IVF

T1Taz

Member
Messages
24
Type of diabetes
Type 1
Treatment type
Insulin
I'm a Type1 diabetic with 2 children (6 & 4). Due to permanent damage to my tubes I need IVF to conceive our next baby. I was wondering if there are any Type1s out there that have gone through this. I'd love to hear from you, Thanks Averil
 

fig

Well-Known Member
Messages
74
Type of diabetes
Type 1
Treatment type
Pump
I haven't been through IVF myself so i am unable to offer any advice but would still like to say best of luck and i hope it all works out for you :)
 
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cleo82

Well-Known Member
Messages
61
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Not being able to control effects of stress on blood sugars
Hi averil, we're just going through first round of IVF so please give me a shout if I can help with anything. The drugs and timing differ from person to person, and between hospitals too, but to give you an idea, ours was...

  • 4 march- initial consultation
  • Phone clinic when period arrives
  • Daily progesterone tablets (norethisterone) to delay next period (these played havoc with sugars, struggled to get them below 13 most days, went back to normal within 48hrs of stopping tablets though)
  • Period started 4 days after stopping tablets (much heavier than normal)
  • Baseline scan following day to check lining, counted as day 1
  • Daily fsh injections (bit sore, I take insulin 5 times a day without batting eyelid but I was black and blue from fsh ones!)
  • Daily injections to prevent ovulation from day 5,
  • Scan day 6 to check how follicles are progressing
  • Day 7 - started to feel effects of drugs, monster headaches, really bloated and nauseous so eating little and often to keep sugars under control (drink plenty water to minimise side effects)
  • Scan day 8 - ditto ( was also scheduled to have progress scan on day 11 but had developed 30 follicles by day 8 so egg collection brought forward, doc worried about ohss so swapped fsh injections for downreg ones, HCG injection had originally been planned for 36 hrs before collection)
  • 28 April - Egg collection. fast from midnight but first appt (8:15) so no dramas. Apple juice 2 hours before if you think sugars might go low before collection. Paracetamol and ibroprofen 1 hour before, tamazepan (sp?) when you arrive and IV painkillers just before EC (and another dose during procedure in my case, endometiomas on both ovaries and both enlarged due to hyper stimulation meant very painful but some women feel very little apparently). Spent most of day in bed then next few days taking it easy (your body will tell you what's too much, hoovering stairs in my case!)
  • Next step would be transfer between day 3 and 5 depending on how your embryos develop and pessaries to support them, but we haven't reached that stage yet.
So all in all, it moved very quickly for us up to EC stage. 19 eggs fertilised but only 6 embryos made it to day 5 (all frozen). Just waiting for ovaries to calm down and we'll try frozen transfer in 2-3 months if any blastocysts survive the thaw (fingers crossed). Diabetes wise, it's been ok bar the 13 days of progesterone at the start. I was fortunate to get almost 3 weeks off work (well, bar a few calls and emails!) which has really helped. Don't know how I would have controlled sugars with work stress in the equation.

Best of luck xx

Ps, reason for visiting site... Trying to find out how many appointments you have during pregnancy ( ever the optimist) - had a pre-preg consultation years ago and seemed to remember them saying fortnightly, but not sure if that was just at end or right through - may I ask what your experience was?
 
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Reactions: 2 people

fig

Well-Known Member
Messages
74
Type of diabetes
Type 1
Treatment type
Pump
Hi averil, we're just going through first round of IVF so please give me a shout if I help with anything. The drugs and timing differ from person to person, and between hospitals too, but to give you an idea, ours was...

  • 4 march- initial consultation
  • Phone clinic when period arrives
  • Daily progesterone tablets (norethisterone) to delay next period (these played havoc with sugars, struggled to get them below 13 most days, went back to normal within 48hrs of stopping tablets though)
  • Period started 4 days after stopping tablets (much heavier than normal)
  • Baseline scan following day to check lining, counted as day 1
  • Daily fsh injections (bit sore, I take insulin 5 times a day without batting eyelid but I was black and blue from fsh ones!)
  • Daily injections to prevent ovulation from day 5,
  • Scan day 6 to check how follicles are progressing
  • Day 7 - started to feel effects of drugs, monster headaches, really bloated and nauseous so eating little and often to keep sugars under control (drink plenty water to minimise side effects)
  • Scan day 8 - ditto ( was also scheduled to have progress scan on day 11 but had developed 30 follicles by day 8 so egg collection brought forward, doc worried about ohss so swapped fsh injections for downreg ones, HCG injection had originally been planned for 36 hrs before collection)
  • 28 April - Egg collection. fast from midnight but first appt (8:15) so no dramas. Apple juice 2 hours before if you think sugars might go low before collection. Paracetamol and ibroprofen 1 hour before, tamazepan (sp?) when you arrive and IV painkillers just before EC (and another dose during procedure in my case, endometiomas on both ovaries and both enlarged due to hyper stimulation meant very painful but some women feel very little apparently). Spent most of day in bed then next few days taking it easy (your body will tell you what's too much, hoovering stairs in my case!)
  • Next step would be transfer between day 3 and 5 depending on how your embryos develop and pessaries to support them, but we haven't reached that stage yet.
So all in all, it moved very quickly for us up to EC stage. 19 eggs fertilised but only 6 embryos made it to day 5 (all frozen). Just waiting for ovaries to calm down and we'll try frozen transfer in 2-3 months if any blastocysts survive the thaw (fingers crossed). Diabetes wise, it's been ok bar the 13 days of progesterone at the start. I was fortunate to get almost 3 weeks off work (well, bar a few calls and emails!) which has really helped. Don't know how I would have controlled sugars with work stress in the equation.

Best of luck xx

Ps, reason for visiting site... Trying to find out how many appointments you have during pregnancy ( ever the optimist) - had a pre-preg consultation years ago and seemed to remember them saying fortnightly, but not sure if that was just at end or right through - may I ask what your experience was?

oh wow that s really interesting, thanks for posting your experiences so far and i hope everything works out for you. just to answer your question, yes in my experience its appointments every 2 weeks and then weekly in the last couple of months
 

cleo82

Well-Known Member
Messages
61
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Not being able to control effects of stress on blood sugars
Cheers fig, just planning ahead for work ( not that anything ever goes to plan lol!)
 

fig

Well-Known Member
Messages
74
Type of diabetes
Type 1
Treatment type
Pump
Cheers fig, just planning ahead for work ( not that anything ever goes to plan lol!)
yes very true lol, i always knew that my appointments would be on a thursday afternoon so i made sure that i kept my work load as low as possible on those days so that other people weren't burdened with extra jobs when i left. I never knew how long the clinic would last for though so i would leave work at 1pm ish for an appointment at 1:30pm, intending to return to work later on but i would often still be in the clinic at 5pm and never make it back to work as i had to see so many different nurses and consultants all on the same day.
 

T1Taz

Member
Messages
24
Type of diabetes
Type 1
Treatment type
Insulin
Hi averil, we're just going through first round of IVF so please give me a shout if I can help with anything. The drugs and timing differ from person to person, and between hospitals too, but to give you an idea, ours was...

  • 4 march- initial consultation
  • Phone clinic when period arrives
  • Daily progesterone tablets (norethisterone) to delay next period (these played havoc with sugars, struggled to get them below 13 most days, went back to normal within 48hrs of stopping tablets though)
  • Period started 4 days after stopping tablets (much heavier than normal)
  • Baseline scan following day to check lining, counted as day 1
  • Daily fsh injections (bit sore, I take insulin 5 times a day without batting eyelid but I was black and blue from fsh ones!)
  • Daily injections to prevent ovulation from day 5,
  • Scan day 6 to check how follicles are progressing
  • Day 7 - started to feel effects of drugs, monster headaches, really bloated and nauseous so eating little and often to keep sugars under control (drink plenty water to minimise side effects)
  • Scan day 8 - ditto ( was also scheduled to have progress scan on day 11 but had developed 30 follicles by day 8 so egg collection brought forward, doc worried about ohss so swapped fsh injections for downreg ones, HCG injection had originally been planned for 36 hrs before collection)
  • 28 April - Egg collection. fast from midnight but first appt (8:15) so no dramas. Apple juice 2 hours before if you think sugars might go low before collection. Paracetamol and ibroprofen 1 hour before, tamazepan (sp?) when you arrive and IV painkillers just before EC (and another dose during procedure in my case, endometiomas on both ovaries and both enlarged due to hyper stimulation meant very painful but some women feel very little apparently). Spent most of day in bed then next few days taking it easy (your body will tell you what's too much, hoovering stairs in my case!)
  • Next step would be transfer between day 3 and 5 depending on how your embryos develop and pessaries to support them, but we haven't reached that stage yet.
So all in all, it moved very quickly for us up to EC stage. 19 eggs fertilised but only 6 embryos made it to day 5 (all frozen). Just waiting for ovaries to calm down and we'll try frozen transfer in 2-3 months if any blastocysts survive the thaw (fingers crossed). Diabetes wise, it's been ok bar the 13 days of progesterone at the start. I was fortunate to get almost 3 weeks off work (well, bar a few calls and emails!) which has really helped. Don't know how I would have controlled sugars with work stress in the equation.

Best of luck xx

Ps, reason for visiting site... Trying to find out how many appointments you have during pregnancy ( ever the optimist) - had a pre-preg consultation years ago and seemed to remember them saying fortnightly, but not sure if that was just at end or right through - may I ask what your experience was?
Hi cleo82
Thank you so much for replying. I'll definitely be in touch. We've decided to delay it til next year, we're moving house this summer & the kids are changing schools & I'm returning to work. So things should have settled down by the new year. I'm afraid I've no advice for you about your appointments because I'm in Ireland. Best of luck hun & let us know how you're getting on, I'll have my fingers crossed for you xox