New and confused!!!

Minette

Member
Messages
5
Type of diabetes
Treatment type
Tablets (oral)
Hi everyone, I have been diagnosed with type 2 diabetes this week, 10 months after having gestational diabetes.

When I was pregnant it was very easy for me, I had insulin and weekly appointments with a consultant.
Now I've been given Metformin and I am a bit confused about everything.
I don't understand why I wouldn't have been asked to test my blood, and I don't even know how long it will be until I get to go to the diabetes clinic.

To make matters worse I feel terrible, much worse than I did before the diagnosis. I feel like my mouth is full of sawdust, and I feel like I'm drunk/hungover. I'm literally staggering around like a zombie which isn't ideal with a 10 month old!!

I suppose I just want to know if this is 'normal', if others have felt like this?
Most of all I just want to talk to people who understand and want to help and support me instead of treating me like I'm dying!!
 

ButtterflyLady

Well-Known Member
Messages
3,291
Type of diabetes
Treatment type
Tablets (oral)
Dislikes
Acceptance of health treatment claims that are not adequately supported by evidence. I dislike it when people sell ineffective and even harmful alternative health products to exploit the desperation of people with chronic illness.
Welcome :)

There are a few women here who had GD in pregnancy then developed T2. You're not alone.

Do you still have your meter from the pregnancy? If not, you should get one. It can be hard for T2s to be given test strips on prescription so if you are told no, then get an SD codefree meter and strips here:
http://www.homehealth-uk.com/medical/blood_glucose_monitor_testing.htm

They have the cheapest test strips on the market, and you may need a lot initially. There is a discount code if you buy 5 or 10 boxes, which brings the price down to about £5 for 50 strips.
5 packs 264086
10 packs 975833

Do you know what your BG is currently? It sounds like you have symptoms of high BG. Drink plenty of water, and try to eat as few carbs as you can as that can help bring the levels down.

I will tag @daisy1 who has some info for newbies she can post.
 

Minette

Member
Messages
5
Type of diabetes
Treatment type
Tablets (oral)
Thank you!! I do still have the test meter somewhere, I will try and find it.
I hope my dr will be sympathetic about me needing strips etc as I really cannot afford to buy them!

It just seemed so strange to me that I feel like this after starting the Metformin, whereas before I just felt hot and shaky.

I hope the clinic is supportive, I'm due to see a dietician at some point too. When I was pregnant it was easy as I didn't want to eat anything anyway. Now I actually have to find out what I can/can't eat.
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@Minette

Hello Minette and welcome to the forum :) Here is the information we give to new members and I hope it will help you to feel better once your levels start to come down. Ask questions and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@Minette

Hello Minette and welcome to the forum :) Here is the information we give to new members and I hope it will help you to feel better once your levels start to come down. Ask questions and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 

ButtterflyLady

Well-Known Member
Messages
3,291
Type of diabetes
Treatment type
Tablets (oral)
Dislikes
Acceptance of health treatment claims that are not adequately supported by evidence. I dislike it when people sell ineffective and even harmful alternative health products to exploit the desperation of people with chronic illness.
Thank you!! I do still have the test meter somewhere, I will try and find it.
I hope my dr will be sympathetic about me needing strips etc as I really cannot afford to buy them!

It just seemed so strange to me that I feel like this after starting the Metformin, whereas before I just felt hot and shaky.

I hope the clinic is supportive, I'm due to see a dietician at some point too. When I was pregnant it was easy as I didn't want to eat anything anyway. Now I actually have to find out what I can/can't eat.
Now that I think about it, your symptoms could also be metformin side effects, or a bit of both (side effects and high BGs). If you keep feeling worse it might pay to contact your doctor.

Did your doctor say you have been referred to the diabetes clinic? If so, call them to see what's happening. If not, there might be a diabetes nurse at the medical practice. Services vary depending on where you live. To be honest, you can learn an awful lot on this forum and the nurse, dietician and GP may not know much about T2 diabetes. They're certainly useful if you have symptoms and issues needing diagnosis and treatment. But for information on living with T2 and what to eat, I prefer the forum.
 

Daibell

Master
Messages
12,652
Type of diabetes
LADA
Treatment type
Insulin
Hi. Those who are diagnosed T2 are pretty much left to fend for themselves with regard to test meters, strips and advice and aren't referred to a clinic. Do find or get hold of a meter so you can check levels as it's possible you could be nearer to T1 than T2. Metformin won't have that much effect on blood sugar but can cause bowel upset unless it's the SR (Slow Release) version. Yes, do see the surgery DN if you have one; we do. Be very careful with the dieticians advice. The best diet advice is on this forum (see Daisy's post above). NHS diet advice is often bad and harmful for us. If you are told to have starchy carbs with every meal and low-fat stuff, get up and leave. BTW if you can't find your meter most pharmacies will do a spot test which would tell you whether your blood sugar is not normal.
 
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Minette

Member
Messages
5
Type of diabetes
Treatment type
Tablets (oral)
Thank you so much everyone! I found the meter and a load of testing strips from when I had GD. Just tested before dinner and it was 6.9
Going to keep a record for a few days until I get an appointment with the nurse.

My GP is the diabetes lead for the surgery-thank God!-he runs a diabetes clinic there with a specialist nurse. I just need to wait for an appointment.
He's referred me for a load of other stuff too, retinal screening (at least I can have the anaesthetic now I'm not pregnant!), a home blood pressure check and some group thing called DESMOND.
 
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ButtterflyLady

Well-Known Member
Messages
3,291
Type of diabetes
Treatment type
Tablets (oral)
Dislikes
Acceptance of health treatment claims that are not adequately supported by evidence. I dislike it when people sell ineffective and even harmful alternative health products to exploit the desperation of people with chronic illness.
Thank you so much everyone! I found the meter and a load of testing strips from when I had GD. Just tested before dinner and it was 6.9
Going to keep a record for a few days until I get an appointment with the nurse.

My GP is the diabetes lead for the surgery-thank God!-he runs a diabetes clinic there with a specialist nurse. I just need to wait for an appointment.
He's referred me for a load of other stuff too, retinal screening (at least I can have the anaesthetic now I'm not pregnant!), a home blood pressure check and some group thing called DESMOND.
That's all great to hear. Sounds like your GP is onto it, which is a relief. 6.9 before dinner is pretty good at this stage and not as high as I thought it would be. It will be interesting to see how you go over the next few days. Good luck and keep us posted :)
 
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Minette

Member
Messages
5
Type of diabetes
Treatment type
Tablets (oral)
I feel a lot better today, still a bit dizzy and stuff but no where near as bad as yesterday.

Just a little confused about the readings, when I had GD I only had to check after I'd eaten.

Yesterday before dinner my reading was 6.9, then after (1.5 hours) it was 6.8
This morning before breakfast 6.8, after eating it was 8.1

Does this all sound normal?! Like I said, it's a bit different to when I was pregnant!!
 
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ButtterflyLady

Well-Known Member
Messages
3,291
Type of diabetes
Treatment type
Tablets (oral)
Dislikes
Acceptance of health treatment claims that are not adequately supported by evidence. I dislike it when people sell ineffective and even harmful alternative health products to exploit the desperation of people with chronic illness.
I feel a lot better today, still a bit dizzy and stuff but no where near as bad as yesterday.

Just a little confused about the readings, when I had GD I only had to check after I'd eaten.

Yesterday before dinner my reading was 6.9, then after (1.5 hours) it was 6.8
This morning before breakfast 6.8, after eating it was 8.1

Does this all sound normal?! Like I said, it's a bit different to when I was pregnant!!
Glad you are feeling a lot better :)

Testing is optional, there's no requirement to test every meal or every day. But it can be helpful for finding out which foods spike your BG levels, and also just checking in on how things are going. The fasting BG is good for that, and it can differ from the before breakfast result if there is more than say one hour between the two. My current practice is generally to test for a day once every 1-2 weeks, or when trying a new food. If I'm doing a day of testing I do a FBG then I test before every meal and 2 hours afterwards.

Your levels sound fine. Ideally you want to stay under 7.8 all the time. Over the next few days and weeks your fasting BG should slowly come down to a point where you can have a meal and not go over 7.8 at the 2 hour point. Watching the carbs is an important part of this too.
 

mrpaulbradley

Member
Messages
21
Type of diabetes
Treatment type
Diet only
Hi Minette welcome to the forum, I'm new like you. It's been really incredibly helpful to me. I've learned a lot and feel a lot better for my diagnosis and more positive that I can control it.
It's just nice to know that you can chat things through with people who are going through what you are.
I too have been given info about Desmond. I like the fact that I can take my wife too. That way she gets to hear about it and explained in a much better way than I can.
 
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Minette

Member
Messages
5
Type of diabetes
Treatment type
Tablets (oral)
Thank you so much everyone. It is so good knowing that there are lots of people who know and understand how I'm feeling right now.

I am going to carry on testing for a few days, I think it might give me a better idea of what things I can/can't eat. I was going to say it won't hurt...but I am sticking a needle in my finger!!

I'm just a bit weirded out by how I feel. Friday I was a complete zombie, yesterday I felt fine, this morning I have a banging headache, bit zombie like and I am freezing cold!!
I mean freezing...I've got socks, long sleeved top, cardi and a blanket over me (I sound like an old lady...I'm only 31!)
I just can't get warm!!!
 

ButtterflyLady

Well-Known Member
Messages
3,291
Type of diabetes
Treatment type
Tablets (oral)
Dislikes
Acceptance of health treatment claims that are not adequately supported by evidence. I dislike it when people sell ineffective and even harmful alternative health products to exploit the desperation of people with chronic illness.
Thank you so much everyone. It is so good knowing that there are lots of people who know and understand how I'm feeling right now.

I am going to carry on testing for a few days, I think it might give me a better idea of what things I can/can't eat. I was going to say it won't hurt...but I am sticking a needle in my finger!!

I'm just a bit weirded out by how I feel. Friday I was a complete zombie, yesterday I felt fine, this morning I have a banging headache, bit zombie like and I am freezing cold!!
I mean freezing...I've got socks, long sleeved top, cardi and a blanket over me (I sound like an old lady...I'm only 31!)
I just can't get warm!!!
I'm wondering if feeling extremely cold is a sign of thyroid issues. Have you had a blood test for this recently?