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I know -A day in the life of a parent of a Type1 child.

Discussion in 'Parents' started by Gemmablower, Apr 24, 2015.

  1. Gemmablower

    Gemmablower Type 1 · Well-Known Member

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    That's amazing! So good to hear she is coping so well. I can't believe how well she coped in hospital, Zara was absolutely traumatised by the cannula and the whole experience shuck her confidence for a little while.
     
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  2. Gemmablower

    Gemmablower Type 1 · Well-Known Member

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    Very true @vicki.milne I hope your and little one are doing ok
     
  3. vicki.milne

    vicki.milne Parent · Member

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    Thanks Gemma, yes he's being amazingly brave. It's unbelievable how much inner strength these little ones can have in tough situations.
     
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  4. Stacey_c

    Stacey_c Type 1 · Member

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    made me cry u are such a loving mother this is excatly has i feel xxxx
     
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  5. Stacey_c

    Stacey_c Type 1 · Member

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    im thinking of setting up a facebook help page for type 1 parents has when the health professionals switch there phones off, were are u supposed to turn too xxx can u email this of urs so i can share it to cause awareness xxx
     
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  6. Gemmablower

    Gemmablower Type 1 · Well-Known Member

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    Hi Stacey my email is xxxxx sounds like a good idea xxx

    Email address removed. This can be exchanged via PM.
     
    #26 Gemmablower, May 3, 2015 at 12:55 PM
    Last edited by a moderator: May 3, 2015
  7. Gemmablower

    Gemmablower Type 1 · Well-Known Member

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    Thank you Stacey that means a lot x i hope it helped you know you were not alone and i hope your little one is ok, boy or girl? And how old. Have you recently been diagnosed? Xxx
     
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  8. jolee

    jolee Parent · Newbie

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    Hi must admit I had a tear in my eye reading this. My son was diagnosed 2 years ago just before he turned 12. It felt like the bottom had fallen out of my world and I just kept thinking why him why not me. Two years on and he's been away on a French trip with school and today left for an adventure holiday in Wales, I've had to stop myself texting him at times when I know he should be taking levermir etc and am scared to death that he will cope with his carb counting but have to put my trust in the school who have been marvellous upto now with his care plan etc. honeymoon period with him was text book but puberty, and growing 3 cm since Dec have put ratios and levels all to cock, but kids are so resilient and matter of fact that I'm sure he will be fine. I wish you all the best and as you say we all learn by our mistakes and must learn not to beat ourselves up over them but get stronger because of them. Love from another 'who knows' x
     
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  9. shazzny

    shazzny Type 1 · Newbie

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    What kind words, my wee boy was diagnosed in 2013 2 1/2 years old he is now 4 and everything you say is true, we still have ups and downs due to catching everything that is going about and just when his bloods settle bang it all goes belly up .
     
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  10. sarah.u

    sarah.u Parent · Newbie

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    Hi just wondering how long your daughter had symptoms for as i am worried about my little girl. She is 2 1/2 she is drinking upto 6 litres a day soaking through every nappie eating more i wouldnt say she is losing weight but woukd say she isnt really putting on for what she eats. Had urine tested but no sugars in it ..... just wondered if this could still be diabetes i have been fobbed off by doctors x
     
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  11. redding43

    redding43 Parent · Active Member

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    Hi Sarah

    Our situation has evolved to a point where they have changed their mind and now don't think it is type 1 diabetes! We are waiting for more test results but are now off of insulin and her bloods are staying normal. When she was originally diagnosed she had been unwell for 3 or 4 days but her drinking has always been to a normal level.
     
  12. Cath10

    Cath10 Parent · Newbie

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    My 9 year old was diagnosed with T1 diabetes 3 weeks ago and I find Gemma's post really inspiring and so true not only do we both work full time we manage our daughters diabetes it's such a lot to take in as well as dealing with the shock and grief of the diagnosis - she truly is the bravest girl I know and is my inspiration every minute of every day x
    Does anyone have any advice on travelling abroad (Spain) with all the meds etc ? Greatly appreciated thank you x
     
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  13. Gemmablower

    Gemmablower Type 1 · Well-Known Member

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    Hi cath
    It really is so much to take in and I know all that you are going through. We are 7months in now and I can give you some light. Your baby will always be your motivation and strength my little girl is 3 years old next week and checks her own sugars now and shows her nursery staff who's boss! and understands a lot more about healthy foods than any other 3year old I have met.
    Me, I have dealt with the brunt of grief by talking about it with others and seeing how adaptable and strong my little girl is. She inspires me everyday. There are still times I think why her or have a bad day but then I pull myself together and know we are strong than this and still take each day as it comes and learn from the last. without overwhelming myself.
    We have not been abroad only holidays in the uk. I would ask your consultant for a letter so you can carry the meds and just take double or triple of everything if you can fit it in spare pens/ and meters included and get a Frio insulin cool bag to keep insulin cool in the heat and to carry your spare insulin cartridges on the plane. Hopefully some others will post here if not then post a seperate one and I'm sure you will get some answers.
    Love to you and baby xxx
     
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  14. Cath10

    Cath10 Parent · Newbie

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    Oh Gemma your little girl sounds amazing what a little courageous girlie!
    We're learning about carb counting next week which sounds complicated but hopefully is easier than it sounds! She is dealing with it so well although has her ups and downs as do we, her diabetic nurse has come into school and trained the staff on how to inject etc and hypos hypers too, she has been excellent really put my mind at ease about her being at school,
    It doesn't stop me worrying but the school have also been great they have phoned me most lunchtimes to give me her readings to put my mind at rest!
    It's lovely to hear from another parent as it can be quite lonely for us, can't it?
    I will get one of these cool bags and yes will ask the consultant for a letter explaining the meds etc.
    Love to you both and thank you for the advise xxx
     
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  15. TanyaEmily

    TanyaEmily Parent · Member

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    Hello Cath 10. We travelled abroad to Alicante this spring. My advice is to keep medications in two bags, in case something happens to one, you will have a back up. We kept insulinin frio cooling pouches for travelling. Just mention to the staf at the airport security that your daughter is diabetic and you are carrying medications. If you are using pump DO NOT go through the magnetic check, request hand search. Ask your nurse for a letterand print out tables of BG conversions, they are using mg % in Spain and in case you need medical advise they knewwhat you are talking about. Any more questions, please let me know.
     
  16. Mum of a Diabetic

    Mum of a Diabetic Type 1 · Newbie

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    My daughter was diagnosed at the end of June - reading this post - bought tears to my eyes as it still feels as raw as the day we found out! I hate that she has it, but like many of the other children on here has taken it on the chin. She is now in year 1 and the school have been fantastic - although they are human do not live with this day in and day out and do make mistakes. I didn't realise how much of an emotional rollercoaster I would be on... does anyone else feel like they are constantly up or down?
     
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  17. Gemmablower

    Gemmablower Type 1 · Well-Known Member

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    Yes @Mum of a Diabetic totally see where you are coming from. The grief hit me hard particularly around the time of writing this post.
    It's been just 9months and I still have spells and waves of it now but not as "intense" is the only way I can describe it.
    Up and down is normal here x
    I hope you and little one are doing ok how old is she? Xxx
     
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  18. CatLadyNZ

    CatLadyNZ Type 2 · Well-Known Member

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    I'm sure many people feel that way, either as a parent of a T1 or as a T1 themselves. It's early days for you in terms of getting used to it, so please try to be gentle with yourself. You don't have to be perfect at everything. You are doing your best and things are going ok.

    Hopefully sharing with others on here will help. Perhaps there is a local support group for parents? You may find that parents of children with special health or disability needs can relate to you about this better than people with no experience of such issues. You could also ask your GP about free counselling for a while, to help you deal with this major adjustment.
     
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  19. Marykly

    Marykly Type 1 · Member

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    Hi

    I want to cry after i read your message thank you so so much
    Its so hard
    It changes ur life ,
    When i told people /friends about my son all i got was why u given him cards...
    Lol .....

    No one know whats involved.... In our day to day lives ...
    It's different every day or night....

    Thank you for my hug
    Right back at u
    And a .
    Mary
     
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  20. jo78

    jo78 Type 1 · Member

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    I promise you, the stress and emotions become less fearful. Its perfectly natural to feel the way you do. I felt the same 11yrs ago when my daughter was 3.
     
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