Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »Dismiss Notice
Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.Dismiss Notice
Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.Dismiss Notice
I think that the biggest thing I've learned is to be always surprised at how a metabolic condition such as I have, will always find something different than everyone else has.
The numbers of symptoms that are associated with RH and other hypoglycaemic conditions keep growing, no one is the same, no two are typical, only the symptoms are slightly different because of the other problems and conditions that accompany life.
I think that the reason that I can draw experience and a baseline with my own individual health is because other than my pancreas going OTT when eating carbs is my health is excellent. So nothing else can mask or skew the diagnosis.
I have normal blood glucose levels. My body likes being in normal blood glucose levels, it doesn't like anything else and it tells me in no uncertain terms that I have come out of ketosis. Even a small raise in levels, I get acute symptoms. My eyes start blurring, headache, sweaty, just don't feel good and of course the shakes!
My organs are healthy even my pancreas, (except you know what!) No fatty liver, no kidney or liver function problems. My heart is good, my BP is perfect!
The things I've learned because of the rarity of my condition, because I had to.
I know how it works, I understand the science, I have read so many papers and reports, watched lots of stuff on medical networking sites, YouTube, and blog pages. This stuff is interesting!
I am intrigued why and how, this condition is different but so similar to other metabolic conditions.
I am curious as to how and why the food we eat can impact our health so much.
I am obsessed to a point in how and why avoidance of certain foods can impact and improve your health so much because it works for me even if the man who literally saved my life, still tells me, I must have a few carbs a day! (I don't!) He has agreed on a ketogenic lifestyle has done wonders for me.
I am actually an idiot learning nutrition through experience, my food diary goes back to 2009. My readings are now that I understand the science, totally logical and I still cannot believe the GPs that looked at my diary and didn't think or know that having episodes of Hypoglycaemia is T2, when not on meds or having normal glucose levels every morning is unusual! That having spikes in more than double figures is something that only happens when you start at a higher blood glucose level. Hypos after a bowl of porridge isn't atypical of T2!
I am still learning to post comments making sure that it combines information with hoping that I'm not causing more problems that will help rather than come across like an advocate of being a low carb forum troll.
There is so much to cover and convince that what is making them ill is normal foods, the staple diet of bread, milk, potatoes, rice and the like.
Every meal that I have grown up is meat and two veg!
Breaking bread is a norm, having milk with tea, breakfast and even bedtime drinks is dairy.
But I'm intolerant to them.
The eat well plate is designed to bring a healthy nutritious diet to you.
Well, it didn't to me!
It was like pouring petrol on a fire!
My weight ballooned from fourteen stone to nearly eighteen stone in three years.
And I was not eating a lot!
My hypo hell!
I call my diet, the idiot diet. It is simply, intermittent fasting, a small meal diet, eaten infrequently, when I went and not much, sprinkled with healthy food for me, designed by me, (and my glucometer) and how my food interacts with digestion, my gut brain trigger and most Importantly my health and how I feel.
And I do feel great!
That about sums it up!
The thing is, I have come to realise that the battle against ignorance about how metabolic conditions should be treated as an individual personal balance of how food can make you ill. And neither my recommendation or someone else dietary advice will work for more than you. You are different, I'm different! I'm just a bit more weirder than you. Having a rare condition does make you sit up and notice the writing on the wall.
Knowledge is the most powerful tool that you can use, in helping others.
Knowledge and experience and recording everything that has happened to you will give you an account, to see how you have travelled down your personal journey, you must learn how to assimilate that information and use it in your daily life, your decision making and your life choices.
I'm a reactionary, I now teach my healthcare practitioners and discuss my experiences with my endocrinologist, my family, my work colleagues (I bore them) and friends. But of course my experience has helped so many looking for a friend who has done this, who will give answers to why medical advice is not working, won the battle against ignorance, come through my own personal hell.
And come out smiling!
Without this forum, I would not have had that knowledge, that I use!
Thank you, you special people you!
You need to be logged in to comment