Newly diagnosed

Tukker75

Member
Messages
7
Type of diabetes
Type 2
Treatment type
Insulin
Hi there I'm newly diagnosed. My GAD65 came back >2000 and islet cells also slightly positive ( whatever that means) starting tonight on levemir in combination with metformin. I've got Graves' disease for over 10 years. Any advice is greatly advised. I also have a 7 year old son with type 1 diabetes

Cheers
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@Tukker75

Hello and welcome to the forum :) Members who have experience which can help you will be along soon. In the meantime, here is some general information which we give to newly diagnosed members. Ask as many questions as you like and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 130,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 

Daibell

Master
Messages
12,650
Type of diabetes
LADA
Treatment type
Insulin
Hi and welcome. As your son has Type 1 you wtll already be aware of the use of insulin and what matters toa diabetic. Do ask any specific question in this or the T1 forum. As you are no doubt aware LADA is essentially T1 but occuring later in life and there may still be some islet cells prodcing insulin. If you are not already on a low carb diet do move towards that. If you find that the Levemir doesn't provide enough blood sugar control then a rapid insulin can be added for use at mealtimes. I can't comment on the implications of the Graves disease.
 

Ian DP

Well-Known Member
Messages
712
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
Chips
Hi Tukker,
I assume your Dr said you are LADA or T1 in the honeymoon period.
I was diagnosed T2 in sept 2013 then LADA just over a year ago with GAD levels over 2,000.
Dr said I was LADA, but my hospital records don't mention LADA, just that I am T1 in the honeymoon period.
Having read lots of posts on this forum soon after diagnosis, I started to eat to my meter. I soon discovered that carbs raised my BG levels, and so gradually cut back on carbs, and then cut back even further. Just over 6 months ago I started to follow DR Bernstein's Diabetiss Solution (around £5.00 on kindle or iBooks) which limits carbs to 36g per day. His book is an interesting read.

My BG levels now are lower than they were over a year ago. I was lucky as I still have some insulin making beta cells remaining, sufficient to make enough insulin for my low carb diet and as such I am still not on insulin.

There is lots of info on this forum, look through previous posts, the more you read the higher your understanding becomes. Feel free to ask any more questions. There are a number of us LADAs here.
 

LucySW

Well-Known Member
Messages
1,945
Type of diabetes
LADA
Treatment type
Insulin
Hi Tukker,

Have a read of threads on this forum, and then ask away. Welcome and good luck.

Best, Lucy
 

LucySW

Well-Known Member
Messages
1,945
Type of diabetes
LADA
Treatment type
Insulin
Tukker,

How is it going? Sorry, when you posted had just written long, long posts to another LADA and somewhat written out. Much of our LADAS story is the same, though.

How are you getting along? Are you low carbing? What meds are you thinking of?

Lucy
 

Tukker75

Member
Messages
7
Type of diabetes
Type 2
Treatment type
Insulin
Thanks everyone,

I try to eat sensible but not let it control me completely I try and eat mostly meat and veg with some slow carbs for breakfast. I'm on levemir now for a few days combined with metformin
First couple of days were amazing, did not realise how poorly I've been and felt good for the first time in years. today everything is creeping up again to double figures 14 just now before my dinner. Consultant said start with levemir if the figures are double 2 hours after meals then start on novarapid. And by the looks of it that's where we are going

Thanks for all your advice

Cheers
 

Daibell

Master
Messages
12,650
Type of diabetes
LADA
Treatment type
Insulin
Thanks everyone,

I try to eat sensible but not let it control me completely I try and eat mostly meat and veg with some slow carbs for breakfast. I'm on levemir now for a few days combined with metformin
First couple of days were amazing, did not realise how poorly I've been and felt good for the first time in years. today everything is creeping up again to double figures 14 just now before my dinner. Consultant said start with levemir if the figures are double 2 hours after meals then start on novarapid. And by the looks of it that's where we are going

Thanks for all your advice

Cheers
I was started on Levemir and after 4 weeks my DN could see from my readings that she needed to add Novorapid and I've never looked back since.
 

LucySW

Well-Known Member
Messages
1,945
Type of diabetes
LADA
Treatment type
Insulin
I was started on Levemir and after 4 weeks my DN could see from my readings that she needed to add Novorapid and I've never looked back since.
Same story for me Tukker. I really needed Novorapid quite soon, only I struggled on with only basal for months. Silly! Once I started with Novorapid, life was so much better.

Insulin plus Metformin is really good, because the Met. keeps your insulin resistance down so insulin doses can stay low, which is better for you. It's the dream combination I think, congratulations.

Now you need to work out how much Novo to take, and experiment. Did they tell you about this? You probably start at a calculation of 1u Novo to 10g carb and see how that goes. For a low carb meal its a bit more complex as you have to estimate something to cover half the protein too. Size matters too. A huge meal of anything would require more insulin whatever itv was. For me, 2u Novo seems to work well for all but disgustingly huge meals.

The other important thing is if poss to take the novo 15-20 (best for me is 30) mins before you eat, if you can. No worries if you can't, but the novo irons out the spike if you can do that. This I know because I sometimes use the Libre, which gives you figures every 15 mins which you can match up with your notes later. Fantastic tool.

For all this - of course, I'm no doctor! Just a LADA who has worked out what works for her. Trial and experiment is THE ANSWER. Choose an app you like - I currently favour DiaConnect - record everything, food as well, and away you go to success.

http://www.diabetesconnect.de/en/

Good hunting! Lucy
 

LucySW

Well-Known Member
Messages
1,945
Type of diabetes
LADA
Treatment type
Insulin
Thanks Lucy that is very helpful information!!
Good! Forgot to say, I low carb ( I do 30g carb a day but 50g also can work well). I really, really recommend low carbing. It makes BG so much easier to control, and safely with much less hypo risk.

For carb counting I love Carbs & Cals app: http://www.carbsandcals.com/

You can personalise it too by adding whatever you like under the 'My Foods' section. Also for recipes, Cook & Count is brilliant. Though it seems to crash a lot, so I save all the time.