston Churchill.
Type 2 Diet controlled. Last HBA1c 5.2. Following low GI diet.
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catherinecherub
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by Patch » October 10th, 2012, 11:41 am

indeed.
My name is Patch, and I am a (recovering) Carboholic.
If you always do what you've always done, you'll always get what you've always got.
If you don't start somewhere, you're gonna go nowhere. — Bob Marley
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Patch
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by noblehead » October 10th, 2012, 11:47 am
catherinecherub wrote:Pfizer's patent on Atorvastatin expired in May of this year and so there are generics available now. Simvastatin was much cheaper before the expiry but now the price is comparable. Makes you wonder if your surgery would have done this without the drop in price.

Good point Catherine . When I was considering statins last year I read an article that said that patients who used Atorvastatin had far fewer side-effects than those on Simvastatin.......wish I'd saved it now

''The Pessimist sees difficulty in every opportunity. The Optimist sees the opportunity in every difficulty.''
Winston Churchill
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by Paul_c » October 10th, 2012, 1:26 pm
they may prescribe them for me, but they can't make me take the script to the chemists to be filled out... I'm flat out refusing to take them.

"Eat to your meter"....
that's the only clue I'm going to give you...

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by kentish maid » October 10th, 2012, 1:49 pm
there was an article in the pulse which advised gp of an interaction between simvastatin and a hpertensive drug they were advised to change the statin on all patients who were on the other drug unfortunatly i have forgotten the name of the other drug.One gp did say he would be putting all his patients who were affected onto atavastatin.
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by GraceK » October 10th, 2012, 3:22 pm
catherinecherub wrote:viviennem wrote:My local GP practice have announced, in our monthly local Newsletter, that they are changing all patients currently on 40mg or more (

) of Simvastatin, over to Atorvastatin because of the side effects.
Just thought I'd share that with you all
Viv

Pfizer's patent on Atorvastatin expired in May of this year and so there are generics available now. Simvastatin was much cheaper before the expiry but now the price is comparable. Makes you wonder if your surgery would have done this without the drop in price.

Hmmm ... does make you wonder doesn't it?
T2 - Diagnosed 8 August 2012
Metformin SR 1g per day - Multivits - VitD3 - Olive Leaf Extract - Omega 3,6,9
LCHF diet - Eat to my meter - 3 Month HBA1C = 5.7
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GraceK
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by viviennem » October 11th, 2012, 10:37 am
catherinecherub wrote:viviennem wrote:My local GP practice have announced, in our monthly local Newsletter, that they are changing all patients currently on 40mg or more (

) of Simvastatin, over to Atorvastatin because of the side effects.
Just thought I'd share that with you all
Viv

Pfizer's patent on Atorvastatin expired in May of this year and so there are generics available now. Simvastatin was much cheaper before the expiry but now the price is comparable. Makes you wonder if your surgery would have done this without the drop in price.

I'm pretty sure cost will have had something to do with it. The PCT seem to worry about cost more than the practice. On the other hand, at least they have admitted that Simvastatin has bad side-effects! After my experience with it I now won't take statins at all. Surprisingly, only one of our 3 GPs is hassling me about this in any way, and that pretty half-heartedly. Makes me wonder what they really think - I know our lovely practice nurse is completely anti.
As I said on another post, I'm now trying Red Rice Yeast combined with Co-Enzyme Q10. Apparently the RRY (or Red Yeast Rice, as I have also seen it called) is the substance that the original statins were derived from. My total cholesterol has dropped from the lower 5s to 4.6 in the first 3 weeks, and my Total:HDL ratio is now 3.5. I intend to take it, all being well, until my next annual review, just before Christmas.
As you can imagine, I'm monitoring carefully for side-effects, but nothing so far that can't also be blamed on the weather

. I'll keep you informed. I am not recommending that anyone else tries this - do your own research first!
Viv

. . . but what do I know?
Every headache isn't a brain tumour!
It's more about what you do tomorrow than what you did yesterday.
Type 2 since April 2010, 3 x 500g Metformin, well controlled by low-carb.
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viviennem
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by Defren » October 12th, 2012, 8:57 pm
Hi Viv, I have ordered some red rice yeast as I refuse to take the Atorvastatin I am prescribed as it made my hair fall out big time. Even now, about 5-6 weeks after I stopped taking the statin it is still coming out.
Dx T2 March 5th 2012 HbA1c 7.0 Latest July 4.9%
Metformin 500mg 1X2
I've done the Newcastle diet.
All advice I give is based on my own experience!
Eat to your meter
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by viviennem » October 14th, 2012, 10:45 am
Hi Defren
Yep - statins, some BP drugs and Metformin all have hair loss as a side-effect. We can't win! It would seem logical that the original substance that statins are based on might have some of the same side-effects, so watch closely.
The change-over from Simvastatin to Atorvastatin
is to do with blood pressure meds - I've just found the Newsletter again after a long search!

The drugs in question are Amlodipine (brand name Istin) or Diltiazem (brand names Adizem or Tildiem).
They are changing all patients on a
high dose of Simvastin (40mg and above) on to 20mg of Atorvastatin.
Viv

. . . but what do I know?
Every headache isn't a brain tumour!
It's more about what you do tomorrow than what you did yesterday.
Type 2 since April 2010, 3 x 500g Metformin, well controlled by low-carb.
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viviennem
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- Posts: 3068
- Joined: January 4th, 2011, 12:49 pm
- Location: Wensleydale, North Yorkshire
by GraceK » October 14th, 2012, 11:13 am
I take Tesco's Omega 3,6,9 combo.
They're said to be helpful in lowering LDL and therefore, good for arteries, heart, brain, health. I know they definitely do improve my memory and brain fog symptoms.
BTW I'm not rigid about taking any supplements - I take them MOST days but not ALL days. I tend to think that if I remember them, it's because they're needed.
T2 - Diagnosed 8 August 2012
Metformin SR 1g per day - Multivits - VitD3 - Olive Leaf Extract - Omega 3,6,9
LCHF diet - Eat to my meter - 3 Month HBA1C = 5.7
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by annew » October 14th, 2012, 11:37 am
Took me ages to realise the problems I was having with my legs from time to time - unable to walk far, pain, severe night cramps - were related to the Simvastatin I was taking. All problems have gone and not returned since stopping them. Wouldn't touch ANY statins with a bargepole now.
Less medication the better is now my motto having also recently stopped BP meds. No change in my BP still within good levels, pulse rate increased (to normal levels ) having stopped beta blocker. Surprise surprise.
Anne
Diagnosed August 2012. Diet only LCHF. Hb1ac at diagnosis 111. Jan2013 HB1ac 38. Ramipril 10mg. Supplements Chromium Picolinate, Garlic capsules.
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by ColinBhoy » October 16th, 2012, 9:41 am
Just another comment here...
I also replied to Balirob on this recently.
My doctor had described me as 'Statin Intolerant' after experiencing some pretty bad side effects with Simvastatin. I guess I remained this way for a couple of years, before my GP retired. His replacement was a younger man who told me that I really had to be taking statins. He said that the Simvastatin was prescribed because it was the cheapest statin available, but because of his concerns he was prepared to prescribe the more costly Atorvastatin. Result was very well controlled Cholestorol levels within a very short time, and no side effects whatsoever. I am very happy to take this drug and it has improved my general health and well being tremendously (which may be a bit of a placebo effect, but who cares!).
Hope this helps the conversations

Regards,
Colin.
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by avdyke » October 16th, 2012, 10:02 am
'Statin Intolerant' describes me too.
Nearly crippled myself a few years ago, eventually almost unable to walk upstairs until I stopped the Simvaastatin.
Still on painkiller some years later, very slowly improving.
I have tried other, newer statins. They don't affect me as badly - but after a couple of weeks the old aches and pains return.
So, I'm on some of the older drugs: Bezafibrate currently. They don't work as well as statins - but they don't hurt me either!
Andrew
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