Newbie & no treatment yet

sleepylu

Active Member
Messages
31
Hi everyone

I have just been diagnosed T2 a month ago but have been told that for the first 3 months I will have no treatment other than to try & lose weight & increase activity. No drugs, tests or monitors or strips that you all seem to be mentioning! Is this normal? I was told that it was considered important for me to realise that i can affect change on my own without the use of anything else.

Does this make sense to all you experts out there or just an excuse to save NHS funds?!!

Lu
 

sleepylu

Active Member
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31
Have just read diabeticgeek's v helpful advice for the newly diagnosed ~ thank you.
I already get the feeling that this forum may be more help than any of the qualified medics.
 

mikecarter

Active Member
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30
Looking at this site it would seem that where you live helps in the level of help you get! My doctor's is in Leek , Staffs The first thing the Diabetic Nurse gave to me was a monitor ,some strips, lancets. a sharps box a sackful of leaflets , arranged appointments with the optician.chiropodist appointments with a dietician and follow up appontments with herself along with repeat prescriptions. I think you should go back to your Dr and tell her/him this and that you need a monitor which would seem to me to be an essential bit of kit to see how foods/exercise etc affects your blood sugar. You need to know this.There is an amazing amount of good info on this site and evryone seems really helpful,but the standard of help and care does seem to vary around the country. Good luck!
 

sleepylu

Active Member
Messages
31
Thanks Mike

Have not been offered access to the doc, but to the surgery's diabetic nurse, who i presumed must be more of an authority?

I have an appointment with a dietician & then back to diabetic clinic in October.

I will be more prepared for what to say, ask & ask for by then ......!

ps ~ i'm in west yorkshire
 

totsy

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im in west yorks too and im always having constant battles with nhs lol
 

manxangel

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See the first thing they gave me was a Monitor and 50 Strips i had to do it 7 times a day and go back in a week.

last time i saw my GP i mentioned that i was doing about 50 tests a week and having to put my repeat in constantly was a right pain and he upped it to 200 a time! but he isn't really involved now, it's all down to the Belssed Diabetes Clinic and i want to punch them!
 

hanadr

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Welcome to the confusing world of diabetes medical "care"

3 months lifestyle modification, following education! is the first step on the diabetes protocols of NICE. The education bit seems to get left out quite often. :) If that doesn't work, next step is Metformin.
Eating a low carb diet isn't recommended by the medics, usually, but it's always worth a try, as it can't hurt and doesn't cost much. Did they suggest how you were to lose this weight? As most of us know, it's MUCH easier said than done. Remeber! Atkins, is perfect for overweight T2 diabetes.
You could make a fuss and ask to see the Diabetes Educator. Your PCT should have one. West Berks (mine) has 2, but I don't know what they do, because West Berks doesn't seem to run any training, neither DAFNE nor DESMOND. If they have DESMOND, where you live, it has an excellent reputaion. It's a course for T2s. DAFNE is for people on insulin, mainly T1s.
You could also download the protocol from the NICE website and take it with you to your health centre.
You might have more luck if you hunt up a copy of Dr. Bernsein's Complete Diabetes Solution. It's a bible to many of us here.
 

sleepylu

Active Member
Messages
31
Hi there

Thanks to all for taking time to reply.....

Because no one has told me any different, I have been following the Rosemary Conley GI diet & increased exercise.

I assumed that the medics low key approach was so that i wouldn't be freaked out? And to be honest, this forum has really confused & scared me that the "lets see how it goes if you lose weight" approach is not what should be happening! There seems to be very little consistency in advice from doctor to doctor ~ or is it that the advice varies depending on the individual?

Why not low carb? How can Atkins be ideal? A gastric band is beginning to look tempting!!! arrrrggghhh!

I can see the logic of all that you have been saying & will bear it all in mind when i next meet the nurse in 2 months time
 

Jem

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low key eh? lol ... yeah I can relate

diagnosed T2 one and a half weeks ago, prescribed metformin 3x500mg, but with more than a 3 week wait to see the diabetic nurse.

luckily (!!??) for me, I was diabetic (insulin dependant) in my pregnancy so I knew how to take readins and what kind of figures would be expected ... but no offer of a meter or anything was ever mentioned - I was diagnosed, spent half an hour making appointments and cut loose !

I insisted on seeing a nurse the following week and having a finger prick test there and then for bloods, and got the number of my diabetes nurse, who I then rang and basically badgered into giving me a BG meter and prescription for lancets and strips etc ...

Had I not asked, I strongly doubt I would have got anything.

I must point out that my diabetic nurse was very nice on the phone and left my meter (along with scrips) at reception the very next morning - and some helpful leaflets on coming to terms with this and healthy eating - so can't really complain about her!!

I have STILL yet to get to my appointment (2 more weeks) and have learned so much from these lovely people here ...

and strangely, developed an addiction to macadamia nuts ... go figure ;)

best, Jem xxx
 

sleepylu

Active Member
Messages
31
Hi Jem

It's good to know i'm not alone in the confusion!
I have been mogging on in my own way, losing a respectable 1.5 lbs per week since july & have added swimming 3 times a week to the diary!
I have an appointment with the surgery's dietician next week, lets see if she blows all my plans out of the water .....!

Everyone just seem sto be given a different regime to follow. Did they do a glucose tolerance test with you? Can I ask what your levels were? Mine were 7.8 after fasting & then 11.1 after the glucose.
 

Jem

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570
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People that feel just because diabates is a life-threatening "illness" it should be treated with kid gloves and nobody is allowed to have a laugh. My humour got me through abuse, near death experiences, serious and debilitating illnesses and lifelong pain and deformity - why give up the thing that works??
Hey Lu,

Congrat's on the losses and excercise plans - swimming is fabulous for everything :) apart from chlorinated hair haha

I broke my toe (excuses excuses) so am waiting for it to heal properly before getting back on my running machine ... and when I say running I mean hurrying and puffing machine lol -

I haven't had my GTT yet, god I hate those things, had them in pregnancy and post preg BLARGH ... still if it helps the (inevitable) conclusion then so be it - will let you know the results as and when.

No advice or regimes yet, but have been killing off my carbs as much as possible. EVen made some low-carb bread and pizza yesterday, will let you know how that turns out with my BG readings later lol ... have lost NO weight whatsoever yet, but dear husband tells me "it's only been a couple of weeks" and I'm expecting too much. I suppose it's because whenever I (yoyo) dieted before I lost shed-loads in the first weeks.

Good luck lovey and keep in touch eh!

Jem xoxox
 

DiabeticGeek

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Messages
309
sleepylu said:
I assumed that the medics low key approach was so that i wouldn't be freaked out? And to be honest, this forum has really confused & scared me that the "lets see how it goes if you lose weight" approach is not what should be happening! There seems to be very little consistency in advice from doctor to doctor ~ or is it that the advice varies depending on the individual?
I think that the real problem is that many GPs don't know much about diabetes. They are telling you what is in the medical textbooks, which is quite limited and hideously out of date. I have one of the main endocrinology books that is used in teaching today, and it's dietary advice is laughable. Things are likely to be very different if you get lucky and have a GP who is clued up on diabetes, or if you get to see a specialist. However, many people follow very flawed advice - and, unless they are really lucky, their health tends to go on an inevitable decline. This is why Type 2 diabetes is often considered to be a degenerative disease - because for many people it is. However, it doesn't have to be! It only degenerates if it isn't managed properly.

It is a very good thing to attempt to control the diabetes by diet and exercise, before resorting to drugs. Although there are some wonderful drugs out there, they do have side effects and if you can manage without them so much the better. However, you won't be able to do that unless you make fairly drastic changes to your diet.

I know that this is all scary and confusing at first. However, the important thing is not to panic - once you get on top of it, it really isn't so bad. You will, however, have to learn a lot. The only way to guarantee that you get really good healthcare is to learn enough to become your own specialist. Otherwise you are at the mercy of the NHS postcode lottery. It is quite possible to learn what you need to know, from this site, other web resources and a number of really good books.

For the time being I suggest that you do your best to cut back on carbohydrates. If you are overweight, then also try to loose some weight. The GI diet will help, but a low carb diet will help more. I also suggest that you get hold of a glucose monitor and learn how to use it. I know that most doctors tell newly diagnosed T2s not to do this, but honestly I think that cost is the main consideration there. Initially you need to keep track of your progress (hopefully you will see a downward trend over the next few weeks), and also you need to learn what effect different foods have on you (everyone is different, so there are limits to how useful generalizations will be).

Take things slowly, and don't try to understand everything at once - that way lies insanity! Most importantly, keep posting here - there are a lot of very knowledgeable people who will be able to help you.

Best of luck,

Tim.
 

1000nettie

Member
Messages
13
I was diagnosed in hospital and given a first appointment for the diabetic clinic at the surgery, but they could not get me in for 3 months. I was then just left to wait.

I bought a blood glucose meter myself (it was less than £4.00) and started measuring my levels, and they were constantly in the late 20's, so I made an appointment with a doctor and demanded some treatment other than diet, as it obviously had not worked. She was fine and put me straight on Metformin. I went to her a few times to have my treatment "tweaked" before actually going to see the same doctor at the diabetic clinic!

So it is definitely worth going to see someone and demanding some sort of treatment plan - I dread to think what might have happened had I left it the three months, even though I was following a weight loss plan and had lost at least 3 stone, it had not made any difference to my glucose levels.

You are also entitled to an eye test once a year to test for diabetic retinopathy - this is essential as it can pinpoint very early signs of damage than could be easily repaired if caught early enough.
You can also ask to see a dietitian, and you will need regular foot check-ups.

My advice is, educate yourself, find out exactly what you are entitled to, and go and ask for it. If you wait for them, it may be too late.