Thank you so much for that obsevant concern of yours. You are correct too - i did read about that on an Austrailian web site. But he has already been tested for that. He has had loads of tests and they all come back clear. That is another reason i am soo sure that he has RH. Just wish we could all get professional support with this in England though. It seems that the only people who have treated this in great numbers is the Chariity groups in America and Austrailia. They seem to have a lot more experience with how to diagnose it and how to treat it better than anyone in the Medical proffesion.Hi Misdiagnosed and welcome. Hope u don't mind me asking! Does your husband had his thyroid tested? And Vit B? Why I'm asking is I read about flat curve RH and they mentioned that that starts with overfunktion thyroid!!!! Probably u did read that befor!
Hi @SugarTigerGood morning, I am now dragging my 'bag of bones' body along trying to get a proper diagnosis for what sounds like 'reactive hypoglycaemia', hence joining and posting here. Even when a small child I was overweight, very much so for most of my adult life, and on consideration I had a lot of these symptoms for a long time. Three years ago they began 'in earnest' and I dropped from 87kgs to my current 42-45kgs, most within first year. I am on point of making formal complaint about 'treatment' received from GP surgery, but concious of lack of alternative if I do, but am currently waiting for apt at uclh for several days of tests to confirm what is causing hypo symptoms hour or so after eating [I have connective tissue/neurological conditions, hence 'specialist' hospital investigations]. I'm currently left trying to help myself through how/when I eat, having problems with gluten makes it more tricky, but I have discovered Quinoa (which 'specialist' says is better gi option) even in flour and 'porridge flake' option, so breakfast is at least easier (but pricey!). Currently making some kefir as convinced have mouth thrush (very red, sore tongue and throat, sugar, even in form of dextrose tabs, burn and hurt when I eat, other food doesn't, hence self-help) have bought couple of otc fluconazole tabs in past couple weeks, took 2nd dose yesterday as 1st helped but it crept back & gut pain seems linked, gut pain faded after taking too, so I have to try what seems to help as 'left adrift' by GP. Won't repeat tho if it comes back as know it's not ideal, but fingers crossed... Ok, ramble over, hello again, thanks for all helpful info read so far, at least I can try & help myself while I wait and wait and ....
Hi Linagirl, sorry for delay, flaming wifi kept cutting out today. I have Hypermobility Syndrome and this in turn causes my POTS. My Hypermobility affects my internal connective tissue, like a worn elastic band it stretches but doesn't completely spring back, meaning my blood pools in my lower legs & feet when standing and after walking & stopping, causing me to feel faint or pass out if I can't sit/lay down, a right pain on bum when shopping etc. I'm waiting for tests at uclh to see what is cauding my rh symptoms, hoping that it Isn't anything to do with Hypermobility (though that generally causes it to work to slowly) and is 'chemical' & therefore 'sortable'. RH seems to fit with what happens to me, and on refection a version of the symptoms have been happening to me for many years.Hello could you say what your connective tissues issues are if you don't have any objection just out of interest. I am hashimotos and RH (self diagnosed at the moment). I also have issues with carbs in respect of fainting.
Hi Linagirl, sorry for delay, flaming wifi kept cutting out today. I have Hypermobility Syndrome and this in turn causes my POTS. My Hypermobility affects my internal connective tissue, like a worn elastic band it stretches but doesn't completely spring back, meaning my blood pools in my lower legs & feet when standing and after walking & stopping, causing me to feel faint or pass out if I can't sit/lay down, a right pain on bum when shopping etc. I'm waiting for tests at uclh to see what is cauding my rh symptoms, hoping that it Isn't anything to do with Hypermobility (though that generally causes it to work to slowly) and is 'chemical' & therefore 'sortable'. RH seems to fit with what happens to me, and on refection a version of the symptoms have been happening to me for many years.