fairylights
Well-Known Member
- Messages
- 185
- Type of diabetes
- Type 1
- Treatment type
- Pump
Pre pump HbA1c was 68 8.4% - really hoping that my next one will be below 7% after going on pump despite yesterday's blip!
Last HbA1c 55...yesterday really was an exceptionally bad day for me...not normally that much hard work...I put it down to the roast I had the day before...usually low carb but away for the weekend and indulged in a full on roast...roast potatoes...yorkshire puds and ALL the trimmings...worth it at the time...but didn't enjoy the after effects so much.
This stuff is revealing though. For me, yesterday, a typical day, I checked my glucose levels 38 times. I thought about or acted on Diabetes some 53 times. I bolused on nine occasions. I am predicting an Hba1C of 6% on my next run. I am well under the NICE guideline barrier. I have not had a serious hypo requiring assistance for 8 years. But the point of the exercise is to show that to achieve this, and even an Hba1C under 7.5% takes a substantial amount of hard work. It's no wonder that only 7% of all T1s in the UK achieve the <6.5% target and that for the higher number, 7.5% it is around 27%.
What this reveals across everyone is that it is far harder to manage T1D than the majority of people (including HCPs) realise, and it helps to highlight the "Loneliness of the Long Term Diabetic". This is why communities like this one are so important. How could someone you know and love appreciate just what you do every day of your life without having lived though it?
On page one, @himtoo and I discussed the insulin resistance seen when changing cannulas. Doesn't that qualify?I'm amazed no one has made comments about each others day and why they did such and such or why they didn't do something else - but then again we're all aware of how different we all are I suppose! Which in turn just highlights the fact 1 size doesn't fit all.
This has been a really interesting thread, we should do it more often!
I'm amazed no one has made comments about each others day and why they did such and such or why they didn't do something else - but then again we're all aware of how different we all are I suppose! Which in turn just highlights the fact 1 size doesn't fit all.
This has been a really interesting thread, we should do it more often!
@lizdeluz some interesting comments there. As you can tell I MDI, and there was me thinking MDI is quiet good and effective, because when I moved to MDI it was at the time the way to go, the newest thing on the block so to speak and correct me if I'm wrong the current standard treatment style for newly diagnosed T1s. Maybe my thinking if floored because I know no different - because i'm just ticking along under the radar with HbA1Cs in the acceptable range (just!) different management styles aren't mentioned during clinic visits. Then again if it ain't broke don't fix it!
Having read some pumpers daily blog there's a lot I don't know/understand and therefore I'm thinking my knowledge and understanding does need a catchup with current thinking and treatments?! but where would I get an open and frank discussion?
I'm happy to answer any questions regarding my daily blog posted earlier in this thread and wouldn't take any offence to any comments aimed at it - A) I might learn something new and B) like @Jestred has already posted a new T1 might learn something (from my mistakes!).
I agree that as T1s, once we're perceived to be on an even keel and managing a potentially crippling diseases with ease, we are left to our own devices - when we all know what a roller coaster ride it really is.