Newbie - Type 1.

RoyBoy1!

Newbie
Messages
3
Type of diabetes
Type 1
Treatment type
Insulin
Hi,
I'm newly diagnosed with Secondary Type 1 diabetes.
Why secondary ? Following Whipple's surgery for pancreatic cancer in April 2014 my pancreas was working fine and then I underwent 6 months of chemo and it appears to have dozed off !
Not sure if it will ever awake ? My blood monitor tests were 29 to start with ?
Anyway getting to grips with injections twice daily with 25% fast and the rest slow acting.
I have to eat little and often as only have half a stomach left following surgery. Diabetic consultant said eat and drink what I like ?
I have a question ?
I have recently had blood tests and my HBA1c is 55mmol. It says recommend 48 as the diagnostic cut-off for Type 2 ?
I also have high Liver Function Tests:
alkaline phosphatase level 189 (should be 30-130)
alanine aminotransferase level 156 (should be 7.0-40)

All suggestions welcome ?
Roy
 
C

catherinecherub

Guest
Hi @RoyBoy1! and welcome to the forum.

You have had a tough time and I hope you are feeling better.

The tests you refer you can be explained by these two links.

http://labtestsonline.org.uk/understanding/analytes/phosphorus/tab/test/
http://labtestsonline.org.uk/understanding/analytes/alt/tab/test/

The links also explain the possible reasons for the tests being higher than normal.

When is your next appointment with your G.P. to discuss the tests?

There is some basic information that @daisy1 gives to newcomers that you may find useful and so I have tagged her.
 
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Mrsass

Well-Known Member
Messages
1,188
Type of diabetes
Type 1
Treatment type
Pump
Hi Roy, welcome along.

Diabetic consultant saying eat & drink what you like needs to maybe read up on diabetes!

How long have you been diagnosed? Are you testing bg at home?

Food wise most of us tend to cut down on carbs as they are what spike you after a meal, best way to find out what ways different foods affect you is test bg before eating & 2 hours after.

I'll tag @daisy1 who will give you some info to help you too

Abbie
 
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RoyBoy1!

Newbie
Messages
3
Type of diabetes
Type 1
Treatment type
Insulin
Hi,
I'm newly diagnosed with Secondary Type 1 diabetes.
Why secondary ? Following Whipple's surgery for pancreatic cancer in April 2014 my pancreas was working fine and then I underwent 6 months of chemo and it appears to have dozed off !
Not sure if it will ever awake ? My blood monitor tests were 29 to start with ?
Anyway getting to grips with injections twice daily with 25% fast and the rest slow acting.
I have to eat little and often as only have half a stomach left following surgery. Diabetic consultant said eat and drink what I like ?
I have a question ?
I have recently had blood tests and my HBA1c is 55mmol. It says recommend 48 as the diagnostic cut-off for Type 2 ?
I also have high Liver Function Tests:
alkaline phosphatase level 189 (should be 30-130)
alanine aminotransferase level 156 (should be 7.0-40)

All suggestions welcome ?
Roy
 

RoyBoy1!

Newbie
Messages
3
Type of diabetes
Type 1
Treatment type
Insulin
Hi @RoyBoy1! and welcome to the forum.

You have had a tough time and I hope you are feeling better.

The tests you refer you can be explained by these two links.

http://labtestsonline.org.uk/understanding/analytes/phosphorus/tab/test/
http://labtestsonline.org.uk/understanding/analytes/alt/tab/test/

The links also explain the possible reasons for the tests being higher than normal.

When is your next appointment with your G.P. to discuss the tests?

There is some basic information that @daisy1 gives to newcomers that you may find useful and so I have tagged her.

Hi Catherine,
Thanks for the info and support.
I'm doing fine and if you saw me now you would never know I've been a bit poorly over the last year or so.
I'm under a consultant at the Royal Free, London, for my cancer and have a diabetes consultant for my diabetes. I tend not to see much of my G.P.
I have scanned my blood results and sent them to my cancer consultant.
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@RoyBoy1!

Hello Roy and welcome to the forum :)

As mentioned above, here is the information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
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Daibell

Master
Messages
12,650
Type of diabetes
LADA
Treatment type
Insulin
Hi and welcome. The blood sugar diagnosis limits are the same for T1 or T2. As another poster has mentioned you can't eat or drink anything you like when diabetic even when on insulin. If a T2 you will end up with excessively high blood sugar and when on insulin you can easily put on weight. Keep the carbs down and have enough protein, fats and veg to keep you happy.
 
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