I feel so excluded from the diabetes world having MODY. Every time someone asks what type they just go oh you must be type 1, even doctors and nurses do it. I feel like the only MODY in the world. So if anyone else is a MODY diabetic I would really like to talk???
Anyone else MODY?
- Thread starter Abstalee
- Start Date
Hi
I have been diagnosed with mody diabetes. There are different types of mody and I am unsure which type. I am diet controlled.It appears to be a rare form of diabetes so I am keen to hear your experiences.
I have been diagnosed with mody diabetes. There are different types of mody and I am unsure which type. I am diet controlled.It appears to be a rare form of diabetes so I am keen to hear your experiences.
Hi. I'm MODY. Types vary -- some can be comfortably controlled with sulfonylureas, or even just metformin. I'm nearly 5 years in from diagnosis -- I was initially told I would be on insulin within a year, but I'm still fine on gliclazide.
They can do tests to identify the gene, but this is still very much work in progress and they haven't identified the gene yet for me. They write 'HNF1 alpha negative' on my forms, which just means tested negative for HNF1 alpha -- very specifically unspecific.
The key is simply to follow whatever regime keeps your BGs stable (with plenty of exercise and moderating carbs in diet) and be grateful you're not LADA or T1.
They can do tests to identify the gene, but this is still very much work in progress and they haven't identified the gene yet for me. They write 'HNF1 alpha negative' on my forms, which just means tested negative for HNF1 alpha -- very specifically unspecific.
The key is simply to follow whatever regime keeps your BGs stable (with plenty of exercise and moderating carbs in diet) and be grateful you're not LADA or T1.
I'm Mody. Still get called T1 by my GP and T2 by my consultant. Was seen in Mody clinic in Brighton before I moved though and it's the only thing that's made sense.
No one seems to have heard of it outside of consultants though.
No one seems to have heard of it outside of consultants though.
stallard
Member
- Messages
- 16
- Type of diabetes
- MODY
- Treatment type
- Insulin
You poor things I hope your OK hun its so hard to handle what type mody is it. If you need to talk just write back to me good luck for you both
