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FREESTYLE LIBRE ON SALE!!!!

Discussion in 'Blood Glucose Monitoring' started by Emmotha, Oct 16, 2014.

  1. winephil

    winephil Type 1 · Member

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    I live in France where blood test strips are provided free on the health care system. But the Freestyle has to be purchased on the intenet as in UK . I have tried it five times but each time given up because results never equal my Contour Next USB sometimes 20% below or above. I would like to know if Abbott have the intention of producing improved versions. My consultant is positive about using it but I have to pay.
     
  2. Scott-C

    Scott-C Type 1 · Well-Known Member

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    Phil, I think it's important not to expect too much from it. I view it as giving me, not an answer, but more clues. If I see a 5 with downward arrow, I know it's more likely to be a 6 but that arrow makes me pay way more attention to a possible hypo. Strips just don't do that.

    Meter measures capillary blood, libre measures interstitial fluid. The chances of those two entirely different fluids in different body compartments being the same are practically nil. If you get the same number it's fluke or coincidence. It's no reason for writing the libre off: there is a correlation between the two fluids. Both dexcom and medtronic require calibration on the machine. Even though libre sensors are factory calibrated, in practice I just calibrate them in my head. For people like me who have lost a lot of hypo awareness, I love getting a 30 minute heads up on possible hypos.

    There's a book Wiley in vivo glucose sensing which seems to be the standard reference work in the area. Haven't bought it but there's enough in the free peek inside on Amazon to get the gist of just how damned complex this is. You're putting complex chemistry/engineering inside complex biology, the latter of which then tries to attack the former and generally frustrate what it's trying to do, yet it still gives me a good enough ballpark figure to allow me to make decisions in conjunction with strips about what to do next.

    Compared to the days of colour changing strips, it's a bloody miracle.
     
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  3. Notorious

    Notorious Type 1 · Active Member

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    Hello! I am wearing a sensor that is 5 and a half days out of date, still ticking and still really accurate. Is this a record? I am using Glimp to monitor it. I'm wondering if I somehow managed to restart it. No idea how if so.
     
  4. slip

    slip Type 1 · Well-Known Member

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    Just to confirm that you are also doing blood finger prick tests to confirm the sensor is pretty accurate? There could be 3 things that are causing the rise you mention.

    1) You're insulins are bad, either the novorapid or the lantus, suggest you change cartridges/get a new batch.
    2) You may be coming down with an illness
    3) You may have bad injection sites, do you rotate injection sites?

    All the best
     
  5. ann34+

    ann34+ Type 1 · Well-Known Member

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    My experience, having only used it just over a week - unlike you, I find it marvellous!! Libre = having freedom, and that is just what its use gives!
    It is the graphs and patterns that are the most marvellous thing about the Libre - and the ability to do numerous scans in order for the machine to build up the graphs.
    Within a just over a week i have seen patterns i never knew existed even though i used 10 Contour tests a day! I feel better, not tired and exhausted by constant rises and fall in blood glucose. Yes, i was supposed to be 'reasonably well controlled', the graphs show i was not at all.

    Now, we can have this valuable resource, showing things we may never have been aware of, and it is up to us to tweak things, esp pump base rates, if we are lucky enough to have one, and also meal times and bolus times - each tweak done slowly for safety - and each tweak produces more graphs! Within a week, from swings up to 13-15 mmol/l up to twice a day, and a couple of minor lows i would not have recognised, i have had one whole day flatlining within my target.
    If only i could have it on our NHS, i could use it and drastically cut my strip use. I am using it short term for other health reasons.
    Worry is reduced - worry re hypos I do not recognise, and worry about the sudden highs which made me feel so unwell - As long as I work with the fact that it does not measure blood.
    I have had access, over the years, to a number of different blood test strips/monitors, and have discovered none give results the same as the others. But each machine is consistent with itself. Yes, for me, the Libre reads approx 0.4 mmol/l to 1.5 mmol/l less than the Contour Next, BUT the Contour Next consistently reads approx 1.0 mmol/l more than the Compact blood tester i use occasionally, and also the One Touch. I have learnt to work with each blood tester i have used, over nearly 40 years. Within 3 days i had learnt to work with the Libre - My targets are set about 1.0 mmol/l less than the Contour Next USB ones - having never used Libre before i was very careful , using 12- 14 Contour tests a day for 2 days at the same time as i did scans to check. I now have cut my strip use by half, and still going for less, as i become more confident.
    I am not sure i could use it all the time due to arm soreness, but as a learning tool i have found it faultless
     
    #4185 ann34+, Mar 19, 2017 at 7:14 PM
    Last edited: Mar 19, 2017
  6. ann34+

    ann34+ Type 1 · Well-Known Member

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    Hi, Pinewood, I have not yet noticed that. I have phoned re my arm burning almost immediately - i am sensitive to lots and have allergies - and now have arm pain, that gets worse if i type, etc. They have already offered to give a replacement, and seem very good, telling me to remove if did not get better, sometimes it calms a bit, , i am sticking it out until i speak again to libre on monday, as i find everything else about the libre so good, as just mentioned above.
    Where do you get Compeed, and how do you use it?
     
  7. ann34+

    ann34+ Type 1 · Well-Known Member

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    Hi, see my post - buy it if you can afford it! So good as a learning tool i do not know why all can not be offered even a 2 month trial. I have a feeling now that it, for me , is MORE accurate than the Contour next usb. Esp as regards early hypos.
     
  8. ann34+

    ann34+ Type 1 · Well-Known Member

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    i know you wrote this ages ago, but i am pretty sure, in my case, that i am sensitive to both the filament and the adhesive, and the bit of plastic that touches the skin.
    Having loved my Libre so much for a week, i am fed up that i could no longer bear the burning and pain. And the feeling my body was rejecting it, and wanted me to remove it immediately. I have now removed it, the plaster was so stuck i had to use olive oil soaks to remove. Round the edges is reddened and the skin is raised in the centre in the exact shape of the plastic that touched the skin, the whole area is burning, i had this with a Looper heart monitor, but this is worse, and the pain seems in the arm , and seems to be affecting the muscle, and has worsened since taking the libre off. I will try again in a few days if things go back to normal and i get Compeed.
     
  9. jackois

    jackois Type 1 · Well-Known Member

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    Hi Ann,

    I never did make up my mind about it.

    I have found that if I leave a break of a month or so at a time, I can tolerate a sensor for a fortnight and now just use the Libre occasionally, whilst I watch and wait for the other promised systems to become available.

    Luckily my type one is, currently, pretty stable and, if I exercise daily, can manage without a bolus for breakfast and lunch and around 15 units with my evening meal. My long acting, lantus, seems to keep me steady at 14 units.

    Such a shame, as I loved being able to scan and get a reading and I'm sure it contributed hugely to getting myself to a steady state after diagnosis.

    Fingers crossed you get it to work for you without a reaction.
     
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  10. ann34+

    ann34+ Type 1 · Well-Known Member

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    Hi, jackois,
    Thanks for your reply. and the information regarding time out allowing you to tolerate the occasional Libre.
    I have now got a replacement sensor coming - Libre have good customer services. I hope to try a skin covering when my arm recovers, but not sure it will work, as most of the pain at present seems to be inside my arm.
    I agree with you, it is such a shame we cannot use Libre all the time. Its good, though , that it helped you so soon after diagnosis, it would have greatly helped me years ago - with only 3 or 4 strips per day max, and nurses saying less were fine, and advising only testing every other day, or less, and telling me i needed to just lead a normal life, it was a different world. To me, Libre use actually allowed a more normal life, as a scan took no time and removed my worry re my hypo unawareness.
     
  11. Lenah_

    Lenah_ Type 2 · Active Member

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    In the UK, are Libres available in chemists or similar? I have a friend travelling there shortly who would be willing to pick me up some if they can swing into a storefront and grab them off the shelf.
     
  12. Books1

    Books1 LADA · Well-Known Member

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    I've not seen them in chemists only ever bought on line direct from Abbott
     
  13. robert72

    robert72 Type 1 · Well-Known Member

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    No, they are currently only available from Abbott https://www.freestylelibre.co.uk
     
  14. RogerRam

    RogerRam Type 1 · Active Member

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    Hi just had this
    This is a DCUK test post, aligned to test condition 129
    I have now been using the Libre for months & wouldn't want to be without it-so useful. I use a Samsung S7Edge to monitor on the move & double check with my Accu-Chek Mobile if need be. So doing anything physical-mowing, sawing, log-chopping/splitting, taking builders' rubble to the dechetterie (tip) or clearing the fosse (ditch) tends to start a low arrow so I can be OK.
    The good news is it may be free from 1 June 2017-I have a rendezvous with my local doctor tomorrow because I think I need a referral to a specialist-not seen one for years!

    https://www.federationdesdiabetique...ibre-sera-rembourse-a-partir-du-1er-juin-2017

    All the best,

    Roger
     
  15. RogerRam

    RogerRam Type 1 · Active Member

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    Hi just had this
    This is a DCUK test post, aligned to test condition 129
    I have now been using the Libre for months & wouldn't want to be without it-so useful. I use a Samsung S7Edge to monitor on the move & double check with my Accu-Chek Mobile if need be. So doing anything physical-mowing, sawing, log-chopping/splitting, taking builders' rubble to the dechetterie (tip) or clearing the fosse (ditch) tends to start a low arrow so I can be OK.
    The good news is it may be free from 1 June 2017-I have a rendezvous with my local doctor tomorrow because I think I need a referral to a specialist-not seen one for years!

    https://www.federationdesdiabetique...ibre-sera-rembourse-a-partir-du-1er-juin-2017

    All the best,

    Roger
     
  16. slip

    slip Type 1 · Well-Known Member

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    In deed I saw an article saying it would be available on prescription in France in June - now NHS take note!
     
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  17. winephil

    winephil Type 1 · Member

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    WE have now been told that from June 1 2017 the Freestyle Libre will be available under the French healthcare system and reimbursed 100% up to 26 capteurs a year. I have used it from time to time buying from the internet but I have asked my diabetic specialist to give me the prescription as soon as she can. I look forward to this making my control very much easier.
     
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  18. Scott-C

    Scott-C Type 1 · Well-Known Member

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    Great find, @RogerRam !

    Ran it through google translate, there's a paragraph headed, "Can I continue to receive support for another blood glucose meter?", and the answer seems to say (on google translate, remember), that the support excludes use of another meter but where manufacturer in clinical situations recommends blood tests, strips should be limited to 100 per year.

    So there's maybe some giving with one hand and taking away with the other! I want both!
     
  19. RogerRam

    RogerRam Type 1 · Active Member

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    I think for me it shows bureaucratic misunderstanding of how the Libre works! With UK driving law you cannot rely exclusively on the Libre when driving due to its relative inaccuracy & the delay comparing interstitial to blood glucose. Seems that their thinking is one or the other. I use a French Surface laptop with AZERTY keyboard & Windows 10 & MS Translate says the same as Google Translate.
    However, currently I use the Accu-Chek Mobile with attached finger-pricker (6 needles) so there are 50 tests per cassette. Having used the Libre for months I have a stockpile of cassettes & in any case the kit is only £30, & 2 cassettes about £36 from Amazon UK so not a big deal.
    See my doctor tomorrow maybe €27 but appointments booked online easily & I'll keep you posted. There's an Abbott Freestyle Users group on Facebook who are very helpful with the 'wrinkles' of the system-stuff like you must use the Reader to start the Sensor & then your Android phone, other way round & you can't use your Reader. With the Glimp app you can sometimes get longer than 14 days. There's also Libre Geeks group who can help with re-programming a Sony watch to remotely monitor sensors-handy for worried parents etc. It's beyond me!
    All the best,
    Roger
     
  20. Hill28

    Hill28 Type 1 · Well-Known Member

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    Is there still no App for IOS available? I´m about to order my 4th reader already since the button and/touchscreen break down/become less responsive rather quickly.

    By the way, I finally found a way to control my glucose values. I´m now between 4,1 and 9,9 mmol 85% of the time. Also thanks to the Freestyle Libre

    To achieve this:

    - I skip breakfast almost completely. My Bg already automatically starts to rise as soon as I get up without eating. So when I get up I take 10 units Lantus and 3 units Novorapid. This stops the rising and will start lowering bg slowely. Sometimes I take a glass of low calerorie drink, like Nalu, (max 4g carbs/100ml) to get a flat line.

    - For lunch, around 12:00, I take a salad (almost) without carbs. So, for example a salad with cheese or chicken. I take 2 or 3 units Novorapid, depending if there are croutons or other small amounts of carbs in the salad. My bg will stay flat.

    - Around 15:00 my bg will start to fall. I eat, not too heavy, sandwiches/wraps, and get about 5 units Novorapid. BG will stay stable.

    - Before dinner I take another 10 units of Lantus and about 5/6 Novorapid. Well if it´s a pizza more;) BG will stay rather flat.

    - Before I go to bed, around 22:30 my bg might be falling, which I compensate with AA-drink, or Belvita breakfast biscuits (so I finally have breakfast:D). Anyway, any not-too-complicated- carbs that work rather quickly and don´t last too long will do

    - Around 2:00 AM I do a nightly check, to avoid hypo´s. Normally it´s fine. But when I´m on less carbs for some days in a row, I might have to get additional sugar.

    It takes some effort and hunger in the first part of the day, but I´m feeling a lot better. I also noted that I can eat a bit more carbs for about a day, after going to the gym.
     
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