I do not want members to experience the sub-standard diagnosis that has happened to me both in the UK and here in Bali - hence my contribution. Some 10 years ago at the age of 66 I went to my clinic to have the reason for breathlessness after a period of exertion. The doctor could find nothing wrong with me and it was only after I insisted that I should not have to take a rest quite so often whilst doing manual work. Reluctantly, she took a blood sample and telephoned me the next day to say that I was a Diabetic. NOW THIS IS WHERE ONE SHOULD BE CAREFUL !! So, therefore, Diabetes was the cause of my breathing problems? (see later what I am going on about).
So, after all of the adjustments to my lifestyle - not many as I was not overweight, etc., - I went on my merry way. It was only after a minor accident here in Bali to my left leg (a car ran over my foot at traffic lights coming too close to me on my motorcycle) that swelling to my lower legs, feet and ankles (thought to have been caused by the trauma) refused to subside after a year or so that this was investigated and deemed to be the result of Stage 3 kidney disease - thought to have been caused by prolonged use of Quinine Sulphate for chronic leg cramps.
So for nearly three years I was waiting for the day that I required dialysis. However, I kept asking my specialist why was it that I was experiencing nightly irregular heart rhythms,difficulty breathing and chest cough upon waking. I was given the usual heart tests and readings which all showed ok including my BP which was always 120/80. As a last resort the doctor sent me for an ECHOCARDIOGRAM.
The results were very surprising showing that my left ventricle was enlarged and only working at 63.5% efficiency - after all this time (10 years) I had been suffering from CHF Congestive Heart Failure. So this is why I had breathing problems and could only just get to the top of a stationary elevator without passing out and THIS IS WHY I HAD SWOLLEN LEGS FEET AND ANKLES !! I said to the doctor, "What about my kidney disease?" He replied, "You have not got it" rather abruptly and obviously embarrassed.
The lesson I am trying to pass on is that - just because your BP is ok and the heart reading on that long strip of paper shows that you are still alive - it does not mean that there is not something wrong. If in doubt ask for an echocardiogram.