Type 2 Life

[tina_marie]

Thank god for that. About time someone made a decision on Ron's medication and future treatment.
Well done @tina_marie and @eldergarth . ♡♥♡

Thanks Vicky this doctor is really good , its no 10 mins appointment with this Dr he will take as long as needed with you. Hes concerned about the arthritis and Rons job . He wants Ron to ask the neurologist if he thinks Ron should be working and report back to him and then the GP will decide whether to sign Ron off work due to ill health.

 

[ickihun]

Thanks Vicky this doctor is really good , its no 10 mins appointment with this Dr he will take as long as needed with you. Hes concerned about the arthritis and Rons job . He wants Ron to ask the neurologist if he thinks Ron should be working and report back to him and then the GP will decide whether to sign Ron off work due to ill health.

It makes all the difference when you get the right GP. Might be worth booking that gp only in the future.

 

[tina_marie]

It makes all the difference when you get the right GP. Might be worth booking that gp only in the future.

If Ron gets an appointment this is the only Dr he will see. This is the Dr that ordered the x ray back in may . Same Dr that got him to see neurologist. Last weeks call back by gp was by our own gp who is useless.

 

[JohnEGreen]

Thanks @ickihun no supplements just low carb and weight loss has done it so it shows things can be changed for the better hope things improve for you too soon.

@tina_marie Glad Ron is getting some answers and has found a good doctor to see best wishes hope to see him down woodend some time soon maybe

 

[AndBreathe]

Hello @tina_marie and @eldergarth - I like the sound of 10 hours, how much do you pay for the Cura-Heat Pads and where do you buy them ?
Tina, You need to get over to the GP that seeing Ron have these 'fits' scares you to death. And you worry constantly that he could hurt himself - such as if he was cooking or holding a kettle of boiling water and he had one he could severely scald/burn himself.
Well, I got a surprise yesterday at the GP's. I have known for the last 4 -5 years that I have Arthritis, and I was told earlier this year it was Psoriatic Arthritis. Then Yesterday my GP tells me he had a report sent to him from the Rheumatologist whom I last saw 2 weeks ago and she 'thinks' I could well have Osteoarthritis? This runs in families and my late Mother suffered with this, so there is the connection. So, the Rheumatologist has ruled out I don't have Psoriatic Arthritis or Rheumatoid Arthritis because the Steriod Injections and 4 week course of Steriod Tablets never eased the pain. However, the Rheumatologist is making arrangements for me to undergo Bone Scans and I will be hearing soon with an appointment. My Arthritis began in my lower spine first, then spread to my hips, then Kneess and shoulders - it's now in my fingers and they are more painful than my back these days.
I take Pregabalin which is used for Neuropathic Pain and I also take Tramadol which I find eases Bone Pain.
I know you will speak up to the Doctor and tell him or her that Ron should not have to suffer and wait all this time for results. Fingers crossed that Ron and You get good news today from the GP. We all wait for outcome after your visit to the GP today. William x

Liam - Do you eat foods containing gluten in your day to day diet? Psoriatic style Arthritis can be a symptom of gluten intolerance. I don't mean Coeliac, which is different. Apparently, anyone showing psoriatic arthritis (PA) type of symptoms should be tested for gluten intolerance.

A friend of mine received treatment for the PA for several years, including some very strong drugs. One day his wife commented whenever he had a sandwich at lunchtime, his complexion would become very florid indeed, so being a vain sort, he changed his lunchtime food (to prove her wrong), to find she was correct. His joints also became much less painful, so back to the Rheumatologist he went.

Our bodies are such a complicated puzzle; especially when things go wrong.

 

[tina_marie]

Well I've been in bed half an hour now and not so much as a twitch from Ron. Now after all these weeks when I've wanted sleep I'm wide awake , typical just typical.

 

[debrasue]

The GP is very concerned with what is happening as the neurologist report doesn't give them much info. The GP has put Ron on clonazepam to be taken at bedtime , which the neurologist said in his letter that Ron could have ,even though the other gp said that Ron would have to go back to see the neurologist for . The GP has also signed him off work for two weeks and wants to see Ron again on the 3rd October . Another piece of news is that Ron has an appointment to see the neurologist on the 30th September. So all in all things seem to be coming together for him at last.

That's really good news, Tina. I hope things are turning the corner for you both now. Big hugs xx

 

[Liam1955]

Hello @tina_marie and @eldergarth - Ron, Have just caught up with all the posts from last night, and that is excellent news (and about bloody time too!) - So now the 'ball is rolling' and it's onwards from now on and now you can enjoy a better quality of life - to Both of you. William

 

[eldergarth]

Hello @tina_marie and @eldergarth - Ron, Have just caught up with all the posts from last night, and that is excellent news (and about bloody time too!) - So now the 'ball is rolling' and it's onwards from now on and now you can enjoy a better quality of life - to Both of you. William

Thanks William hopefully things will finally get sorted now and have got a two week break from work now .
Hope R is looking after you and taking care of all your needs .
Not looking forward to the lumba puncture but if needs must

 

[debrasue]

Thanks William hopefully things will finally get sorted now and have got a two week break from work now .
Hope R is looking after you and taking care of all your needs .
Not looking forward to the lumba puncture but if needs must

Hi Ron - I'm glad things are on the move for you now.
Actually, I've had a lumbar puncture and it's not so bad. I think they make it sound worse than it is to cover their backs!
Big hugs xx

 

[Liam1955]

@AndBreathe - Thank You for that information. I believe the Rheumatologist I saw was making her job easier in diagnosing me with Psoriatic Arthritis, because I get Psoriasis patches on the skin over the joints (suffered with it now 42 yrs). I am on my 3rd Biological Injectable Drug and although these drugs keep my skin clear, there are supposed to keep me pain free - but they don't. So, now Psoriatic Arthritis and Rheumatoid Arthritis have been ruled out. When I mentioned my late Mother had Osteoarthritis of the Spine and Hips, that is what the Rheumatologist is saying I now have? I do have Arthritis in my Lumbar Facet Joints (lower spine) it showed up on 2 MRI Scans I had because of 2 Herniated Discs. Bone Scans are being arranged for me to have, and already had numerous x-rays -it just would be nice to know which form of Arthritis I do actually have? And then I can receive the proper treatment.

 

[eldergarth]

Hi Ron - I'm glad things are on the move for you now.
Actually, I've had a lumbar puncture and it's not so bad. I think they make it sound worse than it is to cover their backs!
Big hugs xx

Thanks Debs will find out on the 30th if having lumbar puncture and EMG study when see neurologist the numbness on my left side is getting worse and is now affecting my right leg and foot and finding it harder to grip things with my hands for any length of time .

 

[maureen5752]

Morning all , sorry to hear you've all got so many problems, didn't mean to be insentive, so much being going on last few months don't know where I am, my bgs been in mid 7's so much recently stressed out I suppose. Had great evening last night, been having lots of fuse blowing recently, last night it all went, freezer, kettle, recently bought tv doesn't work!!!! Had to throw out all my food!!! Great. Not worth claiming of insurance they will just put it up sky high next year, glad to hear @TINA-Marie & eldergarth are Finaly getting things sorted, good luck, Liam hope your feeling better now, did you enjoy your shower, Good day to you all

 

[Liam1955]

Hello @maureen5752 - It seems that some of us are ready for the 'Kn**kers Yard"!! (No Offence intended to anyone). The 7's are not bad assuming as you say 'you are stressed' - mine would be much higher had my electric gone off and food got wasted.(I have a Chest Freezer and Upright Freezer).
It's throwing it down today here in York, and much cooler than of late. So venturing out this afternoon to the Garden Centre where we will have a 'treat' of Coffee and Cake' - I have not been eating much with not doing much, so my body can just burn any fat I have!!! Oh yes, how refreshing to get back to showering. Have a lovely day Maureen and Weekend too. Wx

 

[maureen5752]

Hello @maureen5752 - It seems that some of us are ready for the 'Kn**kers Yard"!! (No Offence intended to anyone). The 7's are not bad assuming as you say 'you are stressed' - mine would be much higher had my electric gone off and food got wasted.(I have a Chest Freezer and Upright Freezer).
It's throwing it down today here in York, and much cooler than of late. So venturing out this afternoon to the Garden Centre where we will have a 'treat' of Coffee and Cake' - I have not been eating much with not doing much, so my body can just burn any fat I have!!! Oh yes, how refreshing to get back to showering. Have a lovely day Maureen and Weekend too. Wx

7's are my morning bgs god knows what it was last night, it's not just the waste of food, freezer packed up & tv & kettle, fused, cost of replacing, I always have few meals ready in freezer incase I'm not well or at hospital so lost that space in freezer now, Ive got a fridge freezer & I did have a half freezer, not anymore still worse things in life, glad to hear your feeling better, enjoy your cake this afternoon you deserve it, suns come out here but it's windy, forecast rain, well enjoy your day, pity we diabetics don't live closer could all have a good meet up? & yes I certainly agree think I'm ready for the kna..ers Yard!!!! Havent heard that saying for many years!!! Enjoy today

 

[doolallylady]

Hi everyone, hope you're all doing well. It's good to be back but it'll take me yonks to catch up on everyone's news.

My mother passed away suddenly on Wednesday and I also had a letter from my consultant telling me that I am being referred to a kidney specialist due to impaired kidney function, so all in all it's not a good week (well it hasn't been a good few months ).

Take care all. Karen xx

 

[13lizanne]

It's Karen - yaay! How absolutely wonderful to see you back on the forum Karen. I'm so sorry to hear of your Mum's sudden passing and your health issues but it's so good to have you back. Look forward to your posts and wicked sense of humour @doolallylady

 

[doolallylady]

@13lizanne
Thanks Anna, I feel like shouting 'I'm home'.
Just had the Coroner's office on the phone, because it was so sudden (even though she was 91) there has to be a post-mortem. This will be carried out on Monday and we have to wait for the results before we can start making arrangements.

Surprisingly bloods are not too bad, all things considering. They are staying under 10 and down to the 5's at times. Must admit that I haven't been checking as regularly as I should. It's annoying though because I have my yearly review next month and I presume I'm not going to pass my MOT with flying colours, if I do I'll be on the look-out for flying pigs.

Karen xx

 

[Liam1955]

Well Hello There @doolallylady - I am Sorry to hear about the passing of your Mum, we are here for you Karen even if you just want to have a rant and get things off your chest. Miss your lovely Wit and Sense Of Humour. Get better soon and hope your Hubby is at your 'beck and call'! Take Care Karen. Sending you big HUGS. William xx

 

[13lizanne]

I think that you get a pass Karen, considering the circumstances. I'm going to tag @ickihun who I think might be about @Liam1955 is not on forum just now and others will soon see that you are "home" I hope that the arrangements with the Coroner go smoothly x @doolallylady
Oops hello William, you Are here