Saw the BBC 3 programme

Lucy02

Newbie
Messages
4
Type of diabetes
Type 1
Hi - just saw the programme on diabulimia on iplayer. Really upsetting. I don't have diabulimia, but I do have 'standard' bulimia together with type 1 and have spent literally the whole weekend bingeing and purging. Can't seem to get a grip on it. Not really had more than a couple of months healthy for the last 14 years. Feeling at breaking point - no energy, becoming overweight, mental health in the gutter, only just maintaining normal life. Always take my insulin and take extra to compensate for binges...but, still pretty impossible to get good control with the amount and type of food I am eating on a regular basis. No point getting 'proper help' - been there, done that, makes no difference. Need to get myself out of this. Really think it's nothing more than a habit, but for some reason can't break it. Hope I can use the forum as part of getting through it. Thanks.
Hi Curly,

Thank you for sharing your problem, it's made me feel as if I'm not the only one.

I am going through exactly what you're going through and I understand how difficult it is. I had bulimia non purging since 12 years old and then at 21 got T1, have been living the nightmare cycle of binge and restrict ever since and of course the lack of sugar control that comes with frequent binges is so mentally and physically draining, I just feel it's so hard to cope.

I think you are right when you say only the answer can come from us.

its just nice to talk to someone who's going through the same thing as me as I feel so isolated.

Take care,

Lucy
 

jacqfromdwed

DWED Support
Messages
24
Type of diabetes
Type 1
Treatment type
Pump
Hi Jacq,

I've just been reading this thread and what Curly said is exactly what I'm going through- I had bulimia non purging since the age of 12 where I would diet excessively losing weight very quickly and then severe episodes of binging which could last weeks or months. Then when I was 21 I was diagnosed with Type 1 which completely exaserbated things and have been living in hell ever since I'm now 25. I have been through DBT and CBT at an eating disorders clinic but much like other people here I found none of the NHS professions knew anything about T1. The BBC documenaty really struck a cord with me and I'm just wondering where to turn, I've almost given up hope. Can you recommend any books to me? I've read dozens of books on ED recovery but none that relate to T1.

Thank you,
Lucy


Hi Lucy

My friend Dr Jen Nash wrote a book called Diabetes and Well being and that's quite good as an overview into sort of general psychologcial functioning with Diabetes. Dr Anne Goebel Fabri has written really good book called injecting hope - she was one of the very very first psychs to recognise diabulimia and how different it is to other eds. When I started getting better, don't laugh, I bought myself CBT and NLP for dummies and sort of made my own programme up using those principles for ages I didn't think it was working but then I sort of got better in spite of myself. Can I ask where about in the UK you are based in case I know anyone who might be local to you?
 

Lucy02

Newbie
Messages
4
Type of diabetes
Type 1
Hi Lucy

My friend Dr Jen Nash wrote a book called Diabetes and Well being and that's quite good as an overview into sort of general psychologcial functioning with Diabetes. Dr Anne Goebel Fabri has written really good book called injecting hope - she was one of the very very first psychs to recognise diabulimia and how different it is to other eds. When I started getting better, don't laugh, I bought myself CBT and NLP for dummies and sort of made my own programme up using those principles for ages I didn't think it was working but then I sort of got better in spite of myself. Can I ask where about in the UK you are based in case I know anyone who might be local to you?
Thanks so much for getting back to me, I'm based in Hampshire quite near Southampton, also close to Portsmouth and Winchester. Thank you also for book recommendations I will look into those. If you could let me know of any local help that would be great. Thank you xx
 

jacqfromdwed

DWED Support
Messages
24
Type of diabetes
Type 1
Treatment type
Pump
Thanks so much for getting back to me, I'm based in Hampshire quite near Southampton, also close to Portsmouth and Winchester. Thank you also for book recommendations I will look into those. If you could let me know of any local help that would be great. Thank you xx

Hi Lucy -I do know some people in and around Portsmouth and I know a D consultant there who I've worked with so I'll get in touch and see what the protocol would be to get you seen there - How are you doing today
 

Lucy02

Newbie
Messages
4
Type of diabetes
Type 1
Hi Lucy -I do know some people in and around Portsmouth and I know a D consultant there who I've worked with so I'll get in touch and see what the protocol would be to get you seen there - How are you doing today

Hi Jacq, thanks so much for your reply. Yes if you could let me know that would be great. I'm seen for my diabetes at queen Alexandra hospital in Portsmouth but there's no psychological help in the clinic there. Not too good today I've had a big binge this morning and woke up last night with my sugars at 20. Hope you're well,

Lucy
 
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jacqfromdwed

DWED Support
Messages
24
Type of diabetes
Type 1
Treatment type
Pump
Hi Lucy - I will DM you - I've spoken to the D consultant and he gave me his email for you to get in touch with him - actually can you email me via the DWED website and we can chat there x
 

asortafairytale

DWED Support
Staff Member
Messages
56
Curly and Lucy, I am diagnosed as AN b/p subtype rather than Diabulimia so I completely understand and can resonate a lot with your feelings. Lucy, I am just down the road from Portsmouth . I really hope you are able to access some specialist treatment.
 
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