Newly diagnosed on 27th Oct

Mark14400

Well-Known Member
Messages
88
Type of diabetes
Type 1
Treatment type
Insulin
Boring background....I had my suspicions things weren't right (tired, excessive thirst, going to the loo 6 times at night) but when a work colleague said I have lost weight I reluctantly went to my GP...the next day he phoned me and said I had glucose in my urine sample and ketones and I should go to [email protected] A@E my glucose was 33 mmol and ketones were 0.7 mmol. To say I was shocked was an understatement. at the MDU the consultant suspected Type 1 Diabetes and prescribed insulin. I thought Type 1 was diagnosed when very young...I am 45 but there is a history of type 1 in the family....4 units of novorapid before meals and 18 units of Lantus in the evening. I think Lantus is called basal insulin. I have had 2 appointments with the diabetes nurse at the WISDEM centre but no appointments with a consultant who wanted to see me once my blood tests came back. It's been nearly 8 weeks now and I have had no appointment to see the consultant. Is this normal ? I would like to know what the diagnosis is ? thank you for any assistance
 
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Liam1955

Master
Messages
10,964
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Anti-Gay People, Self Centre People, Two Faced People and Bad Language.
@Mark14400 - Welcome to the Forum. I will tag @daisy1 who will provide you with some basic information that all new members receive.
 
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azure

Expert
Messages
9,780
Type of diabetes
Type 1
Treatment type
Pump
@Mark14400 Welcome :)

Sadly, Type 1 can be diagnosed at any age (look at the PM as an example). There are many Type 1s here who were diagnosed as adults.

I suggest you push to get that consultant appointment. Ask your GP why there's been a delay. Type 1s need care from a specialist rather than a GP surgery as they have more knowledge. You should also be given contact details for a DSN who can support you and answer any questions.

I recommend the book Think Like A Pancreas - it's great for Type 1s :)
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@Mark14400

Hello Mark and welcome to the forum :) To help you to get started, here is the basic information we give to new members, as mentioned above. Ask as many questions as you need to and someone will help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 220,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
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Mark14400

Well-Known Member
Messages
88
Type of diabetes
Type 1
Treatment type
Insulin
Thanks for all your advice, it is greatly appreciated. It's so much to take in and a bit scary at the moment, especially when I had blurry vision when I started on Insulin...thankfully gone now. It's good to know there are people who want to help. Sometimes I feel it's Me vs The World if you know what I mean. Glad I found this forum. Thanks again. Mark
 

Mark14400

Well-Known Member
Messages
88
Type of diabetes
Type 1
Treatment type
Insulin
Quick update....had an appointment with the dietitian today at the WISDEM centre and it's not unusual to wait this long for an appointment to see a consultant but will chase it up. She said if there was a problem, they would have contacted me. I still don't know if I am type 1 or 2 as there was nothing on my file (or she wouldn't say) but Blood Glucose is very good suggesting I am in a HoneyMoon period (She explained what that was)...... so, I'm still suspected Type 1 for now...Merry Christmas.
Mark
 
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himtoo

Well-Known Member
Retired Moderator
Messages
4,805
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
mean people , gardening , dishonest people , and war.
why can't everyone get on........
Hi @Mark14400
welcome to the forum from me too !! :)

as you are taking insulin it would be a good idea for you to invest in a book called Think Like A Pancreas.

Do keep pushing for an appointment with the consultant too.

oh -- and keep posting here with any query you may have
there are no silly questions when it comes to learning about managing Diabetes !!!!
 
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Mark14400

Well-Known Member
Messages
88
Type of diabetes
Type 1
Treatment type
Insulin
Huh...,DSN appointment today....reading between the lines it's looks like my bloods have got lost in the post. New Bloods for GAD antibodies and Thyroid function has been requested along with the usual A1C, LFT and electrolytes...On the verge of giving up. I'm a diabetic on insulin (possibly type 1) and I also have better things to do (including having a life)
 

Jamesuk9

Well-Known Member
Messages
504
Type of diabetes
Prediabetes
Treatment type
Diet only
Huh...,DSN appointment today....reading between the lines it's looks like my bloods have got lost in the post. New Bloods for GAD antibodies and Thyroid function has been requested along with the usual A1C, LFT and electrolytes...On the verge of giving up. I'm a diabetic on insulin (possibly type 1) and I also have better things to do (including having a life)
Given that everything in a local health authority is computerised and available on intranet to all involved in a patients care these days, that sound like a lame excuse for a **** up. Lost in the post is so last century.

Sorry to hear they have let you down. Badly it would seem.
 
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Mark14400

Well-Known Member
Messages
88
Type of diabetes
Type 1
Treatment type
Insulin
Given that everything in a local health authority is computerised and available on intranet to all involved in a patients care these days, that sound like a lame excuse for a **** up. Lost in the post is so last century.

Sorry to hear they have let you down. Badly it would seem.

Thanks Jamesuk9
It's so frustrating. I've been waiting nearly 3 months for a diagnosis. It has taken 3 DSN and 1 Dietician appointment (as well as numerous phone calls to the DSN team) to get to the point that they have requested repeat blood tests. All local blood tests came back as. normal (electrolytes, lft etc.) except Glucose at 29.2 mmol/l
. The ones that have gone missing were the GAD and c peptide and they have no idea what happened to them.
 
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Mark14400

Well-Known Member
Messages
88
Type of diabetes
Type 1
Treatment type
Insulin
The WISDM centre, I was diagnosed a month after you at the same hospital and that's my clinic now!
Ha...OK....I thought WISDEM centre was common name for all NHS Endocrinology Specialist centres !

I hope you didn't have the same trouble as me...
 

alhubb

Well-Known Member
Messages
101
Type of diabetes
Type 1
I don't think so, I think it's just the one in Cov! Anyway, feel free to message me if you ever need to chat as a fellow newly diabetic
 
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