I have lada but being treated as type 1 due to my blood test results i was diagnosed wronly 5 years ago have been under three different teams first i moved area second i kept saying i am still not wright and eventually paid to get a proper diagnosis then swopped to a centre near where i work but due to staff illnes appointments were cancelled and i still felt unwell phoned gp and asked to be refered to different team and success should have done this instead of choose nearer to work, i did initially read lada is difficult to read is this true
Lada type 1
- Thread starter Christinelh
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Sanober
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Welcome to the half way house :lol: You'll find a few of us LADA or slow onset T1s about here.
I'm a recently diagnosed one.
How frustrating it must have been for you to go through all that you must have been pretty ill too.
LADA/Slow onset T1 is tricky because you produce some of your own insulin intially. I'm on very small amounts of insulin and I ended up being switched to a child half unit insulin pen because I was going into low glucose levels within 2-3 hours of eating.
Your Diabetes team will encourage you to test yourself and perhaps keep a daily diary. I'm 6 weeks in and although it's a pain having to remember to note everything down it's certainly helping me and my Diabetes team to assess and change my dosages quickly.
So, you're amongst friends here - ask any questions you wish, we all do and although we can't give medical diagnosis sometimes it's just nice to know you're not going through it alone.
I'm a recently diagnosed one.
How frustrating it must have been for you to go through all that you must have been pretty ill too.
LADA/Slow onset T1 is tricky because you produce some of your own insulin intially. I'm on very small amounts of insulin and I ended up being switched to a child half unit insulin pen because I was going into low glucose levels within 2-3 hours of eating.
Your Diabetes team will encourage you to test yourself and perhaps keep a daily diary. I'm 6 weeks in and although it's a pain having to remember to note everything down it's certainly helping me and my Diabetes team to assess and change my dosages quickly.
So, you're amongst friends here - ask any questions you wish, we all do and although we can't give medical diagnosis sometimes it's just nice to know you're not going through it alone.
chocoholic
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Hello Christine,
Your story is almost identical to mine. I too sat on a wrong diagnosis for some years and it was only on my insistence on seeing a diabetes specialist that I got my LADA diagnosis and now I am treated as Type 1 too.I think the problem comes when docs. make assumptions about 'Type' due to age particularly. I was in my mid forties when first diagnosed as diabetic and it was the kind folks on here who told me about such things as GAD tests etc. which sent me off to ask for referral, well-informed. My subsequent GAD test did indeed come back as positive, which is when I got a correct 'Type' diagnosis.
It's not so much the 'Type' label that is so important but getting the correct treatment and I hope you are now getting all the help you need from your medical team.
Kind regards,
Chocoholic
Your story is almost identical to mine. I too sat on a wrong diagnosis for some years and it was only on my insistence on seeing a diabetes specialist that I got my LADA diagnosis and now I am treated as Type 1 too.I think the problem comes when docs. make assumptions about 'Type' due to age particularly. I was in my mid forties when first diagnosed as diabetic and it was the kind folks on here who told me about such things as GAD tests etc. which sent me off to ask for referral, well-informed. My subsequent GAD test did indeed come back as positive, which is when I got a correct 'Type' diagnosis.
It's not so much the 'Type' label that is so important but getting the correct treatment and I hope you are now getting all the help you need from your medical team.
Kind regards,
Chocoholic
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Many thanks i am now 63 i now attend the royal Bournemoth and i am extremly pleased I have found it hard lately and they have their own diabetic counsellor i live on my own and my family live130 miles away but really do not want to know thus not much support my ex husband was type 1 from age 16 when we met and he never liked to accept we were married for nearly 24 years i gave him all my support and never dreamt it would happen to me friends are ok but they are elderly and have health issues themselves one of my 83 year old friends does not really want to know she even bought me chocolates for Christmas cherries with brandy lol
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I am going to see the counsellor on my next appointment i do have osteoporosis but had to stop the risonodrate this week due to the hypos i am having as have changed to Lantus spoke to GP who said that is ok to stop it for a while
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Chocoholic my results were way off the scale I was allowed a blood test on the NHS and my consultant (2010 Sept) locally said you are definatly type 2 and it would be a waste of money thus I said is it related tomy autimmune disease have had over active thyroid in the 80's and in 1996 went underactive due to autoimmune disease
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Should hae said not allowed a blood test on NHS sorry Also thank you for your support it is a real help
Hey Christinelh!
Just wanted to say welcome! I too am LADA and was also originally misdiagnosed as Type 2. I've been on insulin for more than a year now and feel much better. I have times when I've no idea what my pancreas is doing and it can make insulin doses a bit interesting to say the least! I got used to it pretty quickly though. Stick around the forum and ask anything you need - everyone's really helpful and you can learn a lot which makes managing the condition much easier.
Good luck with the insulin
Smidge
Just wanted to say welcome! I too am LADA and was also originally misdiagnosed as Type 2. I've been on insulin for more than a year now and feel much better. I have times when I've no idea what my pancreas is doing and it can make insulin doses a bit interesting to say the least! I got used to it pretty quickly though. Stick around the forum and ask anything you need - everyone's really helpful and you can learn a lot which makes managing the condition much easier.
Good luck with the insulin
Smidge
i was diagnosed with LADA when i was 21. having been told i was type 2 an put on a diet only plan. i was so ill, that was in may, but aug 09 i couldn't function properly. thank god i went to my check up when i did as he put me on insulin straight away. Told me it was latent autoimmune diabetes in adult. but thats all i know, found out bits on the internet, my diabetes nurse doesn't even now. at 1st i was doing really well. taking my insulin on time.... all the time. but by november i just gave up. i now struggle, my diabetes is well out of hand an i don't know who to talk to about it. i snap, i'm always tired and have no will power whatsoever. how can anyone help me if i can't help myself??
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chocoholic
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We really are similar Christine. I already had alopecia areata (an auto-immune thing) prior to diabetes diagnosis and now think WHY did doc. not pick up on the two things possibly being linked, as your doc. should have. My own research had me find out if you have one auto-immune thing, you are much more likely to get another and Type 1 being an auto-immune disease, should have been an obvious consideration for our doctors.Makes you mad, doesn't it?
Still, onwards and upwards 'eh? One thing I will say to you,Christine, is if you have any questions, the folks on this particular forum are enormously helpful and knowledgeable. I don't get on here much now but something told me yesterday to log on, which is when I spotted your post.If ever you get stuck with a diabetic problem, it's always worth trying the folks on here for advice but hopefully your diabetes specialist will also be onto things more helpfully now too.
Still, onwards and upwards 'eh? One thing I will say to you,Christine, is if you have any questions, the folks on this particular forum are enormously helpful and knowledgeable. I don't get on here much now but something told me yesterday to log on, which is when I spotted your post.If ever you get stuck with a diabetic problem, it's always worth trying the folks on here for advice but hopefully your diabetes specialist will also be onto things more helpfully now too.
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Thank you and chocoholic so pleased you logged in it is very similar and locker 24 we can help each other if ok with you please try and get back on track it would make you feel better i feel horrendous when BG is in double figers my house is a mess where i have been too tired and exhausted to do something that and it is way too small for me at least when BG is fine I get the energy to do something at the moment it is trial and error Lantus was too high now its been altered along with the Novarapid but it was 9.00 before my tea and have not had too many carbs really naughty though just had two mini squares og chocolate really small pieces it was lavendar dark and mandarin and ginger and oh yes the taste of mandarin was superb
