Very Frightened.

[Mike d]

Neil, nobody I have been in contact with regarding my diagnosis has suggested testing at that level.

You asked me what I want to do..... I want it to stop

You don't have that choice. Most of us don't. Neil's advice is dead accurate. Sorry, but that is the truth. You must test to determine what does and does not work for you. Please relax, take in the advice and tread your own path. It WILL get better as we all went thru this.

Stressing yourself out will not help. What will is everyone here that will pull you up and advise you

Mike Wishing you well

 

[daddys1]

Neil, nobody I have been in contact with regarding my diagnosis has suggested testing at that level.

You asked me what I want to do..... I want it to stop

Good Morning, very pleased you got back in touch, if you would prefer to PM I'm happy to do that.

It will stop, once we get you testing your food and eating the right things the numbers will come down and the future will reappear.

If you have a look round the forum, maybe have a look @Bluetit1802 posts, you will see that all the help she gives and others are always recommending, 'Initially' that sort of level of testing, until you know what food you can eat comfortably. I'm hardly testing at all, now mainly out of curiosity & just to keep tabs, some days 2/3 only.

Starting in the morning with a 'Fasting Test' taken soon after you have got up, because your liver starts to release 'Glycogen' to get you started. I tend to get my breakfast ready then do the test saves testing twice. Warning this is often the highest of the day.
Then 1hr test
Then 2hr test and the difference should not be more than 2mmol/l if it is, we remove the offending carb or reduce the portion.
That's 3 tests so far times 3 meals is 9 tests.

Oh forgot & one bedtime test......

The thing is you have done so well so far losing weight getting the HbA1c down this is without medication, (I'm on medication which I detest), so you know you can do it.

If we can Identify the foods which are not helping you and replace them with things that will and your numbers drop then the fear of the future will start to pass.

You have heard a few on here say this has been a turning point in their lives, where they now feel better than they have ever done before, I feel the same now, don't want the diabetes but if I hadn't got it I would not be as healthy as I am now.

Some sort of good news for you, your last HbA1Cc of 48 is an average of 7.7mmol/L. So your within a good range and dropping.

Have you seen the info re; the Reversal or Remission of diabetes by losing weight, getting to your 'personal fat threshold'.

Neil

 

[Bluetit1802]

Hi,

You say you want this to stop ..... well, only you can put the brakes on and stop it. I know this sounds harsh, but it is the truth.

I can only say how I have stopped mine - not completely, but I'm getting there. I started to keep a food diary of everything I ate and drank including portion sizes. I counted the grams of carbs I ate/drank at each meal (and snacks, although I don't feel the need to snack so I don't) I tested every meal to begin with as has been mentioned above. Before, after 1 hour and again after 2 hours, plus morning fasting and bedtimes. I recorded these readings next to the food I'd eaten. Doing this told me many things. It told me there are some foods I cannot tolerate at all such as baked beans. It also told me foods I can tolerate in smaller quantities, such as one slice of heavily seeded bread, but no way can I tolerate 2 slices at one sitting. I learned and acted on what I'd learnt.

I still keep a food diary and count my carbs now but have no need to test unless I eat a new food, or experiment with something like a piece of cake etc. I always test every fasting (first thing in the morning), before my evening meal, and at bedtime. I still test at other times to keep an eye on my average levels, but that is just me.

Once you get in a routine it becomes second nature, and personally I find testing is motivating - I compete against myself, not other people. It's a good feeling when you see your levels coming down, which they will if you follow the low carb/higher fat way of life, with a little added exercise.

 

[plonkish_]

your body is running on 40-60% fat now
www.youtube.com/watch?v=n8BY4fyLvZc

View attachment 12761

I just watched all of that video. Fascinating!

 

[ProjectMorris]

Examples of conflicting advice.

DR Nurse and Desmond clinic never mentioned testing at the levels recommended here.

Diabetes UK (a competitor? ) says keep fat to a minimum.

.Co. UK promotes books which say "read me and I'll reverse your diabetes"

UK mans a help line.

Are there different motivators?

Chromium has been delisted as an essential element for the body and in high quantities is toxic resulting in liver failure.

Cinnamon is just a spice with no medicinal qualities and in high concentrations causes liver and kidney damage.

#blackdog

 

[JTL]

Examples of conflicting advice.

DR Nurse and Desmond clinic never mentioned testing at the levels recommended here.

Diabetes UK (a competitor? ) says keep fat to a minimum.

.Co. UK promotes books which say "read me and I'll reverse your diabetes"

UK mans a help line.

Are there different motivators?

Chromium has been delisted as an essential element for the body and in high quantities is toxic resulting in liver failure.

Cinnamon is just a spice with no medicinal qualities and in high concentrations causes liver and kidney damage.

#blackdog

You pays your money and you takes your chances as they say.
You have to try something out of all this conflicting psychobabble.
You'll find something that works for you.
It may take a little time.

 

[Daibell]

The DUK advice to keep fat to a minimum is based on dated dietary advice and I think you will find is not based on valid scientific research data. Just focus on the carbs as these are converted to glucose. Don't be distracted by things that are side issues and not based on good science. Be prepared to challenge anything and demand valid research data.

 

[Bluetit1802]

I won't comment on the other stuff. Suffice it to say, only the NHS people tell us not to test. Why do you think that is? Because they can no longer afford to provide meters and strips on prescription for non-insulin users. If they told us to test, they would have to provide these tools. There are plenty of threads on this forum about this if you do some searches. Our meters are our most essential pieces of equipment. It is up to you whether you buy one or not, but if you don't, how will you know what you can and can't eat? We can't tell you because we all have different tolerances to different carbs, different degrees of pancreas damage, different medications etc etc. Only your meter can tell you.

 

[daddys1]

Examples of conflicting advice.

DR Nurse and Desmond clinic never mentioned testing at the levels recommended here.

Diabetes UK (a competitor? ) says keep fat to a minimum.

.Co. UK promotes books which say "read me and I'll reverse your diabetes"

UK mans a help line.

Are there different motivators?

Chromium has been delisted as an essential element for the body and in high quantities is toxic resulting in liver failure.

Cinnamon is just a spice with no medicinal qualities and in high concentrations causes liver and kidney damage.

#blackdog

Hi Do you want convincing are are you confused?

1. DR Nurse I had the guts (after research) to tell them they were talking C..P, when they told a person on the DESMOND course who was HbA1c of 157 told him he could happily have his baked beans but drain the sauce they said, I told them that was Criminal to give that person that advice. (also his Porridge). I showed them the EAT FAT Book by Tracey Deakin (privately), and Low & Behold they admitted it will all change but we have to follow what we are told. I also told them it was disgusting to be telling people that the NHS were happy for them to stay between an HbA1c of 53 and 43 which is between pre diabetic and diabetic and that they would only get worse which is wholly not true.

2. Diabetes UK are a charity & partly government funded therefore they have to follow the Eat Well Plate, but the eat well plate is for everybody not just diabetics. Diabetics need a different plate some need Low Carbs High Fat.

3. Dr Taylor has experimented back in 2011 and has proved that a reduction in weight can (not in all) reverse or put Diabetes into remission. We have people on this forum that have reversed diabetes, you don't believe that though, do you?

4. The only motivation I got, and I'm taking this a bit personal, because I've offered to help you through PM, never done that before. I'm a volunteer who wants to help and share my experience with others.

5. Chromium, I haven't mentioned chromium, all trace elements that are essential to life are poisonous when in excess including vitamins, what tosh.

6. Cinnamon, Have I mentioned Cinnamon, I have used it, I like it, but it's not a fix all and again everything in excess is toxic.

I have answered all your questions, what are you going to do now?, leave the 'Blackdog' behind?, and you get on this train and improve your situation from the help of all these people.

I'm still open to Personal Messaging.

Neil

 

[ProjectMorris]

So its a conspiracy. ...really?

 

[ProjectMorris]

How do I PM

 

[Daks]

Quite simple, the proofs in the pudding, see which way controls your blood best, then decide which path to take.

Most people here post control results as part of there signature, take a look.

 

[daddys1]

How do I PM

You already have a conversation from me , go to the top right of this page, the envelope and reply

 

[AndBreathe]

How do I PM

Click on the envelope sign at the top, right of the page. On the page that then draws, click on the green Start New Conversation, then put daddys1'name in the participants list. Give your conversation a title, then type what you want to say in the big box.

Voila!

Stick with this thing, and take whatever help,you,can. Diabetes isn't a solo sport.

 

[jack412]

Examples of conflicting advice.

DR Nurse and Desmond clinic never mentioned testing at the levels recommended here. ..they don't provide strips, too dear

Diabetes UK (a competitor? ) says keep fat to a minimum. you eat enough fats to replace the energy

.Co. UK promotes books which say "read me and I'll reverse your diabetes" who's book? and T2 can be reversed/diet controled in some cases, there are current example posting here

UK mans a help line. yes, DUK is a charity, this is a money maker

Are there different motivators ..I don't understand

Chromium has been delisted as an essential element for the body and in high quantities is toxic resulting in liver failure. ....I agree

Cinnamon is just a spice with no medicinal qualities and in high concentrations causes liver and kidney damage. ,,I agree

#blackdog

American diabetic association
Position Statement
http://www.professional.diabetes.org/admin/UserFiles/0 - Sean/dc132042 FINAL.pdf

Evidence is inconclusive for an ideal amount of total fat intake for people with diabetes;
therefore, goals should be individualized; fat quality appears to be far more important than quantity.

In people with type 2 diabetes, a Mediterranean-style, MUFA-rich [mono fat-rich] eating pattern may benefit glycemic control and CVD risk factors and can therefore be recommended as an effective alternative to a lower-fat, higher-carbohydrate eating pattern.


http://www.nutritionjrnl.com/article/S0899-9007(14)00332-3/abstract

 

[Alisonjane10]

Neil, nobody I have been in contact with regarding my diagnosis has suggested testing at that level.

You asked me what I want to do..... I want it to stop

Awww hun...many of us have been there., including me! It can be a bummer having this disease, but whether you want It, or not, it's a part of your life now. Believe me, you WILL get to accept it. You've been given excellent advice from several members on here. Grab that lifeline & let people assist you to get through this black time. But right now, you need help with what I suspect could be clinical depression. I'm an RMN, & do know what I'm talking about. May I suggest you visit your GP as soon as possible for support & an opportunity to discuss how you are feeling. Don't suffer in silence any longer. The first step to acceptance & recovery is often the hardest. My very best wishes to you.

Ali. X

 

[ProjectMorris]

CVD Anyone?

 

[noblehead]

CVD Anyone?

Cardiovascular disease?

 

[noblehead]

@ProjectMorris, here's is a list of abbreviations that some members put together several years ago on the forum, its not a comprehensive list by any means but a good one just the same:

• Amylin (Islet Amyloid Polypeptide) - Slows the rate at which digested carbohydrate appears as glucose in the blood and thus reduces total insulin demand

• Basal - referred to as the slow acting insulin used to cover your bodies own glucose stores

• Beta cells - Pancreatic cells responsible for the production of insulin, amylin and C-peptide

• BG - blood glucose (this is the measurement of glucose circulating in the blood)

• Biphasic insulin - An insulin mixture containing both fast acting and slow acting insulin, usually injected twice daily

• Bolus - referred to as the fast acting insulin used to cover food, typically carbohydrates, some cover for protein as well.

• BP - Blood Pressure

• Brittle diabetes (labile diabetes) - Most often seen in type 1

• BS - blood sugar (as above)

• CHO - Carbohydrate (Carbon Hydrogen Oxygen)

• C-peptide - A by-product of normal insulin production

• CTS - Carpal Tunnel Syndrome

• CVD - Cardiovascular Disease

• Double diabetes - Comprises symptoms of both type 1 and type 2 diabetes

• DSN - Diabetic Specialist Nurse

• ED- Erectile Disorder

• FS - Frozen Shoulder

• Fulminant type 1 - An idiopathic subtype which has a very rapid onset and no honeymoon period

• G.I - Glycemic index. A G.I value tells you how rapidly a particular carbohydrate is turned

• G.L - Glycemic load. A G.L value takes into account not only G.I, but also the total quantity

• GAD (Glutamic Acid Decarboxylase) - Antibodies test

• GDM - Gestational Diabetes Mellitus

• Glucagon - A hormone produced in the alpha cells of the pancreas

• Glycogen - The storage form of glucose in animals and humans

• Glycogenesis - Glucose storage, mainly in the liver and muscles

• Glycogenolysis - The breaking down of glycogen stores in liver and muscle tissue

• GNG (Gluconeogenesis) - The generation of glucose from non-carbohydrate carbon substrates

• HBA1C - HbA1c is the scientific shorthand for Glycosylated Haemoglobin

• HCP/HP - Health care professional

• HDL - High Density Lipoprotein (the "good" cholesterol)

• Honeymoon period - The period of time after a diagnosis of type 1 diabetes when there is better than expected blood glucose control

• Hypo - hypoglycaemia (this means blood sugar level is too low)

• Insulin - A hormone which causes most of the body's cells to take up glucose from the blood

• Insulin analogues - Genetically altered versions of insulin

• Insulin antibodies - An immune response to exogenous(injected) insulin

• Insulin resistance - Normal amounts of insulin are inadequate to produce a normal insulin level.

• Ketoacidosis - A severe accumulation of keto acids in the blood, resulting in acidosis

• Ketones - Ketone bodies are acids left over as a byproduct of ketosis

• Ketosis - A process in which your body converts fats into energy

• Lantus - Long-acting insulin analogue used as a basal(background) insulin. Normally injected

• LDL - Low Density Lipoprotein (the "bad" cholesterol)

• Levemir - Long-acting insulin analogue used as a basal(background) insulin.

• LHB (Local Health Board) Welsh equivalent of a PCT (Primary Care Trust)

• Liver dump - The common term given to glucose production from the liver

• Low-carb diet - A proportional reduction of dietary carbohydrate

• MDI - Multiple Daily Injections - an insulin regimen adopted by the majority of type 1 diabetics

• MODY - Maturity Onset Diabetes of the Young refers to a number of dominantly inherited, monogenic defects of insulin secretion. There are currently eight different varieties of MODY

• Nephropathy - Damage to or disease of the kidneys

• NICE - National Institute for Clinical Health and Excellence

• NSF - National Strategic Framework

• PCT - Primary Care Trust

• Peripheral neuropathy - Damage to the nerves of the peripheral nervous system

• PP - post prandial (this means a period of time after eating, usually recorded as 2 hours but often 1)

• Pump - Insulin Pump, used as an alternative insulin delivery method to MDI. The pump is connected to you 24/7 and pumps tiny doses of insulin thorought the day, with the ability to give extra doses at meals times and with snacks.

• Retinopathy - Non-inflammatory damage to the retina of the eye

• SHA - Strategic Health Authority

• Somogyi effect (rebound hyperglycemia) - A high blood sugar (hyperglycemia)

• TG or Trigs Triglycerides - the main component part of VLDL and a significant cause of strokes and heart attacks

• Type 1 (autoimmune) - The most common form of type 1 diabetes

• Type 1 (idiopathic) - All forms of type 1 which occur without a known cause

• Type 1 (surgical) - Diabetes caused by partial or complete removal of the pancreas

• Type 1.5 - Latent Autoimmune Diabetes in Adults (LADA), also known as slow onset type 1

• Type 2 - Diabetes mellitus type 2 is most often attributed to insulin resistance and relative

• VLDL - Very Low Density Lipoprotein (the "very bad" cholesterol)

• Young-onset type 2 - Anyone diagnosed with type 2 under the age of 45 is considered young

 

[ProjectMorris]

Makes for jolly reading