Myasthenia Gravis

Robbalcomb

Active Member
Messages
26
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Evil people
Hello I note there are a couple of others on this forum who have MG, my MG went into free fall last April and again in September both time resulting in a MG Crisis leaving me hospital bound, my Neurologist upped my Steroid Prednisolone from 5mg to 60mg reducing it to 50mg 26/10 then to 40mg on 11/11 now as from 11/12 right 30mg this I have been told by the diabetic nurse at the doctors has caused me to have type 2 diabetes, and put me on Metformin 500mg once a day sent me off to get on with it. I came home and started reading up on diabetes, there is so much to take in should I do this or that , what's the best food to eat do I need to excise more ! I decided to take the advice from this website and booked appointment with GP only to be told no you need do nothing don't worry we will monitor you every three months with blood sample and when we reduce your Steroids the diabetes may disappear, but on the other hand you may go to type 1 and that it's the steroids that have caused all the damage, I have permernent double vision, loss of a lot of sight now regular appointments at eye hospital . So it's been like walking around with loaded gun just waiting for the next bit to fall off going for tests then waiting for results. So what with managing my MG do I or do I not start getting my head around the management of type 2 or 1 diabetes. Not happy with the way things are going feeling very depressed about life, violins please I live alone lost my two best friends last year Harry and Polly Harry a 13 year old Golden Retriever and a month later Polly a 12 year old Belgium Shepherd both to cancer and I miss them dearly.
Oh well I better just keep popping the pills and do as I'm told , thanks for your time and a Merry Christmas to you all

P.s not good on computer stuff first time used chat room so excuse the errors ta
 
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ickihun

Master
Messages
13,698
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Bullies
Oh @Robbalcomb . What a set of cards you've been dealt!
We all have our own personal circumstances as to why we're here. I know @JohnEGreen has contracted diabetes through steriod treatment. He's a great example of a life's fighter too. Maybe he will be along later to offer some support and realistic understanding.

I advise you buy a meter and get monitoring. What diabetes drugs are you on, if any?
You may qualify for free test strips on prescription and free meter from a manufacturing company, but meds dependant.
Otherwise I know many posters on no meds or just metformin use a discounted company to still monitor.
Ps.
Change gp if you feel you are bashing your head up the wall, especially if you do qualify for test strips and your existing gp is old fashioned in his/her practices. Fresh eyes sometimes is what's needed.

Please search on this forum for 'discounted test strips' and many posters have repetitively quoted discount codes and the fact on mentioning your diabetic you qualify for the tax free cost.

Get monitoring by before food and 2hrs after, at least for trend and look for less than 7.8mmol/l to avoid diabetic complications. No lower than 5mmol/l thou for driving.
Eat to your meter and stay healthy I'll tag @daisy1 for the basic info all diabetics need to know.

Welcome to the forum :)
 
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Robkww

Well-Known Member
Messages
262
Hi @Robbalcomb and welcome to the forum I'm Type 2 also and will tag @daisy1 who will post lot's of useful information for you. You have a lot to put up with and losing your best buddies must have been really difficult. This is a friendly informative forum and the people on it can help you in all sorts of ways so please stick with us and ask as many questions as you need to.

Cheers
Rob
 
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catapillar

Well-Known Member
Messages
3,390
Type of diabetes
Type 1
Treatment type
Insulin
booked appointment with GP only to be told no you need do nothing don't worry we will monitor you every three months with blood sample and when we reduce your Steroids the diabetes may disappear, but on the other hand you may go to type 1 and that it's the steroids that have caused all the damage

Steroid induced diabetes is type 2 diabetes. Type 2 doesn't turn into or "go to" type 1. They are entirely separate conditions with separate causes.

You have type 2 diabetes, so you don't need to worry about getting your head around management of type 1 diabetes because you don't and won't have type 1. You have type 2, so focus on how to manage that.

I believe steroids can cause insulin resistance - and insulin resistance is what type 2 is. So if you're on a short course of steroids it is possible that ending the steroids will end the diabetes, but that can't be guaranteed.

No lower than 5mmol/l thou for driving.

This doesn't apply to someone who is only on metformin, which is not a drug you need to tell DVLA about and not a drug that comes with any minimum blood sugar minimum requirements for driving - or everyone on metformin would get strips on prescription.
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@Robbalcomb

Hello Robbalcomb and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.



BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 259,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 

Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
Hi and welcome @Robbalcomb

I will tag in @JohnEGreen because I know that he has MG and was diagnosed a couple(?) of years ago with steroid induced diabetes, so may well be able to offer you some advice.

You certainly have a great deal on your plate, and your recent bereavements will be making everything seem so much worse. I feel for you.
 

Robbalcomb

Active Member
Messages
26
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Evil people
Oh @Robbalcomb . What a set of cards you've been dealt!
We all have our own personal circumstances as to why we're here. I know @JohnEGreen has contracted diabetes through steriod treatment. He's a great example of a life's fighter too. Maybe he will be along later to offer some support and realistic understanding.

I advise you buy a meter and get monitoring. What diabetes drugs are you on, if any?
You may qualify for free test strips on prescription and free meter from a manufacturing company, but meds dependant.
Otherwise I know many posters on no meds or just metformin use a discounted company to still monitor.
Ps.
Change gp if you feel you are bashing your head up the wall, especially if you do qualify for test strips and your existing gp is old fashioned in his/her practices. Fresh eyes sometimes is what's needed.

Please search on this forum for 'discounted test strips' and many posters have repetitively quoted discount codes and the fact on mentioning your diabetic you qualify for the tax free cost.

Get monitoring by before food and 2hrs after, at least for trend and look for less than 7.8mmol/l to avoid diabetic complications. No lower than 5mmol/l thou for driving.
Eat to your meter and stay healthy I'll tag @daisy1 for the basic info all diabetics need to know.

Welcome to the forum :)
Thanks
Oh @Robbalcomb . What a set of cards you've been dealt!
We all have our own personal circumstances as to why we're here. I know @JohnEGreen has contracted diabetes through steriod treatment. He's a great example of a life's fighter too. Maybe he will be along later to offer some support and realistic understanding.

I advise you buy a meter and get monitoring. What diabetes drugs are you on, if any?
You may qualify for free test strips on prescription and free meter from a manufacturing company, but meds dependant.
Otherwise I know many posters on no meds or just metformin use a discounted company to still monitor.
Ps.
Change gp if you feel you are bashing your head up the wall, especially if you do qualify for test strips and your existing gp is old fashioned in his/her practices. Fresh eyes sometimes is what's needed.

Please search on this forum for 'discounted test strips' and many posters have repetitively quoted discount codes and the fact on mentioning your diabetic you qualify for the tax free cost.

Get monitoring by before food and 2hrs after, at least for trend and look for less than 7.8mmol/l to avoid diabetic complications. No lower than 5mmol/l thou for driving.
Eat to your meter and stay healthy I'll tag @daisy1 for the basic info all diabetics need to know.

Welcome to the forum :)
hi yes the Doctor put me on Metformin 500mg once a day
Hi @Robbalcomb and welcome to the forum I'm Type 2 also and will tag @daisy1 who will post lot's of useful information for you. You have a lot to put up with and losing your best buddies must have been really difficult. This is a friendly informative forum and the people on it can help you in all sorts of ways so please stick with us and ask as many questions as you need to.

Cheers
Rob
thank you
 
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Robbalcomb

Active Member
Messages
26
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Evil people
Oh @Robbalcomb . What a set of cards you've been dealt!
We all have our own personal circumstances as to why we're here. I know @JohnEGreen has contracted diabetes through steriod treatment. He's a great example of a life's fighter too. Maybe he will be along later to offer some support and realistic understanding.

I advise you buy a meter and get monitoring. What diabetes drugs are you on, if any?
You may qualify for free test strips on prescription and free meter from a manufacturing company, but meds dependant.
Otherwise I know many posters on no meds or just metformin use a discounted company to still monitor.
Ps.
Change gp if you feel you are bashing your head up the wall, especially if you do qualify for test strips and your existing gp is old fashioned in his/her practices. Fresh eyes sometimes is what's needed.

Please search on this forum for 'discounted test strips' and many posters have repetitively quoted discount codes and the fact on mentioning your diabetic you qualify for the tax free cost.

Get monitoring by before food and 2hrs after, at least for trend and look for less than 7.8mmol/l to avoid diabetic complications. No lower than 5mmol/l thou for driving.
Eat to your meter and stay healthy I'll tag @daisy1 for the basic info all diabetics need to know.

Welcome to the forum :)
Thanks the GP put me on 500mg Metformin once a day not a plesent pill is it ?
 

Robbalcomb

Active Member
Messages
26
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Evil people
Steroid induced diabetes is type 2 diabetes. Type 2 doesn't turn into or "go to" type 1. They are entirely separate conditions with separate causes.

You have type 2 diabetes, so you don't need to worry about getting your head around management of type 1 diabetes because you don't and won't have type 1. You have type 2, so focus on how to manage that.

I believe steroids can cause insulin resistance - and insulin resistance is what type 2 is. So if you're on a short course of steroids it is possible that ending the steroids will end the diabetes, but that can't be guaranteed.



This doesn't apply to someone who is only on metformin, which is not a drug you need to tell DVLA about and not a drug that comes with any minimum blood sugar minimum requirements for driving - or everyone on metformin would get strips on prescription.
No worries about driving as have had to surrender my driving licence due to micro blockages in brain which has caused sight problems plus when you get double vision with Myasthenia you have to inform DVLA and they suggested if I surrender it then my condition improves, it will be quicker to get it back . And thanks
 

Robbalcomb

Active Member
Messages
26
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Evil people
@Robbalcomb

Hello Robbalcomb and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.



BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 259,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
Thank you Daisy very helpful ,
 

ickihun

Master
Messages
13,698
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Bullies
Thanks the GP put me on 500mg Metformin once a day not a plesent pill is it ?
It can be one of those willful meds but I get huge benefits from it so I work with it. I often need to stop and restart it after a few days. Unsure if metformin induced or young children passing on their bugs thou.
I persevere and get the best out of it. (2st weight loss and no testosterone build up of spots, hirsutism and menstral disturbances with no weight gain either.)
 

Robbalcomb

Active Member
Messages
26
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Evil people
Thanks look like fun times ahead, it's just coming down in dosage of steroids are now revealing the damage caused and the weight gain, my daughter lives in Sunbury on Thames Surrey I'm on my own in South Wales and today she called me on my iPad facything vidio and called me a Chunky Monkey ! As I am always hungry I am trying to watch my weight , I know some will be steroids and I go for a couple of hours walk everyday to try and keep as fit as I can . But as for my GP, looks like a wait of three months before they need to see me. Not easy to change GP as Small village and to go to new docs would require transport and as the DVLA now have my licence, I'm stuck with my GP . Thankfully I love walking shame I have no dogs for company keep away from all the bugs and stay safe thanks
Rob .
 

ickihun

Master
Messages
13,698
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Bullies
Thanks look like fun times ahead, it's just coming down in dosage of steroids are now revealing the damage caused and the weight gain, my daughter lives in Sunbury on Thames Surrey I'm on my own in South Wales and today she called me on my iPad facything vidio and called me a Chunky Monkey ! As I am always hungry I am trying to watch my weight , I know some will be steroids and I go for a couple of hours walk everyday to try and keep as fit as I can . But as for my GP, looks like a wait of three months before they need to see me. Not easy to change GP as Small village and to go to new docs would require transport and as the DVLA now have my licence, I'm stuck with my GP . Thankfully I love walking shame I have no dogs for company keep away from all the bugs and stay safe thanks
Rob .
I hope you get some new company soon. Any rescue dog pounds fairly local? They'd love you.
I hope 2018 is a much healthier and happier year for you! :)
 
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Robbalcomb

Active Member
Messages
26
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Evil people
I hope you get some new company soon. Any rescue dog pounds fairly local? They'd love you.
I hope 2018 is a much healthier and happier year for you! :)

Thank you the RNIB have put me on the waiting list for a Guide dog which will be great sa I can then go where I like, I hope 2018 will shine good fortune on you and your family too Bless you
 
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MargaretR

Well-Known Member
Messages
125
Type of diabetes
Treatment type
Tablets (oral)
Hello Robbalcomb

I’ve also got steroid induced Type 2. I’ve had diabetes 2 for a couple of years, having been taking steroids for about 11 years. I started on steroids when I was diagnosed with Polymyalgia Rheumatica, and was on varying doses of prednisolone up as high as 70 mg. I’m taking a much lower dose now as I’ve now got rheumatoid arthritis, and am taking methotrexate for that, which has enabled me to get the prednisolone dose down.

When I started with diabetes my eyesight was all over the place, constantly changing. I couldn’t read, and bought a new TV because the screen was so small. I got really good support from my optician, but it took a good 12 months before it settled down. Eventually though my eyes did stabilise, once my blood sugar level stabilised, but it isn’t an overnight stabilisation, it took months rather than weeks.

The other thing you possibly need to be aware of is that it was the steroid which triggered the diabetes, but with me a few weeks of testing showed me that there was an ongoing effect. I don’t know about everyone, but certainly for me there is a clear effect of prednisolone on the blood glucose on a day to day basis. So if I took prednisolone at breakfast there would be a rise of BG round about lunchtime. So whatever I have for breakfast my BG goes up, and by more than the suggested 2 mg/l recommended as the maximum rise after a meal. Before I had worked this out I got really worried that my BG rise was more than desirable. Someone on here who didn’t know about the effects of steroids got really worried for me, but there was nothing I could do! Which steroid tablets are you on? The 5 mg and 2.5 mg are both available in enteric coated versions (red or red brown) as opposed to white. I found these did spread out the rise a bit, and so were better for me. The enteric coated are a bit more expensive, and usually only given to people who are having stomach problems.

You’ve certainly got a lot to cope with, and it does take time for everything to settle down. My biggest problem was working out what was one of my conditions, or a side effect of one of the many drugs I was taking.

Good luck, and I’m really sorry about your dogs - it’s such a painful time.

Margaret
 
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Nicksu

Well-Known Member
Messages
743
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Grumpy bosses!
I've had MG since I was 15 and been on and off the dreaded steroids for a number of years and ended up with type 2 because of it. I definitely know what the hunger is that the steroids cause!
I was prescribed Metformin (which my stomach did not like one little bit!) and Gliclizade.
When I found out about being diabetic I did some digging.
Metformin will not counteract the BS spikes that are caused by steroids (which if you take them like me - in the morning - will occur in the afternoon and evening). Gliclizade does help to counteract the spikes. Weight loss will also help too - not easy I know when you can't see straight! Been there, done that, got the T-shirt! It might be worth having a chat with your GP
You need to de-stress (not easy I know!). How about volunteering as a fosterer for your local dog charity? There are always dogs who need to be looked after in a different place than kennels. You do need to get your head around managing your type 2 as well as the MG - the type 2 will have a knock on effect of the MG - certainly in terms of stress - both of which are not good for either one.
Fingers crossed you feel better and feel a bit more positive.
 
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Robbalcomb

Active Member
Messages
26
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Evil people
Hello Robbalcomb

I’ve also got steroid induced Type 2. I’ve had diabetes 2 for a couple of years, having been taking steroids for about 11 years. I started on steroids when I was diagnosed with Polymyalgia Rheumatica, and was on varying doses of prednisolone up as high as 70 mg. I’m taking a much lower dose now as I’ve now got rheumatoid arthritis, and am taking methotrexate for that, which has enabled me to get the prednisolone dose down.

When I started with diabetes my eyesight was all over the place, constantly changing. I couldn’t read, and bought a new TV because the screen was so small. I got really good support from my optician, but it took a good 12 months before it settled down. Eventually though my eyes did stabilise, once my blood sugar level stabilised, but it isn’t an overnight stabilisation, it took months rather than weeks.

The other thing you possibly need to be aware of is that it was the steroid which triggered the diabetes, but with me a few weeks of testing showed me that there was an ongoing effect. I don’t know about everyone, but certainly for me there is a clear effect of prednisolone on the blood glucose on a day to day basis. So if I took prednisolone at breakfast there would be a rise of BG round about lunchtime. So whatever I have for breakfast my BG goes up, and by more than the suggested 2 mg/l recommended as the maximum rise after a meal. Before I had worked this out I got really worried that my BG rise was more than desirable. Someone on here who didn’t know about the effects of steroids got really worried for me, but there was nothing I could do! Which steroid tablets are you on? The 5 mg and 2.5 mg are both available in enteric coated versions (red or red brown) as opposed to white. I found these did spread out the rise a bit, and so were better for me. The enteric coated are a bit more expensive, and usually only given to people who are having stomach problems.

You’ve certainly got a lot to cope with, and it does take time for everything to settle down. My biggest problem was working out what was one of my conditions, or a side effect of one of the many drugs I was taking.

Good luck, and I’m really sorry about your dogs - it’s such a painful time.

Margaret
Thank you Margaret, sounds like you also have a plate full and some, it's reassuring to learn that others like yourself have experience relevant to how I feel. I have been getting MG crisises all this year three in total and have had double vision brought on by the MG (Myasthenia Gravis) for a couple of years this double vision comes on slowly so I know when it is going to happen and it only lasts anything from 5min to 1 hour but on the 7 September I was out with my new 1 year old Belgium Shepherd when I felt a pain in the right side of my head at the front, like a six inch nail being hammered in and then the only way I can discribe it is like a ping as if an elastic band had snapped in my head, my vision went double straight away and was out of focus, I went to my optician whom had examined my eyes a week previously, I have had a prisom in my left lens of my glasses for a couple of years prescribed by the eye hospital, but my optician tried a stronger one then tested me without and there was no change the left eye was not tracking and his words were its blown ! With that he arranged for me to go see the specialists at my hospital , during this I had a bad MG crisis resulting in a 999 call and being admitted where my Nurologist put me on 60mg Prednisolone for the next 12 days and then slowly reducing , I am now on 30mg little white ones , I a. Also on stroke medication I:e Losartan Potassium 25mg Atorvastatin 80mg and Clopidogrel 75mg . Was told I had micro blockages in the blood vessels in part of brain that controls sight, my sight has not changed from the 7th Sep and I am still under the care of the Consultant Ophthalmologist at the Eye Hospital. I am still waiting to find out if it is to do with MG, I think it is separate altogether. But going on high dose of steroids has triggered Type 2 diabetes as my Nerologist had written to my GP asking for weekly BG tests as he was concerned to the risk, it was only on my third test that the diabetic nurse told me I was type 2 diabetic prescribed Metformin 500mg once a day with food and sent me away, I was in a confused mind trying to take in this latest bomb shell and forgot to ask what happens now? I had to visit surgery the next day to be told nothing to worry about we will test your blood again in three months , I asked do I need to change diet , lifestyle take more excise etc, only to be told to just carry on the diabetes my disappear as steroids are reduced . It's very hard to put this all to paper as it has got me very confused as what is the right thing to do, all I have been doing from September is wait for results have more tests and then wait again to see Consultant
Sorry to go on but as you can see it's like the never ending story ! Bless you keep well and have a Great Christmas
 

Robbalcomb

Active Member
Messages
26
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Evil people
I've had MG since I was 15 and been on and off the dreaded steroids for a number of years and ended up with type 2 because of it. I definitely know what the hunger is that the steroids cause!
I was prescribed Metformin (which my stomach did not like one little bit!) and Gliclizade.
When I found out about being diabetic I did some digging.
Metformin will not counteract the BS spikes that are caused by steroids (which if you take them like me - in the morning - will occur in the afternoon and evening). Gliclizade does help to counteract the spikes. Weight loss will also help too - not easy I know when you can't see straight! Been there, done that, got the T-shirt! It might be worth having a chat with your GP
You need to de-stress (not easy I know!). How about volunteering as a fosterer for your local dog charity? There are always dogs who need to be looked after in a different place than kennels. You do need to get your head around managing your type 2 as well as the MG - the type 2 will have a knock on effect of the MG - certainly in terms of stress - both of which are not good for either one.
Fingers crossed you feel better and feel a bit more positive.
Thanks Nicksu , MG is a sod when it goes into free fall which has happen to me three times this year the Second MG crisis left me gasping for sir my diaphragm stopped working resulting in a 999 call when Ambulance crew walk into my house ( I live alone) I was sitting on sofa struggling for oxygen, the ambulaceman look at me and said " what's the matter with you then " .
I managed to get the words "having a Myasthenia Crisis" out only to be told "Never heard of that " with that he picked my overnight bag up which I had managed to get together marched out my front door saying come on then , I was treated for asma spent 14 hours in A&E only to be sent home the following day a Sunday the following Wednesday I had a outpatient appointment with my Nurologist who took one look at me and admitted me to the nuro Ward where I went from 5mg Prednisolone up to 60mg . Now as they are being reduced it feels like bits of me are falling off , Great idea re the Dogs as soon as I feel like I'm on an even keel again I will look into it , I did rescue a year old Belgium Shepherd but eight in and out of hospital do much my daughters thought he was to much for me, so he's now with my youngest daughter in Farnborough some 180 miles away . Thanks for your input very helpful . Stay well and Have a Great Christmas
 
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Kittycat_7_

Well-Known Member
Messages
492
Type of diabetes
Type 2
Treatment type
Insulin
Hi,
So sorry for the loss of your dog's, hope you get a guide dog very soon.
I couldn't tolerate Metformin, however for many the side effects go away after a few weeks.
Hope things improve for you.
Take care
 

Robbalcomb

Active Member
Messages
26
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Evil people
Thanks Nicksu , MG is a sod when it goes into free fall which has happen to me three times this year the Second MG crisis left me gasping for sir my diaphragm stopped working resulting in a 999 call when Ambulance crew walk into my house ( I live alone) I was sitting on sofa struggling for oxygen, the ambulaceman look at me and said " what's the matter with you then " .
I managed to get the words "having a Myasthenia Crisis" out only to be told "Never heard of that " with that he picked my overnight bag up which I had managed to get together marched out my front door saying come on then , I was treated for asma spent 14 hours in A&E only to be sent home the following day a Sunday the following Wednesday I had a outpatient appointment with my Nurologist who took one look at me and admitted me to the nuro Ward where I went from 5mg Prednisolone up to 60mg . Now as they are being reduced it feels like bits of me are falling off , Great idea re the Dogs as soon as I feel like I'm on an even keel again I will look into it , I did rescue a year old Belgium Shepherd but eight in and out of hospital do much my daughters thought he was to much for me, so he's now with my youngest daughter in Farnborough some 180 miles away . Thanks for your input very helpful . Stay well and Have a Great Christmas
I hate prodictive text , maybe I should proof read it better, but with double vision it's gets to much , so sorry all .
This is also first time I have used a forum . I skipped breakfast this morning and have felt strange like woolly headed and very tired all day, could this be anything to do with diabeties ? Did not take Metformin till 13:00 hrs with a light snack