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diabulimia

Discussion in 'Type 1 Diabetes' started by sarahpench, Feb 19, 2016.

?

do you think there is enough information regarding diabulima?

Poll closed Feb 26, 2016.
  1. yes

    0 vote(s)
    0.0%
  2. no

    88.9%
  3. do not know what it is

    16.7%
Multiple votes are allowed.
  1. Cj72

    Cj72 Type 1 · Newbie

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    I also did not know that this had a name. I suffered from diagnosis aged 19, intermittently until I was pregnant with my first child aged 28. Initially after diagnosis my control was terrible and I lost 3 stones in a few months. That is what made me do it again and again as when I tried to become healthier and gain better control, I would put weight on and feel unhappy.
    I work as a healthcare professional and had full knowledge of what I was potentially doing to my body. When I went to check ups I would 'forget' my diary and try really hard for the month or two before so that my A1c was a little better. I would lie and say I'd lost weight at weight watchers and was never once challenged. In fact I used to get a pat on the back. I have never told them the truth.
    Thankfully I now have good control, a healthy diet and I exercise a lot. Touch wood I have no complications apart from some early retinopathy changes. Having a family helped me to realise that having a mum around and healthy (but a little overweight) is better than no mum at all.
    I have recently started to take Metformin as well as insulin and I'm crossing my fingers that this will help me lose a little weight. I'll keep you posted!
     
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  2. sarahpench

    sarahpench Type 1 · Well-Known Member

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    Hi everyone been away for my birthday sorry haven't been around much! Would like to say 1St of all thank you to each and everyone of you for posting this is why I wanted this set up to help and support each other call me a sap but feel so emotional at the response we've had makes the hard work worth it ! I've messaged kelly personally because it's already daunting enough being newly diagnosed as we all know. I still find it shocking at the lack of help and knowledge but will do our best to get more awareness and I'm so glad to see you sharing you're stories hope everyone has had a good weekend , have a healthy and happy week, if anyone wants a rant chat or get stuck this week you know where we are xx
     
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  3. sarahpench

    sarahpench Type 1 · Well-Known Member

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    Hiya it's so shocking isnt it the response from medical professionals still shocks me! They have no idea what effects it has emotionally thank you for sharing your story! Welcome to this mad place haha but I am also glad for this forum hopefully it helps xx
     
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  4. lizziewizzie

    lizziewizzie Type 1 · Well-Known Member

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    Hi @sarahpench,

    Well done for trying to increase awareness of this issue. Please let us know of any fundraising events you are part of etc so we can help as much as possible.

    I suffered with an eating disorder for around 12 years before I managed to start recovery about 5 years ago. I was diagnosed with diabetes in December 2015, so am still very new to diabetes. Since being diagnosed I am struggling with my old ED thoughts, carb counting, unit counting and weighing food is all bringing it back to me. I often think about omitting insulin to help lose weight, but I know when I'm older it will have awful consequences so am trying not to. I'm 29 years old, I have a professional job and a supportive partner. Mental health issues and eating disorders can happen to anyone. Awareness and support is necessary and I think you're doing an amazing job. Keep up the good work! xxx
     
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  5. Missy Cat

    Missy Cat Other · Member

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    Hi All

    I was only diagnosed with Diabetes in 2014 so still a newbie really. My DSN did warn me straight away that I would gain weight by going on insulin. To say I was unimpressed was an understatement. In February 2015 I noticed that I had gained weight so I started to miss my bolus when I ate to help lose those pounds. It worked!! This went on for two months before my hubby realised and gave me a "grilling". I slowly got back to taking my bolus again and have managed to maintain my weight. I wouldn't consider myself diabulimic but I think had I not had the help and support from my Hubby then I definitely would have continued down this route. I would like to point out that I only heard of the term Diabulimia a few weeks ago and I am shocked at how many people are suffering. To be honest at the time I thought I was just being "bad" and probably still in denial that I even had diabetes!

    My weight is not an issue at the moment as I am severely ill with Crohns disease but I know that once this is sorted and I have time on my hands (and time to think) then the weight issue will always be in the back of my mind. Right now being in control of the diabetes is very important to me to help me heal and recover from major surgery.

    It's fantastic that we have a topic on here for Diabulimia, heartwarming and sad at the same time. Well done @sarahpench for your hard work and commitment to this!

    Hugs to all xxx
     
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  6. zoze_j

    zoze_j Type 1 · Well-Known Member

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    I just saw this post. Thanks for sharing! The problem with EDs is that you never truly get over it. There's always that voice in your head telling you that you need to lose weight. Ie been struggling a lot lately, but I'm going to speak to my doctor about this med you've mentioned, how long have you been taking it?
     
  7. sarahpench

    sarahpench Type 1 · Well-Known Member

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    Hi everyone hope all has had a good weekend! Been a busy one for me trying to organise a swim at the local leisure centre to raise a bit of money for Dwed hopefully will be in the 2nd week of July I better start practicing now ! Glad everyone's posting here as and have a had a few messages off people saying they are finding it helps having somewhere to chat If anyone is struggling remember we are here for any reason! Proud of you all
     
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  8. sarahpench

    sarahpench Type 1 · Well-Known Member

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    Hi everyone sorry haven't been on here been unwell with dka due to chest infection and steroids! Hope everyone is doing OK ♥ x
     

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  9. himtoo

    himtoo Type 1 · Moderator
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    ouch !!! that looks painful sarah !
    glad you back on -- have missed you :)
    [[[[[hugs]]]]]
     
  10. sarahpench

    sarahpench Type 1 · Well-Known Member

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    Thank you!! Yes very sore arms are so bloody swollen hopefully on the mend now and back with you all xx
     
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  11. AmandaD

    AmandaD Type 1 · Well-Known Member

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    I only became aware of this a couple of years ago. I lost 7.5 stone through restricting my insulin big time, it took me a year. My HbA1c went up to 12.4% . My consultant knew I had taken the hand off my control and said nothing he was just happy I had lost weight. I have now regained 3 stone and am miserable as hell. I still have weeks when I restrict my insulin big time to put me in ketosis. I've tried low carbing, no carbing, high protein the lot and just can't shift weight without restricting my insulin. Its a vicious circle that I feel I am stuck in. Thankfully I have no complications but am fully aware that what I am doing is wrecking my body.................
     
  12. eddie1968

    eddie1968 Type 2 · Expert

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    Never really heard of this and would like to know how prevalent it is. I know some T2's who have bulimia but not playing russian roulette with adjusted/missed insulin doses. Might be a problem to those T2's on insulin taking more than indicated. Interesting. Good luck ! :)
     
  13. JodieAntonia

    JodieAntonia Type 1 · Newbie

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    Hi Sarah,

    I'm a type 1 diabetic since 2012 and I suffered with Diabulimia to the point where I was in a coma. I agree with what you have said, there is no help and support. I was told I was 'non complient' and 'bad' but the truth was I had no control and I wasn't thinking straight. I tried to explain this to people but they told me to stop being silly and It went ignored. I am better controlled then I was but I still have trouble with it but people tell me (including the doctors) that I just 'have to get on with it' and 'not do anything stupid'.

    I don't know if that will help with your research but If you want to ask me any questions just send me a message :)
     
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  14. Pilzy-89

    Pilzy-89 Type 1 · Well-Known Member

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    I have found it hard to find support and others who have suffered with diabulimia but I came across an article today (http://www.mirror.co.uk/lifestyle/health/worrying-trend-diabetics-skipping-insulin-8269372) that shows awareness is being raised and it is recognised (finally). Now that I am looking to start a family I am getting it under control - argue with myself a lot as I have put on 2 stone since taking my insulin as I should, which is hard, but there is a greater goal. I realise how much I have gambled with my future health and hope I haven't done too much damage that will surface later on. I wish I had someone to speak to sooner - it has been 10 years of me neglecting my diabetes and telling myself it's not important as long as I was thin.


    Sent from my iPhone using DCUK Forum
     
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  15. himtoo

    himtoo Type 1 · Moderator
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    thank you so much for sharing that information @Pilzy-89 .
    It is very heartfelt and helpful to anyone reading this sub forum.
     
  16. Cookie16

    Cookie16 Type 1 · Newbie

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    I've been doing this for over 20 years & I still believe In my head insulin makes me fat so I stay underweight with lack of injections. I can hardly bear giving myself insulin as I see it as my enemy. Can't imagine anything changing now but I also know it's a form of self harm with all the complications I have now experienced. My hospital has always been fully aware of this but any of their warnings have never deterred me from my goal ...... staying thin. It's so ingrained in me that I would rather die thin than put any weight on. It's just a way of life now but I always feel guilty as none of my family or friends know & never will
     
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  17. Juicyj

    Juicyj Type 1 · Moderator
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    Hello @Cookie16 - welcome to the forum and thank you for sharing what is an extremely personal story. I am bumping your post as we now have moderators from DWED who are on the site who will respond to your post, so tagging @jacqfromdwed @PurpleStarfromdwed
     
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  18. himtoo

    himtoo Type 1 · Moderator
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    Hi @Cookie16
    I just want to say Hi and welcome --hopefully we can be a shoulder if you need one !!:)
     
  19. jacqfromdwed

    jacqfromdwed Type 1 · DWED Support

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    I understand where you are coming from and it's really easy to believe that things will never get better but it's never too late to make things better. I wonder if you are seeing anyone from the psych side. Its great that you are honest with your D team but really you need psychological specialists to help you tackle this
     
  20. Amandapodevin

    Amandapodevin Type 1 · Newbie

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    I have suffered with this for many years off and on. I'm currently fighting this at the moment and I don't feel like this condition has enough support as it's not recognised enough. I'm t1 on insulin and metformin as I'm now insulin resistant
     
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