newbie with hope. Type2.

annalou1971

Newbie
Messages
4
Type of diabetes
Treatment type
Insulin
Hi all, i am new here and would like to share my story.
I have been type 2 since 2008. i was initialy given metformin but could not take it as i spent more time on the loo than i did doing anything else.
i was put on gliclazide which increased to 2 tablets at breakfast and one at dinner.
the doctor then put me on victoza though that week there was a news article on it causing pancreatic cancer so i went back to the doctor and told her i was concerned as my gran died from that so my doctor took me off it right away.
i was then put on lantus slow release insulin at bed time and around 18 months ago was also put on forxiga which had a big impact on my sugars.

so in a nut shell i was on 30 ml lantus before bed, forxiga before bed and gliclazide at breakfast and lunch.
for the last couple of years i have had chronic pain in mu muscles which i have had extensive tests for. some days were so hard, the pain seemed to be taking over my life.

then a friend suggested that i get my hair analized to see what foods i should avoid. so i made an appointment with a nutritionalist.
when the results came back i was a but dubious. i was told to stop eating wheat, stop drinking milk, and stop drinking caffine. apparently caffine makes you prodice more insulin and contributes to your body storing fat.

so i decided to give this a go and 2 weeks on i am more or less pain free for the first time in years. for the last week i have been sleeping well and not waking up several times a night to use the loo.

after 4 days i stopped the forxiga tablets as i was getting too many low sugar readings. on day six i reduced the insulin doen to 20 ml
on day 8 i reduced the gliclazide down to 2 tablets instead of 3.

on day 10 i cut the insuling down to 15 ml. i stood on the scales and i was 10 lb lighter.
i made apt with my dr who went totaly crazy at me and told me that she did not recomend what i was doing. she said cutting out food groups like wheat was not good for people with medical conditions. i tried reasoning with her that if i continued to take all that medication i would be in big trouble as my sugars were consistently between 4 and 8 but on occasion still going as low as 3.1. I showed her my log and she told me she was booking me back in with the hospital for a review.
she repeated over and over that she did not recoment it. so i asked her how she could justify sayign that when for the last 18 months she had been running tests tind out why my pain was so bad and still had no answers for me and yet in less than 2 weeks on this new diet i was mostly pain free, my sugar levels were stable and i had lost 10lb.
she could not answer me at all and i left her office feeling like a naughty school kid that was doing somethign that she should not be doing.
i am now on day 14, i reduced my insulin again last night to 10ml. and i forgo to take the gliclazide at breakfast. i took one gliclazide with lunch and at 15:00 my sugar dropped to 3.1 again.
i have found that there is very little support frm my doctor. i dont know if i should continue to reduce my medication or not. i work full time so i need to be careful as i spend a lot of time driving. i cant afford to get low sugar levels like this.

the diet i am following now is the harcomb diet, you can find it on facebook and youtube. . it might not work for everyne but it is working for me and its worth a try.
for years i just didnt understand diabetes. and in the early days i probably did not take it seriously enough.

i can hardly believe the change in me in just 2 weeks. this evening i ran up the stairs something i havent been able to do in a long long time due to the muscle pain i have been in.

so often you hear that its impossibe to reverse diabetes. and so often you sit and look at the sugar monitor in despare because the readings are so high.
what i will say is the advice seems to be to eat several small meals through the day. i tried sticking to this as the dietician advised but in the last 2 weeks i have been having 3 good meals a day instead. which actually makes a lot more sense as your insulin will spike 3 times a day instead of 6. its a win win.

i am hoping to stop the insulin altogether soon. who knows what the next 2 weeks will bring.

anyway thanks for reading, i hope it gives someone somewhere hope that they can manage their diabetes better. if you know where to go and what to do.

annalou xx
 

mehhh2015

Well-Known Member
Messages
441
Type of diabetes
Type 2
Treatment type
Diet only
Good luck with everything annalou and welcome to the forum, this is a great place to share experiences, ask questions and find suggestions to help us deal with diabetes. I'm glad to hear you are improving your numbers and that you are feeling better. Hopefully your doctor and or diabetic nurse will give you the support you need after all the improvements. Keep posting and all the best :)
 

DeejayR

Well-Known Member
Messages
2,381
Type of diabetes
Treatment type
Diet only
Hello Annalou and welcome. Your story sums up what many people here have experienced. You are really groping in the dark for a solution and resisting your GP's advice, which you feel is wrong. Many of us would agree.
I would cautiously suggest for a start that you go with what your body is telling you and do what makes you feel well. (That's what I do, rightly or wrongly.) Meantime have a browse of the forum and keep an open mind to new ideas. I'll ask @daisy1 to give you her excellent guide to managing your diabetes.
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@annalou1971

Hello Annalou and welcome to the forum :) Here is the information which DeejayR referred to above and I hope you will find it useful and other people reading this thread. Ask any questions you may have and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 

sanguine

Well-Known Member
Messages
3,340
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
Intolerance, career politicians, reality TV and so-called celebrity culture, mobile phones in the quiet carriage.
Hi Annalou, welcome and well done for sticking to your guns :)
 

Tim55

Well-Known Member
Messages
1,052
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Rap and hip - hop
Hi Annalou

Pleased to see you have found a way forward and I echo the thoughts above.

Official advice seems to be "type 2. You've probably done this to yourself and you're stuck with it. Now do as we tell you and it will only get worse slowly."

Well screw that I say and I like to think there is hope and management is a lot less difficult than "they" seem to think.

Best of luck with the alternative approaches and let us know how it goes.