Am i the only one who wants a pump?

[CarbsRok]

I didn't mean it like that, I have been testing more, it's just everyone I ask about the pump it's always the same answer that I'm not testing enough, there's some days I'm testing 7-8 times a day, how many times do I need to do it?

At least 8 times a day imho, plus a few night time tests.
Do you actually do anything with the test results?
Ask that it's put in writing why you can not have a pump then address the issues. If you have addressed all the issues then ask your GP for a transfer to a pump friendly clinic.
Pumps are not plug and play, there is a lot and I do mean a lot of work involved in pumping.
Do you understand about carb ratios, insulin sensitivity, also do you understand how different food affect your blood sugars?

 

[Deleted member 83869]

I can't get my head around why people would actually want something **** near permanently attached to them if they (like you) could get improved bloods from giving mdi.

If after trying to do blood tests and amending doses etc that reasonable control is not gained. Then it is perfectly reasonable to request a pump.

Just that there seems to more people wanting a permanent gadget attached to themselves without really tring to make the efforts with control using mdi.

It just scares me that people seem to think that pumps are an easy option without the full realisation that the management of them is more effort, testing is more frequent and DKA is possible from set failures etc.

I am eternally grateful that I have a pump, but it just worries me that if effort can't be made to inject and test on mdi then why should people expect to just get a pump, when others have made huge attempts to gain control and still can't gain good levels. Postcode lotteries still apply as well.

I guess maybe it's more of a thing for younger diabetics? I am not trying to offend anyone but maybe it's there opinions (I dont make sense typing this because I'm hypo and waiting to come back up ha!) but with our pump you don't even know it is there! I don't anyway! I don't know if that is the same for other pumps!
I tried MDI and had no luck...yeah maybe I didn't have the control I should of had but I was going through a lot anyway with no support from anyone not even my Dad well not properly! I was diagnosed at 13 and I felt alone and I struggled an enormous amount!! Close to death twice! And then I was finally considered a pump...even though some people on here would say I shouldn't have one but at the end of the day my DSN, consultant and NICE agreed to let me have one.

And it annoys me for people to say that "Why do all diabetics feel they are entitled to a pump these days? diagnosed 5 mins and all of a sudden want a pump that some can't get" surely they just want to be rid of the disease we have and to feel slightly normal again...injections atleast 4 or 5 times a day isn't fun for anyone!! And for another diabetic to say it is a tad harsh and I am sorry but I am not sorry for what I have said! Alot of diabetics suffer with depression! I know a young girl who is 15 and diabetic and she has a pump but she is needle phobic! And the other day it took her an hour to change her site because she is so scared and has panic attacks....diabetes isn't easy for anyone!!

Rant over

 

[Deleted member 83869]

PS DON'T WANT TO OFFEND ANYONE AND SORRY IF IT DONT MAKE SENSE LOL

 

[Emma_P23]

PS DON'T WANT TO OFFEND ANYONE AND SORRY IF IT DONT MAKE SENSE LOL

You shouldn't fear that you will offend anyone. We're all entitled to our opinions.
This thread holds a lot of negative posts. All people need to remember is that people can change. Everyone should be able to get the best care possible.

 

[Deleted member 83869]

You shouldn't fear that you will offend anyone. We're all entitled to our opinions.
This thread holds a lot of negative posts. All people need to remember is that people can change. Everyone should be able to get the best care possible.

Exactly my point lol just had to get it off my chest and well you know the saying "drunken minds leads to the truth" or whatever maybe thats the case when you're hypo lmao!! x

 

[Emma_P23]

Exactly my point lol just had to get it off my chest and well you know the saying "drunken minds leads to the truth" or whatever maybe thats the case when you're hypo lmao!! x

lol definitely. Never hide what you think. Low blood sugars certainly allow us to speak our minds

 

[donnellysdogs]

In some aspects I agree, but the basics do need to be grasped ie carb counting and the ability and wanting to take control and manage your own health. It is not just a nice new electronic gadget to have.

The NHS has not got enough staff to give endless assistance to people on pumps. People have to have the attitude that they can manage a pump themselves and to do it.

There was a poster on here a while back that was having the threat of there pump funding stopped and having to give the pump given back, I can't recall what the final outcome was though.

 

[Deleted member 83869]

In some aspects I agree, but the basics do need to be grasped ie carb counting and the ability and wanting to take control and manage your own health. It is not just a nice new electronic gadget to have.

The NHS has not got enough staff to give endless assistance to people on pumps. People have to have the attitude that they can manage a pump themselves and to do it.

There was a poster on here a while back that was having the threat of there pump funding stopped and having to give the pump given back, I can't recall what the final outcome was though.

No no I understand that I do but I guess there are two sides to it in a way!

And yeah my podiatrist said that they had taken a pump away from a girl who was self harming! I don't know the full story of it but yeah

 

[Kevin1987]

I have been considering trying to get a pump or at least try for the last year or so and on a recent appointment with my diabetic specialist nurse she said I would be a candidate but there are some things that I still worry about and I am still in two minds. When you got one did you have doubts or were you 100%? I'm not a new diabetic I have been one for the last 16 years from the ago of 11

 

[donnellysdogs]

I had barely any notice at all that I was having a pump over 4 years ago due to a driving incident. I would have had it immediately but nurse was on holiday for two weeks. I didn't even know what a pump was and had never seen or heard of one before getting told I could have one.

So uf I could manage the change over with barely any info (1 pump user here helped me), then honestly, put your fears aside..... They are briliant if you can give the extra time needed to manage it.

 

[Kevin1987]

The management side of it isn't the bit that scares me as I already spend a lot of time and effort trying already it's having the device physically on my all the time that I'm worried about. Things like when sleeping or getting intimate with someone etc. what pumps do people have?

 

[CarbsRok]

I have been considering trying to get a pump or at least try for the last year or so and on a recent appointment with my diabetic specialist nurse she said I would be a candidate but there are some things that I still worry about and I am still in two minds. When you got one did you have doubts or were you 100%? I'm not a new diabetic I have been one for the last 16 years from the ago of 11

Hi Kevin, if you didn't have doubts this wouldn't be normal It's called fear of the unknown.

The management side of it isn't the bit that scares me as I already spend a lot of time and effort trying already it's having the device physically on my all the time that I'm worried about. Things like when sleeping or getting intimate with someone etc. what pumps do people have?

The pumps most people use have tubing which comes in different lengths and even though this may seem strange after being on injections for about 44 years it took less than 4 hours to get used to the tube. In fact I kept checking to make sure it was still there

There is a pump section towards the bottom of the forum. No idea why it's down there instead of below the type 1 forum but have a look in there as plenty of advice and tips.