Fibromyalgia

Pinky36

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Insulin
Hi new to this site but been a type 1 diabetic for 27 years. Had no complications only been the last couple of years that control had gone off a bit , due to various reasons . But Ive always got control back !
I am a full time cater for my 11 year old daughter . She has a rare chromosome disorder , hearing and vision loss, kidney disease, adhd, behavioural problems. Am also a wife and mother to a 7 year .

So life can be quite stressful in our house. I've had periods of depression , anxiety and panic attacks . So hence the control can fluctuate due to certain conditions.

Anyway had a fall in September off a trampoline on to concrete. Nothing broken but badly bruised . Diabetes went out the window ... Not hungry , missing injections the effects of the pain .

Well I needed to sort myself out ... But my diabetes was be very unruly . Then I started getting tingling and numbness in my bum and thigh , I just put down to the fall. Started getting back and stomach ache. Got taken into hospital with what they thought was gallstones. Still trying to tell them about the numbness. Everything was fine and nothing showed up on scan .

I was still feeling pretty **** then just before Xmas I get rushed in with stomach pains again only to have a cyst removed off ovary.

Well since then I've been in constant pain , tingling , spasms , twitching legs. First thought diabetic neurophany due to 6 months of being uncontrolled .

Anyways they think is fibromyalgia . Waiting to see specialist . Apparently it can be brought on by stress, a operation , traumatic experience and trauma .
I worried how it's going to affect my diabetes , due to not sleeping and the pain meds my morning bloods are 13 to 19 I have no appetite . Am in constant pain , husband is having to do the caring role now.
Am trying to stay positive till I've seen specialist and my diabetic consultant . Has anyone else got fibromyalgia ?
 

donnellysdogs

Master
Messages
13,233
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
People that can't listen to other people's opinions.
People that can't say sorry.
Have you had an mri scan done?

Timgling and numbness in the areas you describe does not initially have fibro speinging to mind. There are 18 points on body which will be specific to fibro.

Are you on statins at all?
 

Pipp

Moderator
Staff Member
Messages
10,622
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi @Pinky36
Welcome to forum.
@daisy1 and @sanguine usually post info for new members.

Sorry you are having a tough time. Hope you get some solutions and feel better soon.
 
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Pinky36

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Insulin
I've had MRI , x-Ray , nerve conduction test , the normal blood tests which all came back normal. Thought I may of had nerve damage from surgery . The nerve conduction test would of showed up any diabetic neuropathy but was normal , i was on statins about 3 months but I stopped at my cholesterol had improved . I take vitamin B12 , omega 3 9 6, vitamin d c e , lipoic acid and q-10 . The only other meds I take are for a under active thyroid . The gp has put me on pregablin for the nerve pain and slow release tramadol . I have been reading up on fibro and am somewhat confussed . I've got so many of the symptoms. Hopefully the rheumatologist may give me some answers. Plus a visit to the diabetic consultant.
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@Pinky36

Hello and welcome to the forum :)

Although you are not newly diagnosed, here is the information we give to new members of the forum. Ask all the questions you need to and someone will answer.



BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 130,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.