Newly diagnosed

mike gibson

Active Member
Messages
41
Type of diabetes
Type 1
Treatment type
Insulin
Hello guys, I’m new on here and recently diagnosed only last Wednesday..everything happened quickly, went to see the doctor, bloods taken and by 9:15 the next morning the doctor rang me to say it was diabetes and arranged an appointment the next day with the diabetic nurse...unfortunately she called in sick and the next appointment I could have was November 1st...I don’t even know what my blood glucose level is, heck I don’t even know what type I am...I’ve cut down on sugar and trying to work my way to working out carbs in my food...thing is I feel in total limbo and left down by the doctors surgery and I’m not sure what to do..tingling in my hands and feet are getting worse but thirst has gone...also I should point out that I’m only 9 stone 10 so weight has never been an issue...question is, is it usual to wait so long to see a diabetic nurse once you are diagnosed..

Thanks
 

Bluetit1802

Legend
Messages
25,216
Type of diabetes
Treatment type
Diet only
Hi and welcome!

The first thing you must do is contact your surgery and ask for a print out of your test results. Being told "you have diabetes" and left in limbo is not good, but quite honestly it is fairly typical. Doctors normally devolve diabetes care to a nurse, and as your allocated nurse was off sick, this can't be helped.

You need to know the actual figures of your blood tests, and a print out will tell you this. If there is anything you don't understand on the print out, we can help you. Also, if you are in England, you can ask if your surgery puts test results on line and how to register for this, but meanwhile you will need that print out.

Please ask as many questions as you like, and I will tag @daisy1 for her excellent introduction post.
 
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Juicyj

Expert
Retired Moderator
Messages
9,032
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
Hypos, rude people, ignorance and grey days.
Hi @mike gibson Welcome to the forum.

I am going to tag @daisy1 in for our new members information which is a useful starting point for you.

I think the wait times can depend on which trust you're under as well as the perceived 'seriousness' of your diabetes, if you feel concerned you should call into your GP and ask to see if there is another nurse you can see so you can bring your appointment forward. They should also be able to tell you what your results were over the phone so it's worthwhile calling even to just get this information if they cannot move your appointment, let us know how you get on ?
 
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Buttons11

Well-Known Member
Messages
162
Type of diabetes
Type 2
Treatment type
Diet only
, is it usual to wait so long to see a diabetic nurse once you are diagnosed..
Thanks
It will depend a lot on your doctors surgery. I was told at a GP appointment that I was diabetic, to cut down on sugar, and given an appointment with the DN 4 weeks later. No other information whatsoever.
Luckily I found this forum and the help I have received here has been invaluable.
I asked the receptionist for a print out of my results and she told me they aren't allowed to print results any more, due to cost cutting. I asked her what my HbA1c was, and she obviously didn't know what it was, as she printed out the results, slid them across the desk and said "Don't tell anyone!"
After my last HbA1c the receptionist called and said the DN wanted to do a review, but she was going to be away on holiday and the first available appointment was SEVEN weeks away! She said there was no one else who could see me. I tried to say I didn't need it, but she insisted, so I took the appointment and cancelled it a couple of weeks before, giving it as a gift to someone who needed it more than me!
In the meantime, as others have said, find out your results so you know what your starting point is, and try to cut down on those carbs.
 
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woodywhippet61

Well-Known Member
Messages
489
Type of diabetes
Type 2
Treatment type
Diet only
I was told over the phone that my blood tests needed to be done again as something wasn't right but not to worry I could repeat them in a couple of months time as nothing was seriously wrong. I went to see my gp about something completely different and was told that I was diabetic. I burst into tears in shock. I had to have my blood tests repeated to make sure of the results and make an appointment to see the dn. Everyone's blood tests taken that morning went wrong somehow. So the dn's appointment was rescheduled for a couple of weeks later and I had to have the tests again.

The day that the tests were in, I had a phone call from the surgery and I had an appointment with the dn the next day. Because of all the faffing around I'd started researching the condition myself and found this forum AND I'd started changing my lifestyle before seeing the dn.

At the time I was panicking and felt that I had nowhere to turn for help, now I realise that I was lucky. I got a very lucky break .
 

Michelle_BBB

Active Member
Messages
29
Type of diabetes
Prediabetes
My story is very similar to yours Mike, 9 days ago I was informed I had type 2, I had my bloods done and 4 days later (including) the weekend my surgery called to say ‘Dr said a non urgent appt is required, can you make it this afternoon? ( kind of got my hopes up that non urgent meant bloods came back normal) .. anyhow my GP explained in detail what I had and I asked for a print our (as I have brain fog)lol ... I hope your surgery/GP explains a little more to you.

In only nine days, I’ve had so much support from these lovely people in this forum.
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@mike gibson

Hello Mike and welcome to the Forum :) Here is the Basic Information we give to new members and I hope it will be helpful to you. Ask as many questions as you want and someone will help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 250,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.