Firstly please can I say a thank you to you all.
Really a bit wiser about the whole thing now, met with education department, spoke to various parties also.
For the benefit , of others on the hunt for help in the future, I Note as follows:
Currently My Son
Has small class sizes, a teacher, education support staff for the class as a whole, a diabetic nurse who comes whenever asked by school, and parents who help when needed at school; so even now he has support.
My son has a medical need, This is a fact, all Type 1 diabetics do!!
As far as the special needs register goes, my son does not have a special need.
That is a fact!
This register is for very different levels of care, it utilises external agencies behaviourally, educationally, physocologically, etc for educational reasons.
My son does have times, where during hypo, or before/during sports, a need for extra care, but that care, is care by teaching staff in class, and as parents (we go on trips to help, we attend swimming to help), not by external education agencies.
When I met the education department I asked why a special needs registration is being proposed, and the answer simply is that, they don't have register that deals with medical needs, only special needs, which T1 diabetics (on its own) do not have.
I asked, by signing the form, what is gained by putting my son on a register & monitored by external agencies.
The crux is that it is the only way for the school, so they say, to get a few extra pounds for a part time staff member to help at times when my son has a little more care needed. Like before he eats his packed lunch, or when playing or in gym. Essentially no more that 10 hours per week on top of the care he gets. (Bear in mind he is on a pump, has good control, and a Libre )
My response is/was, I don't care if I speak to the chief minister myself, but the funding of a staff member, is a financial constraint of the education department, it is not, and belittles those who should recieve the care and help from the register, a reason to put someone on the special needs register who is not special needs.
Hell I'll even pay for a few hours myself if it helped.
The care he gets now is fantastic, this is not a moan, they really do well & help. And what was agreed in my meeting, is we all have the same common goal, which is my sons best care.
Essentially the teacher is fearful of the condition and making a mistake, where the other teachers in previous years have been more confident, perhaps. The fear no doubt is justified, you all know how hard this condition is, but time dealing with it, support from diabetic team, from us as parents, and yes some funding for a little extra help will improve this. As my son grows from 7; he will become more self sufficient in his care.
What did help was explaining, that this condition, will always be one step ahead of you, no matter how hard we try, it's always in front. We don't get perfection, over the last 4 years we make mistakes, we have highs and lows. All you can do is utilise best care, skill, effort at the time when you are faced with a situation, when we conveyed that, I think it helped.
In the end, the school took back the form, agreed there should be a way to get support for medical needs, without the special needs register, and they are planning to have a re-think.
My advice, do not put someone on the special needs register unless they have special needs, which simply T1 diabetes as a condition is not..........on its own.
Thank to all again,