Does it get better?

Mynameiskez

Well-Known Member
Messages
67
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
finger pricking and maths at every meal
Hi there.

I was diagnosed t2 three years ago. I've been on quite a lot of meds since then that don't seem to be working. A severe trauma and depression saw me not attend clinics for about 18 months but I remained complient with diet and meds.

Since I've had therapy and got back to my diabetes appointments it transpires that my meds aren't working and it's highly likely I'm t.1.5. the hospital previously failed at testing for GAD or Cpeptide and I only leared about these recently. Both tests have now been done and I await the results before changing my treatment.

I've been off work for the past month because of this. Whilst in work I dreamt daily of being at home, writing my PhD and doing arts and crafts (anything but work right) - just like most people. Since I have been at home I have had no energy or motivation to do anything. It's driving me insane but I keep reminding myself - hey your body has no way of producing energy.

I can feel the depression sneaking back in as it's like my whole attitude to life has changed for the worst. I've always been ambitious and driven by achievement. Now I see myself stuck on the sofa for life, hiding away and doing very little. I feel lazy and hate myself for it. I struggle to even read a book for longer than 15 minutes. It's ridiculous.

Can anyone share any stories they have where they may have been in a similar situation but turned it around with insulin?

Will I have my lust for life back? Will I be able to do stuff again?

I have a good job that pays fairly well - but I feel like I'm on the brink of losing it if things don't change.
 

Diakat

Expert
Retired Moderator
Messages
5,591
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
The smell of cigars
Hi @Mynameiskez
The insulin will help control blood sugars and that should give you more energy and help you feel better.

However, if you do continue to feel depressed you may need to seek further help.

Being an insulin dependent diabetic does not sentence you to a life of misery and joblessness. Plenty of people here have great careers and fulfilling lives. Insulin just helps us live them!

Hope you feel better soon. Tagging @Kristin251 and @Diabell
 
Last edited:

Mynameiskez

Well-Known Member
Messages
67
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
finger pricking and maths at every meal
Thank you Diakat.

I'm currently keeping my levels low by eating pretty much no carbs - but this isn't sustainable or very much fun. So I'm not perfect at it.

I guess I do know all of the things you have said. I just needed to hear it from someone else. I can't wait to have energy. I mean I don't exactly plan to run a marathon - but a little umph when I wake up wouldn't go amiss.
 

Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
@Kristin this sounds like your situation, before you were put on insulin.

Hi and welcome @Mynameiskez - have you found the LADA/1.5 section of the forum yet? Lots of advice, support and people with similar issues there.

I think that once you get the right medications, used in the right doses, you will get your life back. :)
 
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Mynameiskez

Well-Known Member
Messages
67
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
finger pricking and maths at every meal
@Kristin this sounds like your situation, before you were put on insulin.

Hi and welcome @Mynameiskez - have you found the LADA/1.5 section of the forum yet? Lots of advice, support and people with similar issues there.

I think that once you get the right medications, used in the right doses, you will get your life back. :)

I have. It's where this post cam be found.

That's very reassuring. I hope so. I can't live like this!! I've been existed for a while now but kept on going. I though it was the depression. The trauma. But that is something I have fully resolved now.

Before I had diabetes I took on a part time phd and had all the energy and focus to to it. Now I'm not THAT far from completing I can't even look at it. :( and if I'm honest if it comes down to my job or the PhD I will chose the PhD. But even so - I've had a whole month off and not been able to work on my thesis at all. I feel total redundant and unable to provide any service to the world. Can't wait for it to be over.
 

ickihun

Master
Messages
13,698
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Bullies
Hi @Mynameiskez
Although I'm type2 I have been where you are. Going on insulin gave me my life back.
However I have noticed and relayed it back to dn that if I run my bgs too low I can get gloomy.
When I relax my strict regime I'm a lot more myself. Jolly and giggly, daft woman.
Although I lose weight with lower bgs my mental health doesn't like it.
I work for somewhere inbetween. To have body and mind happy!
@Kristin251 will be better at explaining your type of diabetes and its preferences.
I hope tweeks can make all the difference. Hoping to hear from a happier kez soon. :)
 
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Mynameiskez

Well-Known Member
Messages
67
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
finger pricking and maths at every meal
Thanks so much for such an informative response. Encouraging too!

I'm a needlephobic too. Sick of hearing 'you'll be ok' 'you'll just do it' they have no idea. Worst is 'hey at last you can have cake' i couldn't care less about cake if I'm honest. I want my life back.

Having hypnosis for the needle fear. If that doesn't work I'm literally going to have to give up my job so I can move close to someone who will inject me daily. No lie my fear is that bad!

Hi @Mynameiskez
Although I'm type2 I have been where you are. Going on insulin gave me my life back.
However I have noticed and relayed it back to dn that if I run my bgs too low I can get gloomy.
When I relax my strict regime I'm a lot more myself. Jolly and giggly, daft woman.
Although I lose weight with lower bgs my mental health doesn't like it.
I work for somewhere inbetween. To have body and mind happy!
@Kristin251 will be better at explaining your type of diabetes and its preferences.
I hope tweeks can make all the difference. Hoping to hear from a happier kez soon. :)
 

chalup

Well-Known Member
Messages
1,745
Type of diabetes
Type 2
Treatment type
Other
An insulin pump could be the solution to the needle phobia but others would know a lot more about that. There will be a way for you.
 

Mynameiskez

Well-Known Member
Messages
67
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
finger pricking and maths at every meal
An insulin pump could be the solution to the needle phobia but others would know a lot more about that. There will be a way for you.

I'm inclined to think otherwise. It's not needle specifically - it's the thought of anything being under my skin. This contributes to compulsive skin picking. An insulin pump would make my worst fear a constant reality as I would have something permanently in there. I'm cringing at the thought.
 

Mynameiskez

Well-Known Member
Messages
67
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
finger pricking and maths at every meal
An insulin pump could be the solution to the needle phobia but others would know a lot more about that. There will be a way for you.

Yup just read up on how they are attached to you - a small needle and tube constantly jammed under your skin. I actually burst out in tears.
 

ickihun

Master
Messages
13,698
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Bullies
Let us know how hypnotherapy comes along. It can be very successful.
Tv programme this week showed fear of fliers after hypnotism.
You can do this.
Well done for not closing your mind to an excellent solution.
I'm watching this space! ;)
 

Mynameiskez

Well-Known Member
Messages
67
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
finger pricking and maths at every meal
Let us know how hypnotherapy comes along. It can be very successful.
Tv programme this week showed fear of fliers after hypnotism.
You can do this.
Well done for not closing your mind to an excellent solution.
I'm watching this space! ;)
I rwally appreciate the support. Thank you I will do. :) about to go to gp and see when I'll get the insulin too
 

Mynameiskez

Well-Known Member
Messages
67
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
finger pricking and maths at every meal
Prem that's amazing. Thank you for the info.

I've just come back from the GP. In floods of tears right now. Test results not there - though glucose readings from the same day the samples were taken are. Funny as glucose readings weren't requested. I don't know.

My GP was surprised I'm not on insulin yet. She had requested that the hospital team see me a month ago. I've heard nothing from them at all. She has chased this and my results.

Signed off for another 4 months.

I'm thinking awful thoughts about things I can do to get myself hospitalised. Other LADA''s I've spoke to were hospitalised and had insulin within a week if not right away.

This has been going on months for me. 5 weeks since the diabetic consultant from the hospital and my GP agreed I needed insulin. And now all I can do is continue to wait. I'm so upset right now. I can't live like this.

@Mynameiskez On your other thread about your needle phobia @Scott-C mentioned a needle free insulin injector - www.insujet.com
There is a thread about it here: www.diabetes.co.uk/forum/threads/needle-free-injector.11670/#post-1392459 by @miszu .
 

Mynameiskez

Well-Known Member
Messages
67
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
finger pricking and maths at every meal

azure

Expert
Messages
9,780
Type of diabetes
Type 1
Treatment type
Pump
@Mynameiskez Cant your GP prescribe a small dose of insulin? Can't you see a DSN if there's a wait for a consultant?

You're not the only LADA who's been messed around and made to wait a ridiculous time for insulin. I hope very much you can keep pushing and get it sorted.
 

Mynameiskez

Well-Known Member
Messages
67
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
finger pricking and maths at every meal
I don't think it's a waiting list. That hospital are incompetent I'm every interaction I've had with them.

The GP did say she could prescribe it and said 'buuuut..' and shrugged her shoulders. No idea what that means. I guess it's 'we'd like to see the results to be certain'.

I get the impression that because of my phobia she'd rather they deal with that side of things. I don't know if I should cry, scream or bang my head off something. It's so infuriating. And this is the only hospital I can deal with apparently. Despite the city having about 5 of them. It is the closest I'll say that much. I might actually move house just to put me in range of a better hospital. How ridiculous I'd even have to think that.
 

azure

Expert
Messages
9,780
Type of diabetes
Type 1
Treatment type
Pump
Yup just read up on how they are attached to you - a small needle and tube constantly jammed under your skin. I actually burst out in tears.

I have a pump and although there's a tiny plastic cannula in my skin (really small, really narrow) I don't feel it at all and in fact would have to feel around to find exactly where it is. It is totally unnoticeable. The cannula is replaced every two or three days. I do mine manually but there are inserters where you just put a device on your skin and click the button. Don't rule pumps out until you've tried injections and found out more information about them :)