Neuropathy? Pains

Magaroo

Newbie
Messages
3
Type of diabetes
Type 1
Treatment type
Insulin
I have had T1 for 27 years, my control has never been great. I got it under much better control last year, however, I had Norovirus last December and my levels went crazy. I was having hypos and soaring levels, up to 30mmols for almost two months. I went onto low carb eating about a month ago, since then there has been a real improvement albeit with the odd hiccup. About two maybe three weeks ago I started to get burning, stinging pains in my left thigh, I thought it may be sciatica which I have had before. The pains have increased and spread to my knee which is starting to go numb. They have also started in my right thigh and I am having them along the path of my bra at the back and part of my breasts. Here comes the question, is this neuropathy or some weird side effect of the improved change in my levels?
 
  • Like
Reactions: connie104

WIZARD2013

Newbie
Messages
4
Type of diabetes
Type 1
Treatment type
Pump
'Sorry can't help u. Had Diabetes for 43. Do suffer from neuropathy. To b honest not related. Good b wrong. I would suggest going 2 GP or consult Diabetic specialist
 

DaftThoughts

Well-Known Member
Messages
397
Type of diabetes
LADA
Treatment type
Insulin
If you're experiencing increasing pain with no visible outward signs of injury to attribute it to, please see your GP ASAP. We can't diagnose this sort of thing online unfortunately, and if it's something serious you'll need treatment immediately.
 

Incidentals

Member
Messages
13
Type of diabetes
Type 2
I have painful neuropathy... I started as miss diagnosed type 2 and was praised for the tiny hairs on my toes (I am not hairy at all) as it meant my peripheral circulation was good. But on sept 2 2016 I have DKA and nearly (5 minutes to go) died. Parts of me died or where at least ischemic, like when your body is shutting down with hyperthermia. The blood was all moving inward and upward to protect my organs and brain. My brain reset and is not the same as it was before, just little things like holes in my memory and a little difficulty with some words (thinking what word it was I wanted). I am not officially brain damaged and all seamed fine for about 8 weeks, then the pain began. It would appear that the euphoria around being resurrected lead to my chemistry masking the pain. What some do not realise is that diabetes can make you loose hair, but is just as likely to make you grow new hair where none was before. It turns out my brain does not know what is happening when a hair follicle starts to develop the new root and sprout a tiny new hair. The pain is suicidal and is best described as like someone driving a screwdriver into an arm perhaps. This phenomena happens all over my body wherever a new hair pops up, fortunately once "up" the pain steadies and is bearable. It's strange as the only hairy part of me is a full beard and moustache which appears to be immune to this. The top of my head is smouldering away and sudden shooting pains about my body punctuate the day. I am on pregabalin, tramadol, paracetamol 4 times a day, having stopped taking ibuprofen as the pain has levelled off or the analgesia is taking effect. I tried gabapentin at first, but the drug gives you crystal clear thoughts of suicide for the first fortnight and did not hit the pain at all, even after taking it for 3 months, I took all the other analgesia to help, until, it was supposed to kick in. The pregabalin has done something so I have started to wean off the other drugs, now it's time for the paracetamol, but halving it has left me with a constant sense of having just grazed, or carpet burned, my upper outer thighs. Even when it seems like the pain has abated just a slight brush against something will set it off instantly. I am sure I will get under control eventually it's only been since october and the change of drugs has helped - so there is always hope. Oh and I got a BLUE BADGE so watch out if you park in a disabled zone without one anywhere near me. Its great to fume and let some of the pain evaporate in a numpties face when caught being too lazy to walk the extra yard or so.

I have written this in the hope that you are not as bad as me and will feel somewhat better. Don't worry about the suicidal bits, I cannot do that so it's not a problem for me just an observation (and I do tell my GPs everything - it's an education for them)

You should see the doc and even consider compression stockings if you can get them as they help to reduce the pain a bit - it's odd but as it's all a brain thing, simply holding the affected area can cancel the feeling so the stockings can be quite effective. Even knee length DVT (flight) socks help. It might be worth a shot (£7 at asda dispensary) if they work it will help the doc consider the compression stuff as a prescription and of course FREE if in scotland or you are a pre-paid.

Wishing you all the best
 
Last edited:

Freema

Expert
Messages
7,346
Type of diabetes
Type 2
Treatment type
Diet only
I have painful neuropathy... I started as miss diagnosed type 2 and was praised for the tiny hairs on my toes (I am not hairy at all) as it meant my peripheral circulation was good. But on sept 2 2016 I have DKA and nearly (5 minutes to go) died. Parts of me died or where at least ischemic, like when your body is shutting down with hyperthermia. The blood was all moving inward and upward to protect my organs and brain. My brain reset and is not the same as it was before, just little things like holes in my memory and a little difficulty with some words (thinking what word it was I wanted). I am not officially brain damaged and all seamed fine for about 8 weeks, then the pain began. It would appear that the euphoria around being resurrected lead to my chemistry masking the pain. What some do not realise is that diabetes can make you loose hair, but is just as likely to make you grow new hair where none was before. It turns out my brain does not know what is happening when a hair follicle starts to develop the new root and sprout a tiny new hair. The pain is suicidal and is best described as like someone driving a screwdriver into an arm perhaps. This phenomena happens all over my body wherever a new hair pops up, fortunately once "up" the pain steadies and is bearable. It's strange as the only hairy part of me is a full beard and moustache which appears to be immune to this. The top of my head is smouldering away and sudden shooting pains about my body punctuate the day. I am on pregabalin, tramadol, paracetamol 4 times a day, having stopped taking ibuprofen as the pain has levelled off or the analgesia is taking effect. I tried gabapentin at first, but the drug gives you crystal clear thoughts of suicide for the first fortnight and did not hit the pain at all, even after taking it for 3 months, I took all the other analgesia to help, until, it was supposed to kick in. The pregabalin has done something so I have started to wean off the other drugs, now it's time for the paracetamol, but halving it has left me with a constant sense of having just grazed, or carpet burned, my upper outer thighs. Even when it seems like the pain has abated just a slight brush against something will set it off instantly. I am sure I will get under control eventually it's only been since october and the change of drugs has helped - so there is always hope. Oh and I got a BLUE BADGE so watch out if you park in a disabled zone without one anywhere near me. Its great to fume and let some of the pain evaporate in a numpties face when caught being too lazy to walk the extra yard or so.

I have written this in the hope that you are not as bad as me and will feel somewhat better. Don't worry about the suicidal bits, I cannot do that so it's not a problem for me just an observation (and I do tell my GPs everything - it's an education for them)

You should see the doc and even consider compression stockings if you can get them as they help to reduce the pain a bit - it's odd but as it's all a brain thing, simply holding the affected area can cancel the feeling so the stockings can be quite effective. Even knee length DVT (flight) socks help. It might be worth a shot (£7 at asda dispensary) if they work it will help the doc consider the compression stuff as a prescription and of course FREE if in scotland or you are a pre-paid.

Wishing you all the best


have you tried the R-alpha lipoic acid 600 mg daily ? it helps some people
 

Freema

Expert
Messages
7,346
Type of diabetes
Type 2
Treatment type
Diet only
@Freema is that a prescription thing or a holland and barrat thing? Obviously willing to try anything at this time!


It is something you can buy many places, I think it was initially body builders that used it , it is an antioxydant that the body also produces but in extremely small amounts , is is special an more ways , one is that it it both can be disolved by water and fatty acids... the other is that it can pass through the blood-brain barrier ..In Germany the doctors usually describe it many times together with Gabapentin when people have neuropathy
it helps some but not all, and the effective dose is 600mg but not much more than that


I have found that they are the cheapest at a german Pharmacie which also send for GB...

https://www.apo-rot.co.uk/details/f.../10732448.html?_nav=suche&_searchkeyword=frey

https://www.apo-rot.co.uk/details/a...rchkeyword=Alpha+Lipons%E4ure+300+bioaktive+R
 
Last edited: