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Hi there, Hope things are going OK your end. Sorry for the delay in replying! The blind spots (one medium, one small) have stayed - no bigger, but no smaller. If the blind spots are because of small bleeds, they can resolve as the blood is reabsorbed, but this isn't the case with me. Mine are...

I don’t think it’s rare. All the comments people sent me, and what my ophth team told me, was accurate - that things are rough for a couple of years, but it normally settles down eventually. Even with proliferative disease >90% of people keep their vision with the right treatment - I found this...

(Though they weren’t quite that good before!)

A1Cs 6-7%

A couple of years ago I was having a very rough time, having developed aggressive proliferative retinopathy out of nowhere. I wasn’t getting much info from the eye hospital and I was a big ball of anxiety, utterly convinced I would go blind. This forum was such a huge help to me then, and I...

Does anyone know much about cryotherapy to treat proliferative retinopathy? I developed proliferative retinopathy last year after starting an insulin pump - I had a lot of laser to the worst-affected eye and things had stabilised. Luckily it was spotted early so it was never too bad - no...

Once in a while, I take five times my usual amount of insulin and eat an entire packet of chocolate digestives in one go... I also didn't change my lancet for two years!

I get these flashing lights related to hypos, near hypos, or when blood sugar is falling quickly - pretty much every time, it's one of my most reliable symptoms! They originate from the brain, not the eye (in my case anyway) - the "flashes" are identical and occur in both eyes at the same time...

Sounds like absolutely classic dawn phenomenon - mine used to sit at 4-5 all night then climb steeply from 5am until 10am, usually to 10-14 but if I had a lie in it could easily go to 18-19. Unfortunately the only thing that properly fixed this for me was a pump - the dawn phenomenon was the...

Happened to me too, I was convinced I had air bubbles in the tubing or something. Turned out it's completely normal - it happens whenever the tubing gets bent. Within 24 hours of putting a new tubing set on, mine is covered in them, and I don't notice any more! Interesting to find out that it's...

Sorry you've gotten ill over Christmas! I've just had food poisoning too - sympathies. Hope you get well soon. Hopefully your team will have given you some guidelines on how to manage when you're ill. If they haven't or you can't find them, "sick day" rules for type 1 can be found on the...

Completely agree with everything that's been said - there are lots of horror stories out there and doing too much digging and reading will make you feel more anxious and even worse than you already do. Most people do well with laser & other treatments, but those aren't the stories you read and...

Laser treatment is well-known to cause poor night vision. I've certainly noticed a difference since having laser, but with headlights on I can manage. I'm useless walking in unlit alleyways/roads and use my phone's torch to get me through them! As for driving - you would have needed to declare...

I tend to eat low to moderate carbohydrate meals to prevent BG spikes. When I'm having a (much needed!) day off and I'm having rice or pasta, for example, I take my usual bolus plus 50% as a dual wave bolus through my pump. If you're using pens/MDI then what I used to do was take a bolus before...

Everyone's ECG is different - T wave changes can be normal or abnormal depending on your age, gender, anatomy, genetics, medical history, and lots of other factors. I suspect the "anterolateral T-wave abnormality" and "borderline ECG" comments were the ECG machine's own interpretation. These...

Update - saw a different consultant privately on Tuesday. He was wonderful and explained the angiogram result in detail, so now I understand what's going on. The angiogram showed that I had severe pre-proliferative disease, not proliferative - hence the 3 month call back I guess. It also showed...

I've noticed foamy urine many times over the years - type 1 for 22 years and absolutely no evidence of kidney disease. I thought exactly the same thing you did the first few times I had it, but my urine has always been completely clear and so now I've gotten used to it. Foamy urine can be a...

Thanks for all the replies. Still got the blind spots (and maybe 1 or 2 new ones), but visual acuity still 6/5 in both eyes, which is reassuring. Called my ophthalmologist's secretary to let them know the optician's findings. They were very nice, and passed on to the consultant that things had...

Thanks both for the quick replies! The consultant said I had neovascularisation at the optic nerve head, which to my mind means proliferative disease. However I haven't had a results letter, and the appointment letter for 3 months has just an appointment time and nothing else - not particularly...

Hi all, Hoping for a bit of advice/reassurance. Feeling a bit overwhelmed and very very sad. Bit of background - type 1 DM 22 years, other than mild background changes after 15 years no complications. HbA1c values a bit variable but not too bad - ranging from 7.5 - 8.5% last few years...