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  1. Ceesharp

    Hot Weather And Storing Insulin While On Holiday

    A cautionary tale - last month I accidentally left my basal insulin in the sleeping compartment of my tent, and when we got back after a day out in blistering temperatures, despite the insulated bag the insulin registered at 33 degrees. Way too hot! My Frio pouch is brilliant for keeping insulin...
  2. Ceesharp

    New Topic Area - MIDD?

    I last posted in this forum some years ago, when I had a provisional diagnosis of MIDD, caused by the 4234A>G mutation. Shortly after that post my diagnosis was confirmed. I now wear hearing aids in both ears, and still struggle to control my diabetes. I use basal/bolus insulin and this last...
  3. Ceesharp

    Trulicity injection.

    I've been on Trulicity for a few months now. I started on the lower dose, which was upped to the higher dose 6 weeks ago.At first I had extreme diarrhoea for 24 hours after the injection and quite a lot of nausea. Now I don't get any diarrhoea until about 5 days after the injection and just have...
  4. Ceesharp

    Trulicity injection.

    Hi, I've been on Trulicity for nearly six weeks now. The pharmacy hasn't had any problems getting it so far. The only side effect I've had is diarrhea for one day after the injection. I have a greatly reduced appetite and I've been getting much lower sugars so I have had to reduce my insulin...
  5. Ceesharp

    I have mitochondrial diabetes (MIDD)

    I have mitochondrial diabetes (MIDD)
  6. Ceesharp

    Mitochondrial disease and Type1A

    Hi Chris Yes my mutation is A3243G, the usual one for MIDD. There is a drug called Dapaglaflozin which my son uses successfully, meaning that he no longer needs the bolus insulin, just the basal dose. Unfortunately the consequence of 20 years of erratic sugar control means that my kidney...
  7. Ceesharp

    Mitochondrial disease and Type1A

    HI I have not used this forum much until now because there had not been anything much about MIDD. We are, after all, members of the 1%! I was diagnosed as T2 in 1992 at age 38, the same year that MIDD was discovered. I progressed to insulin in 4 years, and subsequently to insulin and metformin...
  8. Ceesharp

    New Topic Area - MIDD?

    I've been provisionally diagnosed with MIDD (awaiting blood test confirmation, but DR is 99.9% certain that I've got it. My brother and my son have had their diagnosis confirmed. For 20 years I've been struggling with supposed T2 that doesn't respond well to treatment; I was on basal/bolus...
  9. Ceesharp

    Retinopathy after laser

    I haemorrhaged suddenly in both eyes just over two years ago. I had extensive lasering, vitrectomies on both eyes, and then some more lasering. Apart from losing my night vision I have been fine since, and resumed my Open University studies. I saw the specialist for a check-up four weeks ago...