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explaining what it's really like to live with Type 1

Discussion in 'Type 1 Diabetes' started by himtoo, Jun 29, 2016.

  1. kev-w

    kev-w Type 1 · Active Member

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    I read this yesterday, and for a hard faced bloke was surprised to see a couple of tears land on my keyboard. :(
     
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  2. Snapsy

    Snapsy Type 1 · Well-Known Member

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    Oh bless you @kev-w . Am passing you a virtual tissue... and every good wish for a lovely weekend.

    Love Snapsy
    :):)
     
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  3. Gaz-M

    Gaz-M Type 1 · Well-Known Member

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    My exerience of living with type1 diabetes for 45 years.... well my memory is broken, I read today about testing urine with tablets which I can but just remember, the guilotine I just remember (Dr Lillington gave me that he was my favourite Diabetic Dr 1979 I think) and talk of coma's, I have had erm 5-8 episodes of this which I do not like to think about or tbh can remember any of them or the coming around of them but I Do remeber shame I have felt when having 2 in public and coming round in a hospital. In my old job my boss was full up to date with diabetes as I kept her upto date etc, the new job I am in well thats totally different, I tell them I'm hypo they just look at me and I sometimes feel like just not treating it so they can deal with the fallout from it..... Hypo's in public places ......... I have had 7 biggies as far as I know ...... private bad hypos ............ maybe 25-30 (this was when I was younger and not testing and drinking alot )...................... rushed into hospital 8 times ............ now suffer from Diabetic neuropathy, Hyponatraemia, Thyrotoxicosis, Bilateral cataracts, Total prosthetic replacement of hip joint (right Hip)
    . Avascular necrosis of bone (left hip), Acute exacerbation of chronic obstructive airways disease (non diabetic related), maculopathy, I could go on but writing this is erm disturbing if yo know what I mean~?.......... I like to think of myself as normal (wtf is that) haha
     
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    #223 Gaz-M, Nov 17, 2017 at 10:31 PM
    Last edited: Nov 17, 2017
  4. Bertyboy

    Bertyboy Type 1 · Well-Known Member

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    I had to laugh when diagnosed and the nurse said "the really good news is that you now don't have to pay for any precriptions!".
    I'd never had a prescription in my life so I struggled to take the positive out of it.
    I suppose I should be grateful anyway....as the OP says, in most countries, you'd be paying for the insulin, needles, strips etc. either subsidised or at retail price.
     
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  5. nessals946

    nessals946 Type 1 · Well-Known Member

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    Ive had diabetes for 42 years,my memory is shot to hell but i didnt realise it could be related to diabetes.Could it be the amount of severe hypis over the years? I suppose your brain is affected more than you realise.I did read somewhere that diabetics have a higher risk of developing dementia.Scary.
     
  6. slaxx

    slaxx Type 1 · Active Member

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    saw this connection too from a page on dementia. either being a diabetic or... well i suppose you're a diabetic if you have too much sugar in your blood. hope more research is done on this. i'm honestly afraid for my parents.
     
  7. Bud1979

    Bud1979 Type 1 · Active Member

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    I’ve got nine so I assume that between us we have 19, but with care you can keep all of your digits. I blame loosing mine on my border collie, I took him out a walk and just put my lace in my shoe and hey presto blister, ulcer, 6 weeks of iv antibiotics then amputation. I must say the useless chiropractor was probably to blame she just put a plaster on it and come back in a week, it then broke down and my leg started to swell but she continued and what is the absolute irony I trusted in her. I still have 10 fingers and my own hair so I’m still ahead.
     
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  8. Gaz-M

    Gaz-M Type 1 · Well-Known Member

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    Ive had diabetes for 42 years,my memory is shot to hell but i didnt realise it could be related to diabetes.Could it be the amount of severe hypis over the years?

    Yes it could be
     
  9. NoKindOfSusie

    NoKindOfSusie Type 1 · Well-Known Member

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    Are blisters something I need to be scared of?

    This is diabetes: exercise, except the drugs won't let you, and don't get blisters or you'll have your toes amputated? Is that what it is?
     
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