VICTOZA users

Messages
2
Re: VICTOZA

Hi , does anybody have experience of coming off Victoza ? I have lost over 3 stone , I am a stone off my target weight but expect to reach it in a couple of months. My levels are totally controlled at a steady 5.9 , cholestoral is 4.5. Both were in double figures 6 months ago. I only take my 1.2 dose in the morning - no other meds at all.
When I reach my target weight what will happen if I stop my little jab ? I will be horrified if my levels and weight go up , but I do not want to be on this powerful drug for much longer given the thyroid cancer threat.Victoza has really worked for me , but I have worked really hard with it too , lots of excercise and healthy healthy food. It truly has turned my life around
Any help or advice for me
Many Thanks.
 

Madame P

Member
Messages
15
Re: VICTOZA

Hi Rick :D

I used to get terrible runs with Metformin and also with Metformin slow release (in the guise of Glucophage SR). I came off this drug and went on Victoza. I now have one normal visit each day plus every three/four days I might have two more "normal" visits to the Ladies! I think this means that if my bowels were not so sensitive I might have been constipated but obviously I'm not thankfully.

My suspicion is your runs and flatulence :oops: may be Metformin related but you don't say how long you were on your Metformin powder for and whether you still had the horrid side effects of the runs. If it is Victoza that is causing this then fingers crossed it goes away in a week or two 'cos if it don't you don't want to stay on it. Believe me I foolishly lived with Glucophage SR side effects for two years and my whole life revolved around where the loos were. I was even caught out on the coastal footpaths of Cornwall and had to bring toilet roll and wet wipes with me and hope no-one caught me whilst I was in mode desperado!!! :oops:

PS I'm hoping the Victoza will help me lose weight. I'm 13 and a half stone overweight and only five feet four inches high (I should really be ten feet high don't you think?). I'm hoping Victoza will help save me from having Gastric Band surgery.

You had a gastric bypass. Does this mean once you reach your target weight that you have to have the bypass removed so you can gradually eat a bit more to stabilise your weight? I want to hear from people who've had any type of gastric surgery.

Regards, Madame P
 

ricke17

Well-Known Member
Messages
46
Type of diabetes
Treatment type
Insulin
Re: VICTOZA

Hey Madame P,

I had the gastric bypass back in November 2008, at my biggest I was 32stone (6ft 3" tall) - and am now 14.5st and am hoping that I can get down to 13st with the help of Victoza.

I was and am still addicted to food and am able to eat that "but more" now and, at times, I make the wrong food choices which is reflected in my HbA1C and my BG's!.

Although the bypass "can" be reversed, I am sticking with it for life as I would revert back to my unhealthy lifestyle pre-op and pile on the pounds again.

I am only on 500mg of Metformin until tomorrow where I double it up to 1g (500mg twice a day) and then next Friday I go to 500mg three times a day.

I spoke with my diabetic nurse about the "runs" and flatulence and she, like you, thinks it is Metformin related and, fingers crossed, will die out soon. Trust me, it's awful and my flowers have started to wilt too!! :lol: :lol:

I was 14st 10.5lbs before I started on the Victoza last Friday and, like I said, I am now down to just over 14st 7lbs. My appetite has reduced and have decided to try harder with choosing better food and avoiding the silly stuff although I did treat myself to a chocolate bar today!

Let us/me know how you get on with Victoza and good luck!

Rick x
 

hybrid

Member
Messages
22
Type of diabetes
Type 2
Treatment type
Insulin
Re: VICTOZA

If this is what they intend putting me on it will just be my luck to get the side effects , but they also told me that I'd still be taking my 4 insulin shots as well !
Plus I wish to see how it affects the Testosterone Hormone that they give me in 600mg doses every 3-4 months
j
 

Skoobi

Newbie
Messages
4
Re: VICTOZA

Hi folks I've just found this forum! :)

I was put on Victoza last April but haven't found it's kept my blood sugar under control and although I have lost 23lbs :D so when I visited the clinic last week the dr has decided that they want to add in Lantus which is an insulin. :( I'm not sure how I feel about this but am going to see the diabetic nurse on 1st March to start it. I think if the pancreas works a bit maybe Victoza will help but we beginning to think that mine doesn't so I need a bit more help :oops:

Oh by the way has anyone else found that when you go to any other clinics or drs they only see the diabetic condition and not the person? I went to the hospital today and the very first question I was asked was Do you have any chronic conditions - like diabetes? When I said yes that was all she needed!! :( I felt bad enogh but that made me feel worse!

Sorry to bring a downer on the subject - I guess I'm annoyed with myself as well as the surgeon!!!! :cry:

Good luck on the Victoza folks
 

Madame P

Member
Messages
15
Re: VICTOZA

Hi Skoobi :D - any relation to skooby-doo we luv you? :lol:

Don't be sad about the clinics only treating the diabetes - if you were sent to them it is because they specialise in that particular condition. Having said that if they are thorough they will ask about any other medication you're taking too and why you are taking it since they need to ensure whatever you're already taking doesn't interfere with what they'd like to give you for your diabetes.

I can tell you a little about Lantus as I've been on it for just over 18 months. It's fine - no side effects. I think if you have a particularly high dose there's always the risk you might put on weight but since I started Victoza I've found my appetite decreased a little and I've lost about four pounds already - though only been on it for three weeks tomorrow so early days yet.

You don't say whether you're on any other medication for the diabetes like oral medication? I'm assuming you're type 2 as I understood Victoza is only prescribed to Type 2 - not sure why.

Why are you annoyed at yourself :? Don't beat yourself up for being diabetic. I'm assuming you have a lot of weight to lose given they gave you Victoza but that is not necessarily the reason you're diabetic - just means it makes the illness worse as fat seems to cause higher sugar levels as it squeezes the pancreas (or so I've been told by a friend who is also Diabetic).

Keep cheerful young lady - you're among friends here. It's good to share experiences.

Regards, Madame P
 

Madame P

Member
Messages
15
Re: VICTOZA

Hi all

Me again - this time I've got a question. I just spoke with one of the Diabetic team that is caring for me and they suggested that instead of taking Victoza at 7.30pm (along with my Lantus for convenience) that I should take Victoza in the morning.

My current weekday is: alarm goes off at 6.12am :( ; I snooze for 8 minutes :D and alarm goes off again :( ; etc, etc, until I reluctantly drag myself from my cozy bed at around 6.30am (wish it was pm!). I'm finally washed, dressed, creamed (I've got no wrinkles yet at 51 due to lots of Oil of Olay!!!) and leaving the house at around 7.15am but that's not's so bad as I'm now looking forward to another sleep on the train :D . Arrive at Liverpool Street station at around 7.52 if trains are on time. Get tube to Farringdon (I'm too lazy/tired to walk in the mornings but will do the 40 minute walk back to Liverpool Street tonight I promise) and buy breakfast either at Costa-lotta-coffee or at work where I can get some porridge. Sit on settee in works coffee bar, eat brekkie and read Kindle until phone alarm goes off at 9.16am when I have to get off my fat backside and walk over to the other building across the road and start work as a PA (ie, bossing my office husband, office daughter and office foster son around!!!).

On a weekend on the other hand I'm a lazy slob :D :D :D and get out of bed at around 9.30am/10am and have brekkie at around 11am whilst watching Saturday Kitchen and drooling over James Martin and his bits of butter!

So what time in the morning do you think I should take the Victoza? Do you think I can get away with weekdays at around 7am and then weekends at around 10am? Wot say you friends countrymen lend me your earholes or whatever the saying is :!:
 

diesel duck

Member
Messages
7
Re: VICTOZA

I know you are supposed to ideally take it at the same time every day, but I'd do it in the morning first thing and take advantage of it working properly when you are having something to eat, rather than at a time when you are not eating for many hours during the night.

It does mean being a bit later on the weekend for me :) , but I can't see 2-3 hours really being too much of a problem, but of course I'm no doctor. The Victoza leaflet says that if you forget a dose use it as soon as possible, but if it is more the 12hours, skip it and take it at the correct time the following day.

Worth reading the advice on the best diet for Type 2 diabetes , further back in this thread if you are struggling to control you type 2 diabetes effectively.
--
Victoza seems to be working for me with a similiar regime to what you propose, HbA1c at the clinic was down to 5.8 on Monday and 10kg weight loss in a little over 3 months is probably having a large effect on my control too, not too far off a completely normal HbA1c :D .

I wonder if PCTs and NICE are aware that even though Victoza is very expensive, it is likely to pay for itself for 7.5 years, if I don't need a gastric bypass at £7k+, in fact I would be very surprised if Victoza didn't morph into an anti-obesity drug sometime in the future.
 

Madame P

Member
Messages
15
Re: VICTOZA

Hi diesel duck :D

Thanks so much for your reply. I've managed to speak with one of my diabetic specialist nurses since seeing your reply and have confirmed with him that it's okay to try 7am weekdays and 9am/10am on weekends. Like you, he believes it is better to benefit from the drug when it is at its strongest and I shouldn't worry too much about the difference in time. So I will start this weekend.

Glad to hear your bg has come down since your last HBA1c from 6.3 to 5.8. I hope mine will come down - it's currently 7.7 but that's still better than previous which was 8 and before that which was 9.2 :!: Over last two years mine has come down but last year diagnosed with background retinopathy so it is especially important not to allow my eyes to actually suffer any damage that might affect my sight.

I hope I am as successful as you at the weight loss - 10kg is really good :mrgreen: I'm so envious but hope to get others to feel the same as I do about you in a few months if Victoza and the time I take it is successful for me like it has been for you. I'm very hopeful anyway and it is wonderful not to suffer from the runs anymore - thank goodness I ditched the Glucophage SR which as you know is metformin in disguise.

I love your bar chart showing your BMI and weight loss - ps my BMI is around 51.5 I think according to the BMI calculator. Fingers crossed I too will work out how to put a chart on and will do one in a few months showing as good results as you.

thanks again for giving me your feedback - it's good to "talk" isn't it?

Regards, Madame P :D
 

anna29

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Retired Moderator
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Re: VICTOZA

Hi. Finally been given victoza to try bring my high BS 18 19 20 down 11 on waking... Also high systolic BP n high cholestrol plus thyriod "bombed" again so MORE thyroxine. Have to attend two injection training sessions for newbie' s. Plus I got blown out of the water being told I probably have cushings disease also. Apparantly I tick so many boxes with the symptoms. Referrals gone in for scans blood n saliva tests. Just done a 24hr urine test for cortisol levels. Text book case with the classic symptoms [his words] Am stunned as I truly thought it was me my body shape, tiny arms n legs n bum with huge barrel belly! dry skin hair loss, knackered [most of time], keep need loo,High BP n BS n cholestrol. underactive thyroid,pink spots on belly,spider veins severe ankles,muscle wastage in tiny arms n legs. I truly thought it was down to underactive thyriod n out of control diabetes... Now am in a bigger fog than previous! Need a friend n support, not slept proper since weds its on my mind obviously. Anna.
 

mandydowns

Well-Known Member
Messages
48
Re: VICTOZA

Hi

An update on my Victoza treatment.....had a hopital check on Wednesday and my HBA1c is down from 9.9 to 5.3 since September 2010, when I started injections, my cholesterol is so low that they have taken me off statins, and my BP is on the low side so I am being monitored with a view to stopping my BP meds.

I have lost 3 and a half stone since September, with the help of Victoza and Slimming World and would encourage anyone starting this treatment to stick with it...I was so nauseous for a month that I nearly stopped the injections but I am so glad that I perservered.

Best wishes to those on this treatment and I hope that it is as successful for you too...my consultant said that she often got 'told off' for prescribing it due to cost, but in my case I think that it has paid off...... :p
 

anna29

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Re: VICTOZA

Hi. mandydowns, great to hear such positive results n news with your results and levels coming down so fantastically well, with veiw to coming off the meds. Thanks for the update as am due to just start on victoza n am aware it can cause nausea a few people hav said exactly same felt ruff n were ready to give up but persevered n turned corner to feel great with good results n new lifestyle.I will certainly try my best to hang in there with my journey on it, got high levels in BS n BP n CHOLESTROL n be more than happy to get 2.5 stone off [that gliclazide put on me] true it is expensive n should be used n treated with respect. Have to increase more statins meds n am so disapointed over this, envy you being the opposite n looking at coming off them! Hopefully I will end up following in your good footsteps.... It at times feels such a lonnnnng journey n gets me down, at mo am suffering infections n on my 2nd lot of antibiotics. BS waking hitting 12.6 n 2-4hrs after food am in the 18's 19's . cholestrol 8.6. Anna.
 

Simply.April

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Re: VICTOZA

Hi everyone. My name is April, and I'm new to this site.
I recently began taking Victoza and long story short, the bloated feeling and nausea had me worried that it wouldn't work for me, because I couldn't tolerate that feeling very well. Well, it's been close to 3 weeks now with no marked changes, but when I took my fasting BG this morning, it was only 140! I wanted to shout! This afternoon's check was just as pleaseing at 130, right on target! That is something that I haven't seen since being diagnosed in May of 2010! I have lost some weight, too, but unsure of the amount. I'm meeting with my dietician on Wednesday and plan on getting weighed in. I'm so excited!!!
A tip for those who are asking what to do about the nausea... I use regular Alka Seltzer. I burp once or twice, and I feel better. Give it a try! :)

For the benefit of Members.
140 mg/dl is 7.7 mmol/l.
130 mg/dl is 7.2 mmol/l.

cugila
Forum monitor
 

twistersal

Member
Messages
5
Re: VICTOZA

HELLO!!!!!! Just found you all!!! Glad to read all of these posts it has been suggested to be about going onto Victoza, but at my diabetis clinic appointment yesterday the doc was pleased that I had lost about 8lb since last appointment (of course I was too!!!!!!) so he said we would wait and see how my own waitloss went.

I am on Novorapid, Lantus, Glucophage, and Simvastatin. I also take Lomotil for my newly diagnosed IBS - no blood pressure probs tho (thank god)!!! I did not suffer with any side effects from Glucophage (luckily) but do have to be a bit more careful with food in relation to the IBS.

I am reading about the fantastic blood sugar, HbA1c and weightloss and I think I would be up for it if I am offered it! Only have to wait for my next appointment - hopefully I will have lost enough weight by then not to need it lol Cant see it myself!!!

Good luck to you all on Victoza - go for it!!!

Thanks for such an amazing site - I LOVE IT!!!!
 

paul @ gill

Newbie
Messages
1
victoza

Hi, my wife has been on victoza for 4 months, seemed to be going in the right direction after insulin was unable to cope with blood sugar spikes, [ 20 and above!] her numbers though have now started to creep into double figers again, even though she is on 1.8 of vic per day. also lost 2 stone!, doc has said if the numbers do not come back down she will have to go back on insulin.
Has anybody else got the same problem, and have you got an answer to it ?
 

sugarless sue

Master
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Re: VICTOZA

Hi Paul@Gill,

Welcome to the Forum.

Victoza itself will not achieve as much as modifying your diet and Victoza will.

Here is the basic advice that Ken and I give to new Diabetics, see if any of it helps.

Can you tell us what kind of daily diet your wife has and maybe we can make suggestions to help.


Here is the advice we usually give to newly diagnosed diabetics. We hope that these few ideas gained through experience help you to gain control and give you some understanding of Diabetes. This forum doesn't always follow the recommended dietary advice, you have to work out what works for you as we are all different.

It's not just 'sugars' you need to avoid, diabetes is an inability to process glucose properly. Carbohydrate converts, in the body, to glucose. So it makes sense to reduce the amount of carbohydrate that you eat which includes sugars.

This is NOT a low carb diet suggestion, just a reduction in your intake of carbohydrate. You have to decide yourself how much of a reduction will keep your blood glucose levels in control.

The main carbs to avoid OR reduce are the complex or starchy carbohydrates such as bread, potatoes, pasta, rice, starchy root veg and also any flour based products. The starchy carbs all convert 100% to glucose in the body and raise the blood sugar levels significantly.

If you are on Insulin you may find that reducing the carb intake also means that you can reduce your dose of insulin. This can help you to keep weight gain down as Insulin tends to make you put on weight and eventually cause insulin resistance. This should be done slowly so as not to cause hypos.

The way to find out how different foods affect you is to do regular daily testing and keep a food diary for a couple of weeks. If you test just before eating, then two hours after eating, you will see the effect of certain foods on your blood glucose levels. Some foods, which are slow acting carbohydrates, are absorbed more slowly so you may need to test three or even four hours later to see the effect that these have on your blood glucose levels.

Buy yourself a carb counter book (you can get these on-line) and you will be able to work out how much carbs you are eating, when you test, the reading two hours after should be roughly the same as the before eating reading, if it is then that meal was fine, if it isn’t then you need to check what you have eaten and think about reducing the portion size of carbs.

When you are buying products check the total carbohydrate content, this includes the sugar content. Do not just go by the amount of sugar on the packaging as this is misleading to a diabetic.


As for a tester, try asking the nurse/doctor and explain that you want to be proactive in managing your own diabetes and therefore need to test so that you can see just how foods affect your blood sugar levels. Hopefully this will work ! Sometimes they are not keen to give Type 2’s the strips on prescription, (in the UK) but you can but try!!

If you are an Insulin user in theory you should have no problem getting test strips.

The latest 2010 NICE guidelines for Bg levels are as follows:
Fasting (waking).......between 4 - 7 mmol/l........(Type 1 & 2)
2 hrs after meals......no more than 8.5 mmol/l.....( Type 2)

2hrs after meals....... no more than 9 mmol/l ......(Type 1)

If you are able to keep the post meal numbers lower, so much the better.

It also helps if you can do 30 minutes moderate exercise a day. It doesn't have to be strenuous.

The above is just general advice and it is recommended that you discuss with your HCP before making any changes. You can also ask questions on the forum on anything that is not clear.

Sue/Ken.
 

keltieseaber

Member
Messages
8
When to use Victoza

I have been using Victoza susccessfully since November 2010...so good are the results that I no longer use my nightdose of Lantus (38 units down to 8 and now none). Still take Metformin. Weight loss of 2.5 stone and losing about 1lb a week.

I take my dose at night (1.2) @ around 10.30pm, but have read that it has a life of about 15 hours and also that it is better to take in the morning to get the max benefit over the food you eat during the day..so it's not wasting itself overnight. This makes sense to me...any ideas if it would be OK to miss my evening dose tonight and take in the morning around 8.00am???

Thanks K
 

cugila

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Re: When to use Victoza

keltieseaber said:
I have been using Victoza susccessfully since November 2010...so good are the results that I no longer use my nightdose of Lantus (38 units down to 8 and now none). Still take Metformin. Weight loss of 2.5 stone and losing about 1lb a week.

I take my dose at night (1.2) @ around 10.30pm, but have read that it has a life of about 15 hours and also that it is better to take in the morning to get the max benefit over the food you eat during the day..so it's not wasting itself overnight. This makes sense to me...any ideas if it would be OK to miss my evening dose tonight and take in the morning around 8.00am???

Thanks K


Hi.
Welcome to the forum. As you can see we have merged your post with the pre-existing thread about VICTOZA.

In response to your question........not sure where the 15 hrs has come from as the SPC shows it to have a 24 hr action ? Is it maybe the 'half life' you are thinking of, the time a portion of the drug is excreted from the system but the drug is still effective ?

The pharmacokinetic half-life is around 12 hours and effects on blood glucose persists for 24 hours following one injection.

This is an extract from the official summary of product characteristics, lodged with the EMEA. The licencing authority.

Method of administration
Victoza is administered once daily at any time, independent of meals, and can be injected subcutaneously in the abdomen, in the thigh or in the upper arm. The injection site and timing can be changed without dose adjustment. However, it is preferable that Victoza is injected around the same time of the day, when the most convenient time of the day has been chosen.

Pharmacodynamic effects.
Liraglutide has 24-hour duration of action and improves glycaemic control by lowering fasting and postprandial blood glucose in patients with type 2 diabetes mellitus.

As to when you take it is a matter for yourself. I would however suggest that you discuss this with your HCP before changing the times.
 

keltieseaber

Member
Messages
8
Re: VICTOZA

Thanks for this...it probably was the half life! It does suit to do in the evening so I will stick with it.

Great to get considered advice so quickly... :)