Type 1 & Transplant - Help !

sillysausage

Member
Messages
18
Type of diabetes
Treatment type
Insulin
Renal Biopsy results...
Yesterday my Consultant explained my needing a a transplant in the near future, he suggested an appointment with the Kidney Support Clinic they will answer all my fears. Has anyone on the Forum found themselves in a similar situation, Insulin Dependent since Nov' 2015. ........please can someone help get my head around all this !
 

Jaylee

Oracle
Retired Moderator
Messages
18,232
Type of diabetes
Type 1
Treatment type
Insulin
Hi,

I once worked with a T1 bass player who had a kidney transplant.. They also put him on a pump. His historic control/management was not the best.
From what I know. (He didn't talk much.) he also had to take anti rejection drugs regarding the transplant too..

He is doing OK though...

Just bumping this up in the hope someone with more personal experience can help you.?
 

Jaylee

Oracle
Retired Moderator
Messages
18,232
Type of diabetes
Type 1
Treatment type
Insulin
just noticed. Your down as a T2? Though the title says "T1".

Could you clarify?
 

Daphne917

Well-Known Member
Messages
3,320
Type of diabetes
Treatment type
Diet only
Renal Biopsy results...
Yesterday my Consultant explained my needing a a transplant in the near future, he suggested an appointment with the Kidney Support Clinic they will answer all my fears. Has anyone on the Forum found themselves in a similar situation, Insulin Dependent since Nov' 2015. ........please can someone help get my head around all this !
Hi @sillysausage there is at least one forum member, @pleinster who has had a kidney transplant who may be able to help and advise you. Good luck and hope all goes well
 
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pleinster

Well-Known Member
Messages
1,631
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
ignorance
Hi SS, I had a kidney transplant exactly one year ago yesterday. It wasn't as a result of diabetic complications...in fact I got diabetes from steroid treatment post transplant (which was always an acceptable risk). What I can tell you right now is that my kidney function before transplant was 8%...and it is now over 60% (which is normal). The operation was a success and I have had absolutely no indications of any kind of rejection. The renal staff from consultants to surgeons were brilliant and I was reassured at every stage.
The important things I need to know from you, before I can give you any specific advice (and having been diagnosed with a kidney problem as a teenager and having a mother and brother with the same condition..both having had transplants, I have a pretty good idea of what it's all about) - is..what exactly did your "consultant" say? is he/she a renal specialist? Is there a problem with your kidney/s due to diabetes or another issue? Why did you have to have a biopsy? Ask, please the following question of your doctor/team...from blood tests they will do...what is your creatinine level? That is the single most important number - way more important than any blood sugar level. Normal would be around 120ish (that's about 60% function)...it tells us how well your kidney functions. What you should know, is that while there are many causes for kidney failure, this number is the crucial one. No-one simply goes in and gets a kidney transplant...your function needs to be way down around 9% or less before that would happen (and most people would go onto dialysis while waiting for an organ, the right one, to become available, unless they have someone they know who is compatible and willing to give up one kidney as a living donor). Sounds like your consultant is jumping ahead quite a bit here. People don't get transplants based on need. There is a waiting list you would be placed on.
Anyway...I'm saying too much. The bottom line just now is see what is said at the appointment arranged for you. I think you will find a transplant, if required is a long way off...and your level of function will determine whether or not dialysis is required prior to transplant (if its needed at all). Ask - what was the creatinine level at the biopsy...and get back to me. Absolutely no point in worrying whatsoever until we know that figure. As for a renal transplant itself...4 hour op...a week maybe in hospital...home...coupla months to recover. Anything at all I can help with - don't hesitate to ask, but get that creatinine level for me. Paul
 
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