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5 year old trying to get her seen

Discussion in 'Parents' started by Tanithb, Sep 22, 2017.

  1. Tanithb

    Tanithb · Member

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    Hi all iv been fighting to get my child diagnosed for a while she's now and had been suffering with her blood sugars since 9 months keyyotic hypoglicimia mostly us catching lows when shes ill or feeling off last week she was 1.3 hospital give her 1 4th of dextrose gel and she went up to 10.2 they sent docs a report saying she's diabetic then yesterday she was at 1.6 so we give her choc digestive and vimto she went up to 6.8 good so she then had her brekki frosties and after that she was at 17 she's never ever been this high so went docs and the nurse said we need to come to the hospital and she said it's diabetes and will refer her to the clinic for a formal diagnosis good so at the hospital she had her bloods done they was 11 all she had was some harriobs night time she was 9 before bed then this morning she was 3.9 she had 3 rounds of toast and some fresh juice and she went up to 7.9 after 30 mins and 60 mins 7.7 is this normal I through it's a big jump for just toast seen as she's not yet got a diagnosis what do you all think hubby is type 1 only diagnosis in jan this year so new to us he's bloods were 23
     
  2. Tanithb

    Tanithb · Member

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    She's just had very little dinner and a few Smarties and at 9.9 xx
     
  3. catapillar

    catapillar Type 1 · Well-Known Member

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    What is it you are fighting to get your child diagnosed with @Tanithb ?

    Keytotic hypoglycaemia is kind of the opposite of diabetes. Diabetes is a condition of high blood sugar, hypoglycaemia (obviously) is low blood sugar.

    With random blood sugars (like your daughter is being tested with) the level to cause concern about diabetes is anything over 11.1. Your daughter appears to have had only one result over 11.1, you mention one result at 17 - did you wash her hands and test her again to check this reading was correct?

    Diabetes isn't diagnosed on one random blood sugar over 11.1 if there aren't any symptoms of diabetes. Does your daughter have diabetic symptoms?

    Has your daughter had any further tests to investigate diabetes? Has she had a hba1c test?

    It's perfectly normal to get rises after eating, a non diabetic person will spike into double figures occasionally after eating something particularly high carb. If your daughter is having hypos caused by keytotic hypoglycaemia her body's response to the hypo will be to produce adrenaline, which causes the hypo symptoms and also makes you insulin resistant, her body will also stop producing insulin when hypo because it doesn't want to be hypo anymore so it's not really a shock, or necessarily indicative of diabetes, that she goes high in the aftermath of a severe hypo (and 1.3 is a severe hypo).

    She obviously has some disordered blood sugar, but this could be more related to the hypoglycaemia than any putative diabetes. If she doesn't have symptoms and you are under the care of an endocrinologist why not just wait to discuss with the specialist
     
  4. Tanithb

    Tanithb · Member

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    Hi she's had a few highs of 10 over the months and then the last two days was the 17 and 11.2 yeah we washed her hands we Evan checked the bloods twice be on the safe side I want her have the hba1c test as know that will rule out it all are nurse is happy to send her for it as she thinks she's a diabetic and the hospital don't agree she's had keytotic hypoglicimia since she was 8 months old up until last year she would only go up to 6 max with her bloods this year had been a few 10s then the 17 and 11 had a few 9s to xx
     
  5. Tanithb

    Tanithb · Member

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    She is under them and I will be speaking to then also thank you I hope she hasn't got it like her dad just a massive panic when her bloods was at 17 xx
     
  6. Binary

    Binary Parent · Well-Known Member

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    If your that concerned then you could consider buying a couple of Freestyle Libre sensors which can be used with an android phone to monitor bloods 24/7. A couple of sensors would give you 4 weeks worth of data and would hopefully give you peace of mind or give you some real evidence to discuss with consultant/GP or Nurse with. There is nothing like concrete evidence to focus the mind.

    It would show if any highs directly followed a low as suggested by Catapillar. I would recommend that you also keep a food/drink diary during this period.

    The Libre is due to be available on the NHS from 1st November although it will probably be a lot longer before the majority of people can get it this way. While it was designed with Diabetes in mind I see no reason why it can't be a valuable tool for someone with who has Keytotic hypoglycaemia.
     
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