Reactive Hypoglycaemia

[Lamont D]

Thanks for the links found it really interesting., Ive just been to a ENT specialist for something unrelated to RH and when he asked about my health history I mentioned I had been diagnosed with RH and it had taken until last year when I was 51 to get a diagnosis of RH after having to avoid sugar, fruit, pop, sweets, cakes, etc.. and missing an awful lot of school and my poor mum being at her wits end!! She is diabetic which they have been testing me for all my life..And do you know what he said? 'I do not know of any other condition only diabetes that can affect you in this way., he said it was psychological!!! I was really mad with him as I said if he bothered to look in my notes he would find that this is a real condition and I have it.. He said he would believe what I told him but he had never heard of it!! He was really off with me after this., There are so any medical people out there who know nothing about this condition.. They need to all come and read the posts on here and maybe they will learn something.. Thank you for all the informative links etc.,

You know I have been through what you are now facing!
As I've said many times, that GPs are not trained to diagnose RH and that's why I was diagnosed with T2, sometimes understandable, but having no knowledge of it even at specialist level is worrisome! That's why I believe that there is a lot more RH ers out there disguised as T2!
Don't give up, keep fighting!
You should referred him to your specialist!

 

[hozzy126]

It is very worrying I have asked to see an endocrinologist but still waiting.. Like I've said in my other posts I've had to learn to live with this condition without any advise from anyone medical and it would be really good to have a specialist who could tell me about the condition.. I've learnt so much off this forum and I'm really grateful to everyone on here. Thanks everyone

 

[freshlybrewed]

@hozzy126 I've been in the same situation as you. Maybe you could write or phone the endocrinologist's clinic asking his/her advice about whether a referral from your GP would be appropriate. If it is then your GP wouldn't feel like such an idiot referring you for something nobody knows about. I too have been accused of it being psychological, told I had anxiety disorder.

I can't sleep if i am hungry, but the worst thing i can do is eat carbs before bed. I would almost certainly wake with a hypo in the middle of the night, ravenously hungry, fall face first into the fridge and start the cycle off again.

Lol that made me laugh.

 

[freshlybrewed]

Hunger is a side effect of gradually getting rid of the carbs. It is sometimes called carb flu.
As soon as your body gets used to having less carbs and eating more protein and full fat, the hunger pangs will go. It's similar to going cold turkey!

How long can I expect this carb flu to last?

My trick is full fat yogurt and berries a couple of hours before bed, and if I have the time, preceded by some peanuts. Been religiously following this for a couple of months and it works;-)

I'll try this and let you know how it works for me. It'll be good if it does. It's almost as if I need something to put my tummy to sleep. Nothing too heavy that it has to spend hours working on digesting. And nothing that'll cause acid reflux when I'm in bed. So this sounds like it'll do the job.
Congrats on loosing the weight!

 

[ButtterflyLady]

How long can I expect this carb flu to last?




I'll try this and let you know how it works for me. It'll be good if it does. It's almost as if I need something to put my tummy to sleep. Nothing too heavy that it has to spend hours working on digesting. And nothing that'll cause acid reflux when I'm in bed. So this sounds like it'll do the job.
Congrats on loosing the weight!

You can reduce the risk of acid reflux in bed by putting the head of your bed up on blocks 4-6 inches off the floor.

 

[Brunneria]

How long can I expect this carb flu to last?




I'll try this and let you know how it works for me. It'll be good if it does. It's almost as if I need something to put my tummy to sleep. Nothing too heavy that it has to spend hours working on digesting. And nothing that'll cause acid reflux when I'm in bed. So this sounds like it'll do the job.
Congrats on loosing the weight!

My acid reflux/indigestion stuff disappeared after giving up grains. hopefully yours will settle down too, as you shift to a diet that your body can work with, rather than fight.

The yog sounds like a good idea.
Cocnut yogurt or soya yogurt are also options, if the milk turns out to be a problem...

 

[MosheBenYehuda]

My acid reflux/indigestion stuff disappeared after giving up grains. hopefully yours will settle down too, as you shift to a diet that your body can work with, rather than fight.

The yog sounds like a good idea.
Cocnut yogurt or soya yogurt are also options, if the milk turns out to be a problem...

For some reason, yogurt with berries and milled linseeds never caused acid reflux for me, even if eaten really late. I remember though horrible, choking reflux before I totally gave up carbohydrates. I still have the Rennie next to my bed, just in case, and of course, water...
So far so good, knock wood ;-)

 

[Brunneria]

lol

Me too. I bought a pack last Christmas, thinking that I would end up indulging to excess, then I didn't, so they have moved to my suitcase, because you know what happens on holiday...

I am just so predictable!

 

[hozzy126]

Can I ask as you are talking about acid reflux. I have been suffering most of my adult life with indigenous . I've had a camera and was diagnosed with having gastritis, oesophagitis and a stomach ulcer. Also problems with my gall bladder.. Is this a side affect of RH? Or is it hereditary as my family suffers with digestive problems..

 

[ButtterflyLady]

Can I ask as you are talking about acid reflux. I have been suffering most of my adult life with indigenous . I've had a camera and was diagnosed with having gastritis, oesophagitis and a stomach ulcer. Also problems with my gall bladder.. Is this a side affect of RH? Or is it hereditary as my family suffers with digestive problems..

My understanding is that gastritis, oesophagitis and stomach ulcers are all conditions that can be treated and that will resolve. Rather than gastritis, you may have dyspepsia which, along with GORD (gastro-oesophageal reflux disease) are ongoing/chronic conditions, which can have an unknown origin and no known cure, only management through meds and lifestyle measures. In my family there are both digestive problems and diabetes, so it is not clear which causes my dyspepsia and GORD.

I have recently been reading about delayed stomach emptying, which can be caused or exacerbated by nerve damage caused by high BGs, and which can make GORD/reflux worse.

Are you still having reflux issues? Are you on any meds for it?

 

[Brunneria]

@Indy51 may be of help here - she has some great info on wheat intolerance and the effects on indigestion etc.
- hope you don't mind me tagging you, Indy.

 

[Lamont D]

I had chronic indigestion throughout my twenties through to my late fifties,
There was many things that I couldn't eat what I do now with no problems.
They told me I had all the ulcer problems and hernia problems in my stomach that should be part of an eighty year old. I had the scope up and down twice and this is a repeat of my scope problems in the twenties and thirties.
No amount of rennies, chalk or milk of magnesia would touch it!
And yes it was grains that were flaring it up!
I had the anti biotic that could now cure ulcers became it was a bacterium in the intestines that was causing it. I don't have it now!
The Aussies who discovered this is a fascinating story!
They both received the Nobel prize!

 

[hozzy126]

Yes I'm on lansoprazole, but still having problems so going for another camera down the throat 3rd time.. Which I'm not happy about as I'm sure it must do some damage over time

 

[Lamont D]

Yes I'm on lansoprazole, but still having problems so going for another camera down the throat 3rd time.. Which I'm not happy about as I'm sure it must do some damage over time

Do you stay awake or do you have to be knocked out?

I know just nosey!

Has eating low carb helped?

 

[hozzy126]

Hi Ive aways stayed awake as they say its better.. I don't know who for though...It's bloody awful

 

[hozzy126]

I'm eating a lot of raw spinach with most meals and I've cut down bread.. I still have bread but not as much.. I tried eating 8 times a day little and often and that didn't work for me I had more hypos so I'm sticking to what I've always done. Three times a day and if I fancy a snack I will and if I don't I won't .. Im so used to not having any sugars fruit etc it's been part of my life I'm just annoyed that it took so long for them to work out what I had.. But at least I have a name for it and, it makes sense to me a bit more, how I've never been good at handling stress, and now I know that when people with RH get stressed, it affects the blood sugar, so at least now I know how that affects me. I'm sure that's why I'm having all these stomach problems.. As I eat healthy, I gave up smoking 18 years ago and I don't drink alcohol.. (Maybe that's why I'm stressed ha ha) Plus I have a very stressful job!!! I'm still learning a lot about this condition especially from this forum. ️️

 

[ButtterflyLady]

Hi Ive aways stayed awake as they say its better.. I don't know who for though...It's bloody awful

Oh no, I think they are wrong there. I had IV sedation for mine, and I have no memory of it. I encourage you to ask about sedation options. IMO doing an endoscopy without sedation is cruel. It's unnecessary.

 

[ButtterflyLady]

Yes I'm on lansoprazole, but still having problems so going for another camera down the throat 3rd time.. Which I'm not happy about as I'm sure it must do some damage over time

Lansoprazole protects your body from the damage acid can do. It can reduce the absorption of certain vitamins, ie B12 and Folate, which should be checked and supplemented as needed.

 

[hozzy126]

I know what you mean about staying awake.. Because ' I tolerate it well ' ..their words not mine, they say it's better to be awake and plus I don't have to wait for sedation to wear off.. It is bloody horrible though you have to not think about what they are doing in between retching or trying not to retch .

 

[Lamont D]

I know what you mean about staying awake.. Because ' I tolerate it well ' ..their words not mine, they say it's better to be awake and plus I don't have to wait for sedation to wear off.. It is bloody horrible though you have to not think about what they are doing in between retching or trying not to retch .

I'm the opposite, I'm not squeamish, I like watching the Tele, when it's going down and looking around inside me! I only had a local when they did my carpal tunnel, that was really good as the view I had was good and interesting.

I think the worst part is the taste it leaves in the back of the throat!