I was diagnosed Type 2 at the start of June and put on Metformin. Nurses took my blood glucose levels and I was at 21 mmol which they said was too high.Another nurse said "I dont know how you are functioning at these levels". I now understand what they meant by too high! Should be between 4 and 7! Doctor put me on Metformin and I went on holiday for 2 weeks. Was really good - no alcohol, no sugar, good healthy foods but blood glucose was running at 18-25mmol, felt really rough every day. Came back from holiday, spoke to Doctor who told me to carry on with the Metformin. After a couple of days, I was feeling worse so took the bull by the horns and paid to see a priavte specialist. Couldnt see him because he was so busy, but saw his assistant. When she saw how bad I was, she went to see him and he saw me immediately - told me at a 2nd appointment that he was extremely concerned about me and worried about how bad I was. Cut a long story short, I was thinking I was having a 30 min consultation about nutrition and energy, ended up 4 hours later, body scans and blood tests with a diagnosis of Late Onset Type 1 and injecting insulin. I started on 18 units once a day, over a couple of weeks this increased to 120 units (60 units twice a day) and I'm now down to 60 units a day (2x30 units) and am feeling 110% better after just 3 months - so much more energy, double vision has virtually gone, people are telling me I'm smiling again(!), working out at the gym is enjoyable - I'm back to doing 50 mins x-trainer, 4 months ago, I could only do 15 mins and I've started running again after my x-training. I've not had the energy to run for 2-3 years.
What is the moral of my story.
1. My specilaist felt I had been misdiagnosed by the NHS doctors and although they would have got to a Type 1 diagnosis, I urgently needed insulin and it would have taken them some time to get there. If the Metformin is not having an affect after 4 weeks, press for further tests - the NHS doc told me to wait another 2-3 weeks but I thought I was just being fobbed off. If you can afford it, see a private specialist even if its for just an hour. A couple of hundred pounds was well worth the investment for me.
2. Buy a blood glucose meter. As a diabetic you get free prescriptions now. I bought my meter (£15) but get the strips on the NHS. Some manufacturers give the meters away because they make money selling the test strips, your diabetic nurse at your GP should be able to get you one and then get the strips on the NHS. My GP told me I didnt need one, my Consultant was shocked he said that and said it was vital!. Ihad already bought one though which he was pleased about.
3. My Metformin was upsetting my stomach. The first thing my Consultant did was change my Metformin to slow release - he said the slow release is 10x the cost of the standard Metformin which is why its prescribed by the NHS but if its giving you side effects, then get it changed.
4. Monitor your blood at least 3-4 times a day and keep a record. This way you can see what your trend is and how things are working and what impacts your blood sugar levels.
5. Push yourself through the NHS system. I had my first appointment with the diabetic nurse at my Doctors practice booked for the end of June - the earliest they could see me. By the time I saw her, I was injecting insulin daily, feeling 100% better, changed my Metformin - all becuse I made some personal decisions and didnt rely on the NHS. Luckily I was in a position to be able to do this, but would certianly recommend this approach if you can afford it.
6. Change your diet. I've got a sweet tooth as well, but you do need to make life changing decisions. I cut out sugar, bread, rice, pasta for over 2 months. I went cold turkey pretty much and dealt with headaches etc with paracetomol, Its not ideal, but you can do without them just with some careful meal planning. The biggest issue for me was cordial in the evening with a meal. I changed to fizzy water with a lemon, orange or lime squeezed into it. Not the same, but certainly a lot better. Cauliflower rice is a good alternative for rice, and cutting out potatos with an evening meal! - just add more veg.
7. Take ownership and responibility for your own condition, dont leave it to others to run your life for you. I'm not trying to preach here, or make assertions, but if I had left my diabetes to the NHS, I would certainly have been a lot worse before I started to get better!
8. Make time to go to the gym. Find a personal trainer if you can afford it and find one who knows about diabetes, training and nutrition. If not, still go the gym and use their advice services to set up a training schedule.
9. Have a couple of small bottles or cans of Coke around, I also have Dextrose tablets. I had a couple of small hypos in the early days, but have had nothing for 6-7 weeks now. I'm carefully managing my blood sugars and food intake. Carry some in your car as well.
10. Inform the DVLA and your insurance company. I've still not heard back from the DVLA
and my insurance company (Direct Line) said "thanks for telling us, it doesnt affect your policy if you are driving and havent been told by a doctor you cant" buts its best to have this on record.
11. If you need to fly, I had a work trip to Sri Lanka for a week a couple of weeks ago, then make sure you have enough supplies with you. I flew via Dubai and had more hassle with my iPad than I did with carrying insulin and small needles with me!
Good luck. Hope this is useful