Potential case of LADA

[jamesfitz]

Is it possible to have type 1.5 diabetes even if my antibody test results come back negative?

 

[urbanracer]

Is it possible to have type 1.5 diabetes even if my antibody test results come back negative?

GAD antibody tests are not fully conclusive...............

You would probably need to interpret the results in conjunction with a C-Peptide test.

 

[Sobeit]

Yes apparently.It must be a bit frustrating to not get definitive proof! I was with my diabetes nurse yesterday who is pretty sure Im type 1 1/2 .Tests have been done but waiting on them to come back from holland.Im on insulin a few days now.

 

[jamesfitz]

Ive not been confirmed yet but given i have good fasting levels and poor post prandial levels im pretty certain ive got type 1.5

 

[Andy-Sev]

Going through this not knowing what type I am at the moment and at least once a day I start trying to make sense of what it could be whilst waiting for the next test or in my case a CT scan on my pancreas. I know things are not clear cut because my last visit to the GP resulted with him mentioning to me that diabetes isn't black & white and there are many shades in between and I could be one of those going on what tests I have had done but it would be up to the specialist at the hospital to decide what type I am. What I do know is that having been put purely on insulin straight away I haven't felt this good in a long time, not that I noticed how bad I had been feeling.

 

[Daibell]

HHi. Yes, you need a c-peptide test as well. GAD can be negative if a long time has elapsed since first diagnosed. T1.5 can also result from other tpyes of pancreatic damage such as viruses.

 

[jamesfitz]

Strange how my type 1 must have been caused by a virus yet ive never been ill in the last 5 years :/

 

[Ian DP]

Sa

Strange how my type 1 must have been caused by a virus yet ive never been ill in the last 5 years :/

me as well, not ill prior to diagnosis.

 

[jamesfitz]

Ian do you need any background insulin or just novorapid for meals?

 

[Ian DP]

Ian do you need any background insulin or just novorapid for meals?

I don't take any insulin, I control my BG levels with diet. I am told 90% of my insulin making beta cells are dead, but the last 10% are just sufficient to produce sufficient insulin when on a very low carb and high fat diet. I strongly believe beta cells die with high BG levels (over around 7.8), over the last two years I have generally managed to keep my BG levels under 7.8 and have seen very little beta cell loss, simply measured by hba1c and regulaR BG testing which is lower now than a year and two years ago.