Do you have an underactive thyroid?

  • Thread starter catherinecherub
  • Start Date

ewelina

Well-Known Member
Messages
1,354
Type of diabetes
Type 1
Treatment type
Pump
My consultant is ok with NDT but he left it to me. I dont think they can advice on something that isnt officially approved by NHS. Thats why you can get only private prescription for ndt :( Ive started on a cheaper and easier to buy brand from Thailand, but now have prescription for a different brand. I wonder if I notice any difference.
 

ann34+

Well-Known Member
Messages
393
Type of diabetes
Type 1
Treatment type
Pump
My consultant is ok with NDT but he left it to me. I dont think they can advice on something that isnt officially approved by NHS. Thats why you can get only private prescription for ndt :( Ive started on a cheaper and easier to buy brand from Thailand, but now have prescription for a different brand. I wonder if I notice any difference.

Though it is little known, GPs can prescribe, and did do so when i started many years ago, there may have been a letter needed that had to be accepted first, i think, though i am not sure as it was so many years ago. Just found this site- https://healthunlocked.com/thyroidu...d-thyroid-tablets-including-armour-on-the-nhs. It looks like it is more difficult now for new users. This could be partly because the prices have gone up a lot - i imagine this is partly because it is popular and demand in parts of Europe had gone up - at least as far as i understood a couple of years ago. Not very aware of what is happening now.
 
Last edited:

ewelina

Well-Known Member
Messages
1,354
Type of diabetes
Type 1
Treatment type
Pump
Though it is little known, GPs can prescribe, and did do so when i started many years ago, there may have been a letter needed that had to be accepted first, i think, though i am not sure as it was so many years ago. Just found this site- https://healthunlocked.com/thyroidu...d-thyroid-tablets-including-armour-on-the-nhs. It looks like it is more difficult now for new users. This could be partly because it is popular and demand in parts of Europe, as far as i understood a couple of years ago, had gone up. Not very aware of what is happening now.
Its probably the cost which is much higher than thyroxine. Besides as it is not licensed nobody wants to take personal responsibility for the treatment.
 

AndBreathe

Master
Retired Moderator
Messages
11,337
Type of diabetes
I reversed my Type 2
Treatment type
Diet only
Today I had an appointment with an endocrinologist recommended by a friend with Hashimoto. Currently Im on NDT, supplements for vit d and iron and she recommended some further test to check cortisol. Not sure how they treat it to be honest. High level gives symptoms similar to underactive thyroid such as putting weight on, poor concentration and tiredness.
None of the doctors (gp or diabetic consultants who are also endycrinologists ) Ive seen knew or mentioned much about Hashimoto. The appointment I had today was private with a doctor in Leamington Spa and for the fist time I felt I got a good advice on how to treat Hashimoto

Ewelina, when you had your cortisol testing, was it venous blood, saliva or urine?
 

ewelina

Well-Known Member
Messages
1,354
Type of diabetes
Type 1
Treatment type
Pump
Ewelina, when you had your cortisol testing, was it venous blood, saliva or urine?
It was from blood, Now Im awaiting two other tests, 9 am cortisol and one other (probably 24 urinary, but not sure as I cant read the doctors handwriting!)
 

AndBreathe

Master
Retired Moderator
Messages
11,337
Type of diabetes
I reversed my Type 2
Treatment type
Diet only
It was from blood, Now Im awaiting two other tests, 9 am cortisol and one other (probably 24 urinary, but not sure as I cant read the doctors handwriting!)

I've had the blood, but neither other. I have asked for the saliva test, as allegedly, it gives 4 snapshots, as cortisol is at its highest in the morning, then falls during the course of the day and evening. But, you probably knew about the sort of circadian rhythm of cortisol secretion.

Why are you waiting for the tests? Doesn't the Endo just crack on and have them done immediately?
 

ewelina

Well-Known Member
Messages
1,354
Type of diabetes
Type 1
Treatment type
Pump
I've had the blood, but neither other. I have asked for the saliva test, as allegedly, it gives 4 snapshots, as cortisol is at its highest in the morning, then falls during the course of the day and evening. But, you probably knew about the sort of circadian rhythm of cortisol secretion.

Why are you waiting for the tests? Doesn't the Endo just crack on and have them done immediately?
Ive seen endo privately. She's sending letter to my gp requesting these and few additional tests. My regular consultant has never mentioned any of these tests :(
 

AndBreathe

Master
Retired Moderator
Messages
11,337
Type of diabetes
I reversed my Type 2
Treatment type
Diet only
Ive seen endo privately. She's sending letter to my gp requesting these and few additional tests. My regular consultant has never mentioned any of these tests :(

Blimey. I was surprised some of the things I wasn't offered.

My PMI have played silly beggars on all this, which has been frustrating, but that's life.
 

endocrinegremlin

Well-Known Member
Messages
433
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
People telling me how to control my diabetes. My health. Isms. People walking their dogs off leads in illegal areas. Meat that bleeds. Late buses.
I have an under active thyroid and have 75mg levothyroxine a day for it. Without it I was chronically fatigued and combined with dawn phenomenon issues it forced me out of university. Medication and find my limits for activity seemed to find a balance for me but I've never felt 'right since'. I had accepted that but this thread has proved highly informative and I think I will see my GP about more tests. I had to fight tooth and nail to get levothyroxine as my GP was adamant my level wasn't high enough for it and my Endo was adamant I had too many symptoms to ignore it. Interesting.
 
  • Like
Reactions: Freema and Prem51

Prem51

Expert
Messages
7,393
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
*
I have an underactive thyroid and take 175mgm of Thyroxine a day - or I should, I keep forgetting. (Just checked, yes, forgot this morning - take them now, even though it deeps me awake)
I keep my levothyroxine tablets and a glass of water on my bedside table and take it as soon as I get out of bed
 

Winnie53

BANNED
Messages
2,374
Type of diabetes
Type 2
Treatment type
Diet only
I recently watched The Thyroid Secret with Izabella Wentz, PharmD. It's free, and will be re-broadcast online beginning March 1st for 9 days. Typically, 4 or so interviews are available for viewing each 24-hour period. It was excellent. Go here to learn more and to register if interested... http://www.thethyroidsecret.com

Izabella Wentz has a number of books out or soon to be out on thyroid conditions and a website if you'd like to learn more about her. She herself was very ill for many years with Hashimotos.
 

wolfie11969

Well-Known Member
Messages
1,974
Type of diabetes
Type 2
Treatment type
Diet only
I take levothyroxine too. It was discovered when I was in hospital for something else. They tested me as I had repeated bouts of major depression and it is sometimes linked.

We dont get enough help here in the Midlands. I cant remember the last time they checked my levels and they just old me 'here's a medication, take it'. I dont know if it does me any good or not but I take it as I was told to.
 

carol43

Well-Known Member
Messages
1,193
Type of diabetes
Treatment type
Diet only
@wolfie11969
I'm glad for you that they linked depression and under-active thyroid. Normally you would be given anti-depressives. Perhaps you found a rare example of a good doctor.
 
  • Like
Reactions: Prem51

wolfie11969

Well-Known Member
Messages
1,974
Type of diabetes
Type 2
Treatment type
Diet only
@wolfie11969
I'm glad for you that they linked depression and under-active thyroid. Normally you would be given anti-depressives. Perhaps you found a rare example of a good doctor.

obviously a good one - he was a consultant psychiatrist that had read about the link in his monthly magazine. so he tested all his patients. I am talking of a great many years back hee hee, back around 2000
 

Soplewis12

Well-Known Member
Messages
368
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Grumpy People
I went from overactive to underactive in the last few months, GP confirmed antibodies. I experienced terrible anxiety attacks when overactive but now feel much more relaxed even a bit flat emotionally at times. Is this normal?
 
  • Like
Reactions: Prem51 and Freema

Freema

Expert
Messages
7,346
Type of diabetes
Type 2
Treatment type
Diet only
Yes But it is important to get and keep normal levels

Have your Phone alarm remind you more times a day if you forget in the morning Then take it later in the day
 

Winnie53

BANNED
Messages
2,374
Type of diabetes
Type 2
Treatment type
Diet only
@Soplewis12 I pop in and out of subclinical hypothyroid. When I was in my late 20's, I was given a medication that brought on an intense depression until the medication was stopped two or so months later, so I've experienced the extremes. Swings either way are challenging. Right now, my thyroid function is more normal, so I'm enjoying not feeling "overstimulated", which is pleasant for me because I'm an introvert. I'm using this time to take long walks, to read and learn new things, and for reflection. But as I said, I'm an introvert. Not sure what this experience would be for an extrovert.

The good news is that you now know that your thyroid condition is autoimmune which I assume is Hashimotos. An American pharmacist, Izabella Wentz, PharmD, suffered with Hashimotos for ten years, going from specialist to specialist to get the help she needed without much progress because the treatment providers were focused on treating the symptoms not the root cause of the symptoms, or worse yet were telling her it was all in her head.

Eventually, she connected with a health practitioner who helped her restore her health. Following this, she decided to dedicate the next chapter of her life to help others. She started a blog in 2009 I believe, published her first book in 2013, and is coming out with her next book in May. It's titled Hashimoto's Protocol: A 90 Day Plan for Reversing Thyroid Symptoms and Getting Your Life Back. Here's a UK link to her two books: https://www.amazon.co.uk/s/ref=nb_sb_noss?url=search-alias=aps&field-keywords=izabella+wentz

This is from the book description:

Diagnosed with Hashimoto’s at twenty-seven, pharmacist Dr. Izabella Wentz knows first-hand the effects of the disease, as well as the value—and limitations—of medication. The key to improved health, she argues, involves lifestyle interventions. In Hashimoto’s Protocol, she outlines a proven treatment that has helped thousands heal and many others feel better—in as fast as ninety days.

Drawing on her own personal experience as well as her work consulting with thousands of patients, Hashimoto’s Protocol offers a practical pathway for healing and reversing the autoimmune damage at the root of the disease. The first step is a quick-start two-week detox that includes foods to eat and inflammatory foods to avoid, advice on supplements to support the liver, and an adrenal recovery plan. Next, readers create a personalized plan with foods, supplements, and other lifestyle interventions tailored to their body’s own unique Hashimoto’s triggers, which they can identify using self-tests included in the book. Hashimoto’s Protocol also features original recipes.

Grounded in the latest science, Hashimoto’s Protocol is the first book to offer a proven protocol by an acknowledged expert in the field to treat this condition without dangerous hormones—and help sufferers reclaim their lives.


I attended her online series "The Thyroid Secret", which included interviews with leading experts. Not sure how much I learned but it gave me a good introduction to what's understood about the condition, also that the foods we eat and the supplements we take can make our thyroid condition better or worse. It was from her or Amy Myers, MD, another thyroid expert, that I was encouraged to take a specific nutritional supplement that calmed my over active thyroid.

I've already pre-ordered the book. Just waiting now for it's release in mid-May. What I like about Dr. Wentz is that she really digs into the research and understands it! And with that information and her many years of experience working with clients, she's teaching us how to restore our health, so we can resume our lives. Can't say enough good things about her work. And it all starts with the right form of thyroid hormones, changes to the diet, and a few specific nutritional supplements. :)
 
  • Like
Reactions: Prem51

Soplewis12

Well-Known Member
Messages
368
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Grumpy People
Yes But it is important to get and keep normal levels

Have your Phone alarm remind you more times a day if you forget in the morning Then take it later in the day
I always take the levothyroxin first thing, along with insulin, statin & blood pressure tablet x
 
  • Like
Reactions: Prem51

Soplewis12

Well-Known Member
Messages
368
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Grumpy People
@Soplewis12 I pop in and out of subclinical hypothyroid. When I was in my late 20's, I was given a medication that brought on an intense depression until the medication was stopped two or so months later, so I've experienced the extremes. Swings either way are challenging. Right now, my thyroid function is more normal, so I'm enjoying not feeling "overstimulated", which is pleasant for me because I'm an introvert. I'm using this time to take long walks, to read and learn new things, and for reflection. But as I said, I'm an introvert. Not sure what this experience would be for an extrovert.

The good news is that you now know that your thyroid condition is autoimmune which I assume is Hashimotos. An American pharmacist, Izabella Wentz, PharmD, suffered with Hashimotos for ten years, going from specialist to specialist to get the help she needed without much progress because the treatment providers were focused on treating the symptoms not the root cause of the symptoms, or worse yet were telling her it was all in her head.

Eventually, she connected with a health practitioner who helped her restore her health. Following this, she decided to dedicate the next chapter of her life to help others. She started a blog in 2009 I believe, published her first book in 2013, and is coming out with her next book in May. It's titled Hashimoto's Protocol: A 90 Day Plan for Reversing Thyroid Symptoms and Getting Your Life Back. Here's a UK link to her two books: https://www.amazon.co.uk/s/ref=nb_sb_noss?url=search-alias=aps&field-keywords=izabella+wentz

This is from the book description:

Diagnosed with Hashimoto’s at twenty-seven, pharmacist Dr. Izabella Wentz knows first-hand the effects of the disease, as well as the value—and limitations—of medication. The key to improved health, she argues, involves lifestyle interventions. In Hashimoto’s Protocol, she outlines a proven treatment that has helped thousands heal and many others feel better—in as fast as ninety days.

Drawing on her own personal experience as well as her work consulting with thousands of patients, Hashimoto’s Protocol offers a practical pathway for healing and reversing the autoimmune damage at the root of the disease. The first step is a quick-start two-week detox that includes foods to eat and inflammatory foods to avoid, advice on supplements to support the liver, and an adrenal recovery plan. Next, readers create a personalized plan with foods, supplements, and other lifestyle interventions tailored to their body’s own unique Hashimoto’s triggers, which they can identify using self-tests included in the book. Hashimoto’s Protocol also features original recipes.

Grounded in the latest science, Hashimoto’s Protocol is the first book to offer a proven protocol by an acknowledged expert in the field to treat this condition without dangerous hormones—and help sufferers reclaim their lives.


I attended her online series "The Thyroid Secret", which included interviews with leading experts. Not sure how much I learned but it gave me a good introduction to what's understood about the condition, also that the foods we eat and the supplements we take can make our thyroid condition better or worse. It was from her or Amy Myers, MD, another thyroid expert, that I was encouraged to take a specific nutritional supplement that calmed my over active thyroid.

I've already pre-ordered the book. Just waiting now for it's release in mid-May. What I like about Dr. Wentz is that she really digs into the research and understands it! And with that information and her many years of experience working with clients, she's teaching us how to restore our health, so we can resume our lives. Can't say enough good things about her work. And it all starts with the right form of thyroid hormones, changes to the diet, and a few specific nutritional supplements. :)
Thanks for all of this information, I'll look in to it. I am tired at times, body hair seems to be much slower to grow, my head hair is slightly dryer but it is the emotional side I've found quite difficult. I'm often told that I have infinite patience & a lovely understanding personality but feel as if I'm changing, I've less tolerance & always feel slightly worried, with nothing to worry about. I'm on 50mg levothyroxin & have been waiting 7 weeks now for an urgent appointment with endocrinologist. But will get there!
 
  • Like
Reactions: Prem51

Winnie53

BANNED
Messages
2,374
Type of diabetes
Type 2
Treatment type
Diet only
It's hard when we don't feel like ourselves. During these periods I tend to isolate. Though I sometimes participate more on the forums to take a break from myself.

I focus what energy I have on getting quality sleep, a huge, ongoing battle for me. If I'm tired during the day, I might climb into bed with a good book in the hope that I'll drift off to sleep for a while. I also try to shop for and eat healthy foods. Walks allow me to move and breath in a different environment.

Spending time once a week with friends helps more times than not (but I should add that we meet weekly specifically for the purpose of supporting one another. We take turns following a format: 1) best and worst; 2) progress toward previous week's goals; and 3) goals for the upcoming week. The quality of the conversations vary. Sometimes we're serious, focused, really try to listen to one another. Other times we're off task and just plain silly. It's usually a mix of both. These meetings don't always result in feeling better, but we share a meal and the weekly connection is good.

Waiting is the worst. I don't like that feeling of my life being on hold like that. Hope you get to see the endocrinologist soon.