I can't control my diabetes at all :(

Beth_Robinson

Well-Known Member
Messages
60
Type of diabetes
Type 1
Treatment type
Pump
I'm 15 with type 1 diabetes, (insulin pump) and I can't control my diabetes. My parents have always brought me up to focus on living life to the full more than controlling my diabetes so my hba1c has been up in aound the 9s which is aweful, sometimes higher. My parents are more concerned about being better than me at controlling it, so for the last year or so i've been doing it all myself. Before they stopped helping, hba1c was around 10, and i got it down to 8, but now it's going up agan and i constantly panic about dying young because of it all. I really need a solid method of controlling it all (nothing to do with pare3nts because even if they agree to help, they are awful and we have so many rows.) I don't get that much help from the clinic, but in all honesty it's more abou the fact that I don't check enough, and I lost my bs checker that goes with the pump which sucks, and my parents wont try to get another because it's my fault. I need a way to eat the right stuff that helps with control, and how to make yourself check more. any tips would be much appreciated, i need to sort it out! I'm happy overall, do a fair bit of excersise (gym, etc) and do fairly well at school, i just don't really get support with my diabetes and i need some help!

In short, what are good ways to lower hba1c overall, eat the right stuff and make yourself check your bs more
Thanks xx
 

carty

Well-Known Member
Messages
3,379
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi Beth
I am sure Daisy will send you the information given to help very soon but I just wanted to say Hi and although I am type2 and old enough to be your Granny I can sympathize with but how you feel .I do think you should try hard to get a meter because without it you cant tell how your BGs are and whether you are going low ,if you have a DB nurse you could ring and tell her that you have lost your meter and you want to control your Diabetes ,you sound like a sensible young person who is mature enough to take charge of your Diabetes .Let us know how you get on and dont give up trying to keep your Diabetes under control
CAROL
 

SamJB

Well-Known Member
Messages
1,857
Type of diabetes
Type 1
Treatment type
Pump
Hi Beth,
You need to get yourself a meter. Go to your GP or your diabetic team. It's vital you get one, as you will not het good control unless you get one.

You need to test before and two hours after eating. If the numbers are consistent then you got your insulin dose right. If not, then you need to tweak things. Try to get yourself into a routine by eating the same quantity of carbs for breakfast, lunch a dinner on a day to day basis.

It's a real shame that your parents don't understand how critical it is that you control your diabetes property. You're still young so if you sort it out now you will be ok. Keep asking questions on here as this place is a great resource.
 

Cody

Active Member
Messages
31
I've been type 1 since I can remember and am 32 only been in the pump for 6 months. YOU MUST GET ANOTHER BG MONITOR AS ITS VITAL INFORMATION IT SENDS AND SAVES ON YOUR PUMP. The pump wasn't an option when I was ur age and u are so lucky to have 1. Best things to eat are things out shops with carbs on labels, u really can't go wrong once u know ur carb to novo rapid ratio the pump does the rest. I personally will never look back to 4 injections a day
 

pumppimp

Well-Known Member
Messages
246
Type of diabetes
Type 1
Treatment type
Pump
Hi Beth,
I know how you feel but things will eventually get better. I think from what you've said you have a meter but it's not just the one that automatically updates your pump. I guess it would be handy to have that but not nesscecary, although just call your pump company up and explain and they would usually be nice and send out another meter for free if your nice to them. Can you set reminders on your pump to test? I can with mine and it's usually a good prompt for me whenever I know I need to test more. If not setting reminders on your phone is another good way. I've found that my pump is awesome with helping with my control but it's only as good as it's user and when you first get it you need to be really in depth figuring out all your ratios basal and bolus settings. As life changes you need to be able to easily adjust your basal settings. People can suggest how things work for them but everyone is different so you need to figure out what your body needs and work to that and this is where the lots of testing comes in. Firstly I would check your basal settings are right for day to day stuff I have 3 different basal settings depending on how busy and stressfull my day will be on top of that I will use temporary settings as well. Moving on from that I would check your ratios are working for you. I use different ratios depending on what sort of day I'm having and when in the day it is. once you've figured out your ratios then foucus on using temp rates and using extended or dual wave boluses etc.
Parents can be tough to handle when your trying to figure all your own stuff out, I'm sure they want what's best for you but just aren't always sure of what exactly that is. Sometimes if it's hard putting your point of view accross when it's people close to you it doesn't always come across the most rational from either side. An option might be trying to write a letter and maybe re reading and writing it so that it's very clam and logical, that way you're more likely to get a logical response and move forward than having more rows.
Don't worry and stress about dying young and getting lots of complications, the thought of things like that should be a motivation in the back of your mind to do lots of testing and work out your levels. Try not to foucus completely on all the negatives, life is a wonderfull gift enjoy all the little positives and the journey it takes you on. I had really bad control from diagnosis 11 until I got my pump at 19. I never had a hbA1c less than 10% my average just before I got my pump was 14%! I did do some damage to my liver and kidneys and eyes but because of my good control now (although still always trying to get it better) my eyes and liver are fully healed up and my kidneys can componsate for the small amount that was done to them.
Good luck with everything I hope you get somewhere there's always plenty of people here if you want to have a good old rant.
Laura :)
 
  • Like
Reactions: gemma_T1

donnellysdogs

Master
Messages
13,233
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
People that can't listen to other people's opinions.
People that can't say sorry.
Beth

Which pump are you on.. Is it the accuchek pump with the remote blood meter?

I believe the remote replacement for this is about £100 and I know hospitals are unlikely to replace them free of charge if they have been lost.

If it is a Normal blood meter, then there are opportunitys to get a free one. You dont need to tell nurse or anyone that you lost your normal one in this case... You could just say to them that you need to have one to keep at school!! Then dont lose it, and use it all the time.

If you have the accuchek pump and its the remote thats been lost then you need to see your diabetic nurse with your parents, so she can explain to them (and you- to take care of it) that it is needed to be replaced with this particular oump.

Hospitals do insist on insurance for insulin oumps.. But I'm not sure if your parents have got insurance, but I dont believe that for the remote control that it would be worth claiming... As your parents would still have to pay some money, and their insurance would go up next year, and following years....
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
Hi Beth and welcome to the forum :)

Here is the information, mentioned by Carol, which we give to new members, which I am sure you will find helpful. Carry on asking questions and someone will answer you.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 

Scardoc

Well-Known Member
Messages
494
Beth,

Like everyone has said - get a new meter!

Also, talk to your parents. I have a 14yr old daughter and however mature or grown up you may think you are you are still a child! I am T1 but wasn't diagnosed until 30 and I take full responsibility for my treatment. I am an adult and can do that. You need help.

Here's the thing about your parents - they love you and want to help. They will spend a huge number of hours, more than you can imagine, worrying about your diabetes and how it will effect your life now and in the future. Trust me, the scariest thing in the world for a parent is having anything wrong with their child.

However, here's the thing about you - your 15. That's a stressful enough time for any child with hormones, socialising and education worries! Throw in diabetes and you really do have the sh*t end of the stick.

What you and your parents need to focus on is that diabetes is a condition you can live a normal life with. You need to take control as you have to live with it and your parents won't always be there. However, you can do that with their help and support. I don't know the best way forward to make them see that. Talking, openly and honestly would be the most obvious way but perhaps with a doctor or diabetes nurse present.

I can perfectly understand how quickly arguments can happen but I your admission that you don't check enough tells me two things. 1. you are an intelligent mature girl. 2. your parents need to be more involved as you are still a child and they should be keeping an eye on you. That's not to say you can't take control yourself, you just shouldn't have to do so at 15.

Finally, perhaps encourage your parents to read some of these posts? They can even post and ask for advice.
 
  • Like
Reactions: gemma_T1

hanadr

Expert
Messages
8,157
Dislikes
soaps on telly and people talking about the characters as if they were real.
Beth
you are very young but I'm sure you know what needs to be done and what is wrong. Your parents don't seem to be helping. From the very best of motives. You give the impression that they are encouraging you to put your diabetes to the back of your mind.
I suggest you contact the Diabetes UK careline and ask to be put in touch with the youth groups. They even run summercamps for young people. [Number on the Diabetes UK web pages.]
An HbA1c of around 9 is putting your future at risk. It's hard to live life to the full when your sight is impaired or your kidneys fail.
A healthy young person with well-controlled diabetes can do just about anything.
I'm sure your parents love you and want the best for you, but are rather scared of the diabetes and maybe they prefer to believe that if it's ignored it might go away. It WON'T. It's tough on the parents of kids with health issues.
You are just about old enough to take charge of your own health. Keep your hbA1c in the target range and be well. Then you can really live life to the full, without fear of complications.
Hana
 
  • Like
Reactions: gemma_T1

Beth_Robinson

Well-Known Member
Messages
60
Type of diabetes
Type 1
Treatment type
Pump
Thanks you everyone for the advice!! & just to clarify, I do have a checker, just not the one which goes with my pump x I'll phone the diabetes clinic on Monday and try to get something sorted out x
Beth
 
  • Like
Reactions: gemma_T1

lilyfleur

Well-Known Member
Messages
59
Type of diabetes
Type 1
Treatment type
Pump
Hi Beth,
I was diagnosed with type one diabetes aged 11, and am only just coming to terms with it now, at 23 years old! I don't think there's any one answer that works for everybody, I used to get frustrated with the way people tried to help me because everyone was telling me stuff I already knew - eat better, test more, record everything - and I wasn't managing to do any of it. I would recommend talking to your diabetes team or GP about getting therapy if you find yourself not checking your sugars and aren't aware of why.
I'm someone who is very into new gadgets, and so something which has really helped me is getting the blood testing kit that attaches to an iphone or ipod, so if you have an ipod/iphone, and you like gadgets like me, maybe find out if you can get the blood testing kit for it (iBG Star, it's half price at Boots at the moment)? As sad as it sounds, I find I test more just because I'm impressed by how much better it looks, and how easy logging etc is, and it's a nice small kit too. Your diabetes team will definitely be able to get you a new meter that links with your pump though, and this would obviously be a better option, which make of pump is it?
Wishing you all the best,
Sarah
 
  • Like
Reactions: gemma_T1