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Type 1 FreeStyle Libre

Discussion in 'Ask A Question' started by joshluck, Dec 7, 2017.

  1. joshluck

    joshluck Type 1 · Well-Known Member

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    I seen an article on line yesterday stating that the FreeStyle Libre is available on the NHS, if so is it worth looking into getting it.
     
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  2. Rokaab

    Rokaab Type 1 · Active Member

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    Well, I definitely find the Libre very useful, however most CCG's aren't prescribing yet, have very strict guidelines on who can have it or just aren't going to prescribe them as far as I can see :(.
    You can always ask your DN/doctor but I wouldn't be surprised if you're told no.
     
  3. himtoo

    himtoo Type 1 · Moderator
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    hi @joshluck

    given you current circumstances I would see it as an essential bit of kit -- I think it could help you soooooo much

    talk to your DSN and start with asking for a trial !!!!!
     
  4. joshluck

    joshluck Type 1 · Well-Known Member

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    I phoned my doctors today I have an appointment to discuss it hopefully I can have it, I think it will help massively. If not I’ll speak to my DSN, thanks.
     
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  5. Edge

    Edge · Member

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    I went onto the Freestyle Libre only two days ago but already I have found benefits. It provides a great level of detail about how your glucose levels are rising and falling which gives good insights and helps with planning. The ability to scan many times a day is great, it’s so much more convenient.

    My understanding is that many NHS trusts in different counties have not approved use of the libre on prescription, and that is true of Hertfordshire I believe as I cannot have this on NHS myself. I guess they are still working out who needs this device (e.g someone will low warning signs that has hypos) and the cost/benefits v test strips.

    The sensors are expensive at over £55 each every two weeks, if you are paying yourself. Also, it’s frustrating for me as a Mac user that there is no driver software and no Apple iPhone app either (windows and android phones only)

    All said, you may be able to get a free starter pack which comes with one sensor. If so, I recommend using it for 14 days and see how it works out for you.
     
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  6. frazerl

    frazerl Type 2 · Member

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    I tried the libre for about 4 months when I was getting really low about testing all the time and I really loved it. Just a couple of niggles if you catch it on something and comes off then thats £50 odd down the drain. Also DVLA require a finger prick test so if you are on insulin and drive you still need test strips. You can get the stips for the Libre but I just figued for me pointless if I still have to test as normal.
     
  7. Snapsy

    Snapsy Type 1 · Well-Known Member

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    They come down to £50ish if you tick the VAT exemption box at checkout (which you're entitled to do).
    :)
     
  8. Visitor

    Visitor Type 2 · Member

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    I. Ive been testing one of these for the past few days, a nurse fitted the first sensor and it fell off within the first 20 min of use, so i couldnt get a reading as you have to wait 30 min.

    Having complained to Abbott, they sent me another sensor, this time i fitted it, and it lasted 3 days before falling off again.

    This device has a pin, this sticks into your arm and gets below the skin, and this is why you need to wait the first 30 min before use

    The device is reading higher than most meters about 2 mmol but that's not bad.

    Yes you can read 100 times a day if you want, and read when you would normally need to wait.

    Not yet on the nhs, and i don't think the type of person who might fit in to get one of these will be any of us.

    In fact i dont think these will be approved at all, considering the very high running cost and the sensor falling off regular, these are just toys, gimmicky things with no real help at all

    If it falls off, throw it away, it will never go back on or work again

    Stick with what you know, its not that bad having to prick your finger to get a reading, and you know these devices are all proved to work well, unlike this xxxxk from Abbott, who should have done a lot more work before trying to make themselves rich
     
    #8 Visitor, Dec 8, 2017 at 8:04 PM
    Last edited: Dec 8, 2017
  9. brett

    brett Type 1 · Well-Known Member

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    Day 3 of my trial using it and since day 2 never been out of range from my blood sample by more than 1.5mmol, which I still have to do for driving. Closest was 0.2mmol. Loving the arrow showing which way bloods are going. Very happy with it at the moment.
     
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  10. EllieM

    EllieM Type 1 · Active Member

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    Just be aware that they're not always accurate, particularly when your blood sugar is low or changing fast. There's a known ten minute delay between the libre result and your actual blood sugar, and they also tend to be very inaccurate when the sensor is first applied (many people stick them on for 24 hours before activating the sensor). So you definitely need to do occasional blood tests to check that they're reading correctly.

    I started using one in June 2016 and had 8 months of being the happiest diabetic known to mankind, it was life changing. Unfortunately after that I developed an allergy to the glue used on the sensor and found that the sensors started to read much much lower than my blood sugar, so that the sensor became useless at readings below about 5 (since they would read anything between LO and 4 at this point). I should probably start my own thread to discuss this, however.

    When it was working properly I found the overnight readings really really useful, as you can wake in the night, do a quick swipe of the meter, and have immediate reassurance about night time hypos...
     
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  11. urbanracer

    urbanracer Type 1 · Moderator
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    I am a new user, currently on my second sensor. Both sensors have exhibited similar behaviour. I have discovered that when it tells me I am at 3.0mmol, I can finger prick and my normal meter reads above 5.0. It seems to correspond with reasonable accuracy in the mid range (6s to 8s) and then goes high, telling me that I am at 14 when a finger prick reads 10ish.

    For convenience and trending I think it's great but I wish they could do something about the accuracy.
     
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  12. Edge

    Edge · Member

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    Did you find it helped with improving your control overall Frazerl? One thing that libre has highlighted (and I check with a finger prick when neck) was that I seem to have the odd day where I can have same breakfast as anothe day, do same insulin, one day perfect, another day it’s as if I never did a jab of fast acting. I don’t think there is a problem with my nova pen 5 so trying to discover how that has happened twice in. Week.

    know I need to finger prick also, but I like the fact I could use the libre a lot more often. (Between times) and hopefully I will not knock it off (seems it would need a good wack)
     
  13. Edge

    Edge · Member

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    Actually, I did have my first difference of 2mmol, but otherwise mine has been reasonably accurate. I am keeping most of my readings between 4 and 8 mmol now, with a bit of spiking after eating, but this device has helped me control the spikes a lot better. It’s early days so maybe I will feel different in another few weeks. Time will tell.
     
  14. Rokaab

    Rokaab Type 1 · Active Member

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    Personally I find they stick to me like glue - even after two weeks it can take some effort to get the thing off.
    I have only knocked one off and that was because I walked into the edge of a big wooden crate and the sharp corner of said wooden crate hit just below the sensor and knocked it off - the stinging on my arm was caused by the big wooden crate - at this point the sensor only had one day left on it anyways so I wasn't really fussed about it.
    One sensor I had to remove early because it failed was a complete nightmare to unstick, I think I pulled a whole wodge of skin off in the process - Abbot replaced the sensor for me.
    I think it probably depends on your skin type as to whether it sticks very well.
    And personally I've found using them very informative for me (means I check my sugars far more than before for a start) and has meant I can get better control (as shown by my latest hbA1c) - far more than a gimmick for some.
     
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  15. frazerl

    frazerl Type 2 · Member

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    I found it was great for my control as it shows which way you are going and could modify my carb intake and or top up novarapid. I had an issue with Insulin not seeming to work but now I switch injection sites. I now am mainly using legs and backside at the moment which seems to be better for me.
     
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