Unfortunately, it's the same with any common, "well-known" condition / illness / diagnosis. Re-education is always a part of the diagnosis - and never one that anyone tells you about.
My son was diagnosed with autism around the time Andrew Wakefield (not a doctor, but a liar) faked his test results to suggest that autism was caused by the MMR - and then fled to the States where he hooked up with Saint Jenny McCarthy. Ever since then, the pair of them have been quietly ruining the lives of people with autism, with their special brand of popular hysteria, misinformation and book tours. And then there's the whole Rain Man thing...
My friends have been really cool when it comes to my diagnosis. Not one of them have suggested that I've had it coming or tried to teach, suggest or manage me at all. And they've all been very receptive when it comes to me talking (at times endlessly) about low-carbing (I genuinely believe it's some kind of conspiracy now), medication worries and so on.
I haven't really been out in the world yet, but I plan to self-identify (with a plastic wristband that I can take off when I want) in public, so I probably have the brilliant input of others still to come.
The thing that strikes me, through all of the posts here, is the quiet strength everyone - without fail - has demonstrated. This is a condition that pits us against the world, the media and the NHS. And yet here we all are, defying the lot of them, informed, trying to get healthy, figuring it all out collectively. Everyone wobbles; everyone feels weak or has bad days. I'm so grateful to have found this community of truly inspirational people - I've been able to read all of your stories and, without having to reinvent the wheel, hit the ground running and really take my disease on.
Genuinely, I don't feel I have anything to be ashamed of anymore. I wish I could bottle up and post what I feel to everyone here - especially OP and others who shared their stories and feelings.