Reactive Hypoglycaemia

Lamont D

Oracle
Messages
15,793
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
All carbs? Even green vegetables? Or just grains and potatoes?
It all depends on the amount I have, some green salad veg are very low carb.
Don't do cooked greens (yuk!)
Grains and spuds, are like eating pure glucose, my bloods don't spike, they rocket! (Another leafy salad!)
Yes most carbs are dangerous for me!
 

Jey

Well-Known Member
Messages
66
Type of diabetes
Other
Treatment type
Diet only
Hi Thanks BRUNNERIA yes my Fingers swell up too. I changed cushion don't us creams. So I have to try with food! My GP already thinks I'm nuts! :confused:. It will be difficult, especially with low blood sugar! One night I had 2.9 didn't eat for a hour and hoped my liver would relies glucose! After the hour I went down to 2.7. So I did eat after that. My low blood sugar now is different to last years! Sounds weird like my self :woot:. Nice weekend to everyone
 
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Lamont D

Oracle
Messages
15,793
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Hi Thanks BRUNNERIA yes my Fingers swell up too. I changed cushion don't us creams. So I have to try with food! My GP already thinks I'm nuts! :confused:. It will be difficult, especially with low blood sugar! One night I had 2.9 didn't eat for a hour and hoped my liver would relies glucose! After the hour I went down to 2.7. So I did eat after that. My low blood sugar now is different to last years! Sounds weird like my self :woot:. Nice weekend to everyone

Yes, we are weird, nuts and strange!:confused::watching::pompous:!

But we are unique!;)

Nice weekend to you @Jey
 
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ButtterflyLady

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Messages
3,291
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Acceptance of health treatment claims that are not adequately supported by evidence. I dislike it when people sell ineffective and even harmful alternative health products to exploit the desperation of people with chronic illness.
I haven't looked, but do you know whether there's NICE guidelines for this condition?

I wanted to learn more about RH, so I googled it and found a website about it (what are your thoughts, nosher, does it seem legit?)
http://www.reactivehypoglycemia.info

And the site suggested the following guidelines, which are mostly about diagnosis rather than management, but look like they would be very helpful for people pre-diagnosis who have a doctor who has never heard of RH:
https://www.endocrine.org/~/media/e...uidelines/FINAL-Standalone-Hypo-Guideline.pdf
 
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Lamont D

Oracle
Messages
15,793
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
I wanted to learn more about RH, so I googled it and found a website about it (what are your thoughts, nosher, does it seem legit?)
http://www.reactivehypoglycemia.info

And the site suggested the following guidelines, which are mostly about diagnosis rather than management, but look like they would be very helpful for people pre-diagnosis who have a doctor who has never heard of RH:
https://www.endocrine.org/~/media/endosociety/Files/Publications/Clinical Practice Guidelines/FINAL-Standalone-Hypo-Guideline.pdf

Hi @CatLadyNZ

Thanks for that!
I have read the top link before and though it is informative and gives some really good advice, it is dated, as post prandial RH, is now called Reactive Hypoglycaemia.
Post prandial and idiopathic are last centuries description as modern discoveries of different types of hypoglycaemia is found!
I will peruse at length the bottom link, as it is a weighty tome.
I like to read these things they not only you educate yourself about your type but others as well!
One thing I have learned lately is prediabetic RH is a vast minefield of differing symptoms and treatment they receive.
I am always interested the number of people who have been told that eating carbs is fine!
The totality of resistance to my lifestyle is really amazing.
It's like King Canute and the tide of the waves against you!
 
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Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
I wanted to learn more about RH, so I googled it and found a website about it (what are your thoughts, nosher, does it seem legit?)
http://www.reactivehypoglycemia.info

And the site suggested the following guidelines, which are mostly about diagnosis rather than management, but look like they would be very helpful for people pre-diagnosis who have a doctor who has never heard of RH:
https://www.endocrine.org/~/media/endosociety/Files/Publications/Clinical Practice Guidelines/FINAL-Standalone-Hypo-Guideline.pdf

Hi,

The first link reads (to me) like someone listing foods that they can eat. No problem with that, but half their dietary recommendations would not work for me (for example, rye bread and carrots are disastrous for me).

So really, it goes back to 'find out what works for YOU using your bg meter, then stick to it' and don't EVER assume that the dietary advice you are told will work for you. The only general advice that i believe works for all RHers is simple - avoid carbs and fill up on fat and protein - if the rh can be controlled by diet. Some of us need medication AND diet.

The second link is fascinating, but a slow read. Thank you for posting it. Am taking it in digestible chunks ;)
 
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freshlybrewed

Well-Known Member
Messages
74
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
sensory overloading
@nosher8355 You mention biscuits - I like to carry a Granola bar with me when I'm out, it's my security blanket :dummy: The toasted (cooked) oats that go into it work best for me, and they're held together with a shot of Maple Syrup. So there's a dual action process that's a good patch for an hour until I can get proper food. If I don't have any of those then an Apple is good for half an hour. These are only quick fix measures, like you say to avoid creating spikes again. I tried glucose tablets once and they didn't have the staying power and only rebounded me.

@CatLadyNZ thanks for the links. The PDF seems long but half of it is credits and references, so its not too bad.

Does anyone have problems with being hungry? During the day it's fine I can shovel the food in and keep on track with daily calorie goals. But I wake up in the early hours of the morning, sometimes stomach grinding away, can't get back to sleep until I've had something to eat. I've recently modified my diet to be less carbs than before. I used to have a small bowl of cereal an hour before bedtime, and if I did wake up early in the morning hungry I'd have a small top up. But I've now cut out grains whilst I try and loose weight and the early morning wake-up call is back.
 
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Lamont D

Oracle
Messages
15,793
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
@nosher8355 You mention biscuits - I like to carry a Granola bar with me when I'm out, it's my security blanket :dummy: The toasted (cooked) oats that go into it work best for me, and they're held together with a shot of Maple Syrup. So there's a dual action process that's a good patch for an hour until I can get proper food. If I don't have any of those then an Apple is good for half an hour. These are only quick fix measures, like you say to avoid creating spikes again. I tried glucose tablets once and they didn't have the staying power and only rebounded me.

@CatLadyNZ thanks for the links. The PDF seems long but half of it is credits and references, so its not too bad.

Does anyone have problems with being hungry? During the day it's fine I can shovel the food in and keep on track with daily calorie goals. But I wake up in the early hours of the morning, sometimes stomach grinding away, can't get back to sleep until I've had something to eat. I've recently modified my diet to be less carbs than before. I used to have a small bowl of cereal an hour before bedtime, and if I did wake up early in the morning hungry I'd have a small top up. But I've now cut out grains whilst I try and loose weight and the early morning wake-up call is back.

I think that the amount of carbs in the bar, the oats and maple syrup would really spike me very quickly. Apple is not bad but only half of a small one.
The idea is to raise your blood glucose very slowly, then have a low carb small meal as soon as you have risen to normal levels.
I'm glad you have got rid of the grains but it's not about the calories, I often exceed calorie limits, but I'm still losing weight. Calories are not important!!!
Hunger is a side effect of gradually getting rid of the carbs. It is sometimes called carb flu.
As soon as your body gets used to having less carbs and eating more protein and full fat, the hunger pangs will go. It's similar to going cold turkey!
It's hard to get your head around the idea of very low carbing, but stopping the rise in blood glucose levels is so important. The benefits is losing weight, feeling better and the energy you get from it!
Control is the key!

Keep asking, we will help you get there.
 
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Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
I can't sleep if i am hungry, but the worst thing i can do is eat carbs before bed. I would almost certainly wake with a hypo in the middle of the night, ravenously hungry, fall face first into the fridge and start the cycle off again.

Nosher eats many small meals. I do better with 2 or 3 meals a day. I probably only have a snack a couple of days a week.

I usually try and eat enough at my evening meal that i can forget about food until morning, but if i miscalculate i would go for a spoonful of peanut butter, a couple of slices of cheese or homemade coconut yogurt. Berries and cream might work as a last resort. Even low carb hot choc, so long as it is made with double cream. (I find low carb high fat is the best eating plan I have ever found) The trick (for me) is to have fat, protein if possible, and as few carbs as possible. The examples given don't seem to trip my switch, even if they do have carbs.

My 'security blanket' is a peanut 9 bar. Delicious, and fantastic for a minimal bg rise, with absolutely no backlash (for me). I couldn't have your granola bar - although i would love it if I could!
 
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MosheBenYehuda

Well-Known Member
Messages
353
Type of diabetes
Type 2
Treatment type
Tablets (oral)
I can't sleep if i am hungry, but the worst thing i can do is eat carbs before bed. I would almost certainly wake with a hypo in the middle of the night, ravenously hungry, fall face first into the fridge and start the cycle off again.

Nosher eats many small meals. I do better with 2 or 3 meals a day. I probably only have a snack a couple of days a week.

I usually try and eat enough at my evening meal that i can forget about food until morning, but if i miscalculate i would go for a spoonful of peanut butter, a couple of slices of cheese or homemade coconut yogurt. Berries and cream might work as a last resort. Even low carb hot choc, so long as it is made with double cream. (I find low carb high fat is the best eating plan I have ever found) The trick (for me) is to have fat, protein if possible, and as few carbs as possible. The examples given don't seem to trip my switch, even if they do have carbs.

My 'security blanket' is a peanut 9 bar. Delicious, and fantastic for a minimal bg rise, with absolutely no backlash (for me). I couldn't have your granola bar - although i would love it if I could!
My trick is full fat yogurt and berries a couple of hours before bed, and if I have the time, preceded by some peanuts. Been religiously following this for a couple of months and it works;-) I can't sleep if hungry, it's really bad...
 
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MosheBenYehuda

Well-Known Member
Messages
353
Type of diabetes
Type 2
Treatment type
Tablets (oral)
I think that the amount of carbs in the bar, the oats and maple syrup would really spike me very quickly. Apple is not bad but only half of a small one.
The idea is to raise your blood glucose very slowly, then have a low carb small meal as soon as you have risen to normal levels.
I'm glad you have got rid of the grains but it's not about the calories, I often exceed calorie limits, but I'm still losing weight. Calories are not important!!!
Hunger is a side effect of gradually getting rid of the carbs. It is sometimes called carb flu.
As soon as your body gets used to having less carbs and eating more protein and full fat, the hunger pangs will go. It's similar to going cold turkey!
It's hard to get your head around the idea of very low carbing, but stopping the rise in blood glucose levels is so important. The benefits is losing weight, feeling better and the energy you get from it!
Control is the key!

Keep asking, we will help you get there.
I agree with nosher8355, I usually go over at calories, and still losing weight, about 1 kg every two weeks. I went from over 125.6 kg in May, to 114.9 kg this morning :)
 
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Lamont D

Oracle
Messages
15,793
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
I agree with nosher8355, I usually go over at calories, and still losing weight, about 1 kg every two weeks. I went from over 125.6 kg in May, to 114.9 kg this morning :)
Thanks for that and well done on the weight loss!

Haven't seen you post on the forum lately, everything ok?
 
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Lamont D

Oracle
Messages
15,793
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
@nosher8355 You mention biscuits - I like to carry a Granola bar with me when I'm out, it's my security blanket :dummy: The toasted (cooked) oats that go into it work best for me, and they're held together with a shot of Maple Syrup. So there's a dual action process that's a good patch for an hour until I can get proper food. If I don't have any of those then an Apple is good for half an hour. These are only quick fix measures, like you say to avoid creating spikes again. I tried glucose tablets once and they didn't have the staying power and only rebounded me.

@CatLadyNZ thanks for the links. The PDF seems long but half of it is credits and references, so its not too bad.

Does anyone have problems with being hungry? During the day it's fine I can shovel the food in and keep on track with daily calorie goals. But I wake up in the early hours of the morning, sometimes stomach grinding away, can't get back to sleep until I've had something to eat. I've recently modified my diet to be less carbs than before. I used to have a small bowl of cereal an hour before bedtime, and if I did wake up early in the morning hungry I'd have a small top up. But I've now cut out grains whilst I try and loose weight and the early morning wake-up call is back.
Having spent an hour deciphering the tome!
I am still digesting (see what I did there?) The info.

The truth is it was not a lot I haven't read before, but some of the details were interesting as well as informative.
Thanks for the link again!

The fact that stood out was the 2% of diabetics(which type they didn't say) die of hypoglycaemic episodes according to the report!

It also emphasises that how unique we RH ers are!
 
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ButtterflyLady

Well-Known Member
Messages
3,291
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Acceptance of health treatment claims that are not adequately supported by evidence. I dislike it when people sell ineffective and even harmful alternative health products to exploit the desperation of people with chronic illness.
Hi,

The first link reads (to me) like someone listing foods that they can eat. No problem with that, but half their dietary recommendations would not work for me (for example, rye bread and carrots are disastrous for me).

So really, it goes back to 'find out what works for YOU using your bg meter, then stick to it' and don't EVER assume that the dietary advice you are told will work for you. The only general advice that i believe works for all RHers is simple - avoid carbs and fill up on fat and protein - if the rh can be controlled by diet. Some of us need medication AND diet.

The second link is fascinating, but a slow read. Thank you for posting it. Am taking it in digestible chunks ;)

I'm glad the second link was helpful. I know what you mean about slow reads - I am halfway through a similar article on gastroparesis and it's slow-going indeed.
 

ButtterflyLady

Well-Known Member
Messages
3,291
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Acceptance of health treatment claims that are not adequately supported by evidence. I dislike it when people sell ineffective and even harmful alternative health products to exploit the desperation of people with chronic illness.
Having spent an hour deciphering the tome!
I am still digesting (see what I did there?) The info.

The truth is it was not a lot I haven't read before, but some of the details were interesting as well as informative.
Thanks for the link again!

The fact that stood out was the 2% of diabetics(which type they didn't say) die of hypoglycaemic episodes according to the report!

It also emphasises that how unique we RH ers are!
Glad you liked the link. Hopefully it might help someone who needs to share it with their doctor too.
 
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hozzy126

Active Member
Messages
43
Type of diabetes
Prediabetes
Treatment type
Diet only
Thanks for the links found it really interesting., Ive just been to a ENT specialist for something unrelated to RH and when he asked about my health history I mentioned I had been diagnosed with RH and it had taken until last year when I was 51 to get a diagnosis of RH after having to avoid sugar, fruit, pop, sweets, cakes, etc.. and missing an awful lot of school and my poor mum being at her wits end!! She is diabetic which they have been testing me for all my life..And do you know what he said? 'I do not know of any other condition only diabetes that can affect you in this way., he said it was psychological!!! I was really mad with him as I said if he bothered to look in my notes he would find that this is a real condition and I have it.. He said he would believe what I told him but he had never heard of it!! He was really off with me after this., There are so any medical people out there who know nothing about this condition.. They need to all come and read the posts on here and maybe they will learn something.. Thank you for all the informative links etc.,
 
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Wendolph

Well-Known Member
Messages
111
Type of diabetes
Other
Treatment type
I do not have diabetes
@hozzy126 bless you. I know what you're going through. All my life drs have told me nothings wrong with me, blood tests galore. I'm now trying to convince my gp to test me for rh. But when you've been diagnosed and they still 'don't believe you' it must be a nightmare. Dont let it get you down. You know its real. Its just so many conditions are interlinked. They need to listen to patients more.
 
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Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
I'm still ploughing theough CatLady's second link.

Absolutely fascinating!

Multiple gems so far, including
-some types of RH that i now understand better
-refs (p15ish) giving evidence that while metformin isnt supposed to cause hypos, nevertheless it has been reported to have done so (and we all knew that already, didn't we?)
- a ref (p16) to show that as little as 2-3 weeks of scrupulously avoiding hypos, has been shown to restore hypo awareness in people (insulin dependents) who had lost it entirely
 
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