Hang on minute Hana. I never ever said that I know more than a consultant so I am going to remove my post and Hazey can do whatever.
Conversation with GP!!!!
- Thread starter hazey276
- Start Date
Hi ihs,
Keep doing what you are doing. Your posts must have been a tremendous help to Hazey.
Catherine.
Keep doing what you are doing. Your posts must have been a tremendous help to Hazey.
Catherine.
Hi iHs, totally agree with catherinecherub, i really do appreciate what you have to say and take note of everything you say and i "don't want to do what i want." you and others have replied to my postings on this and other topics. If you don't want to post again that's OK but i really appreciate any advice from people on the forum.
Thanking you!!!!!!!!
Hazey
Thanking you!!!!!!!!
Hazey
Hazey
Life wont always be like it is at the moment for you. Once you get your TDD (total daily dose ) of insulin ok for your bg levels, you can then use the TDD to work out bolus insulin to carb ratios and life will be much better
The amount of insulin that you are using at the moment may seem fairly high but there a few peeps who need to use a lot more than you.
I would imagine at the moment you are not able to work because if nothing else you must be drinking gallons of water and up and down on the loo. Do test for keytones and if moderate or high go straight to hospital and get admitted. Once on a sliding scale for a while the hospital should be able to stabilise you and you can take note of the amount of insulin they are using once you start eating food.
Life wont always be like it is at the moment for you. Once you get your TDD (total daily dose ) of insulin ok for your bg levels, you can then use the TDD to work out bolus insulin to carb ratios and life will be much better
The amount of insulin that you are using at the moment may seem fairly high but there a few peeps who need to use a lot more than you.
I would imagine at the moment you are not able to work because if nothing else you must be drinking gallons of water and up and down on the loo. Do test for keytones and if moderate or high go straight to hospital and get admitted. Once on a sliding scale for a while the hospital should be able to stabilise you and you can take note of the amount of insulin they are using once you start eating food.
Gah!
I appreciate how you all feel, sometimes I get annoyed with my DM team too!
Oh, How I wish my exams would hurry up, then I could be a DM nurse to all of you! I'd make you all better!LOL I dont claim to be an expert, but at least I can empathise with the struggles of being a DM patient! Most docs I have come across dont have a clue.
Hazey, I'm sure I read that you are feeling down at the moment, and I believe that it may be due to your sugar levels. I know I get what my mum calls "rage issues" when my sugars are up, and I'm sure once you find an insulin regimen to suit you, you will feel more positive.
I appreciate how you all feel, sometimes I get annoyed with my DM team too!
Oh, How I wish my exams would hurry up, then I could be a DM nurse to all of you! I'd make you all better!LOL I dont claim to be an expert, but at least I can empathise with the struggles of being a DM patient! Most docs I have come across dont have a clue.
Hazey, I'm sure I read that you are feeling down at the moment, and I believe that it may be due to your sugar levels. I know I get what my mum calls "rage issues" when my sugars are up, and I'm sure once you find an insulin regimen to suit you, you will feel more positive.
Hi Aubergenie & iHs, to say i'm down at the moment is an understatement but i understand what you mean. I am still in work but operating at about 20% at present. Yes, i feel **** all the time and the constant getting up 6+ times every night certainly takes its toll. They've noticed at work that something isn't quite right but they only know what i want them to know. I know when i get the levels right i'll start to improve, it's just that all the horrible side effects that you get when you are high i seem to be getting all at once.
Oh well here's hoping!!!!!!!!
Hazey
Oh well here's hoping!!!!!!!!
Hazey
My advice to any Diabetic is "become an expert in your form of diabetes". Been the primary care route for my condition. I only experienced IDIOTS there. I now attend Kings Lynn Hospital to which I self referred myself. What a wonderfull group of people. They listen to me and really really know what they are talking about. My HbA1c is falling so beautifully. Check everything your GP says.
Hazy, having read through this thread I have been impelled to register & post.
First & foremost you need to realise one thing about your diabetes & it is simply that, it is YOUR diabetes, not your Dr's or consultants. These people however much they have trained only know about diabetes what they have been taught or read. You are actually living with it.
Don't get me wrong, I'm not for one minute saying that all Doc's are fools because they aren't but they have to cover a broad spectrum of the condition whereas you may or may not fit into that spectrum somewhere.
Take it or leave it here's a bit of advice for you, this weekend, assuming you won't be at work, carry out some tests. Firstly, make sure you have some sugary drinks and / or glucose sweets in the house, then on Saturday morning at the usual time, take your insulin but take 1.5 times the usual dose & then eat as you normally would. Do this for each injection, take 1.5 times what you would normally take. Now the key here that you will need to monitor your bloods every hour or so to build up a picture.
With any luck you will see your BS fall, maybe a little, maybe a lot. If at the end of the day your bloods have decreased but are still a little high then on Sunday morning increase your insulin some more & repeat the testing. Take control Hazy, be the boss. Only you will know when you feel right but you need to wrestle control back from the diabetes, control it don't let it control or run your life.
There is no table that anyone can consult that tells them how much insulin a person needs, everyone is different & from experience the sands are constantly shifting on the amount you should take. I gave up on my consultant after about 2 years, my knowledge of my condition was superior to his.
I'm screened every year at my GP's surgery & LUCKILY I have met a fantastic practice nurse who I feel 100% at ease with, she doesn't try to tell me what I should or shouldn't be doing but she actually cares about me or at least that is the feeling she instils in me. My current HbA1c is running at 7 which I am well chuffed with & that has been achieved my ME not the Dr's or consultants.
Good luck Hazy, don't feel like you are alone in this but realise that it is only YOU that can be in control
Gaz xx
First & foremost you need to realise one thing about your diabetes & it is simply that, it is YOUR diabetes, not your Dr's or consultants. These people however much they have trained only know about diabetes what they have been taught or read. You are actually living with it.
Don't get me wrong, I'm not for one minute saying that all Doc's are fools because they aren't but they have to cover a broad spectrum of the condition whereas you may or may not fit into that spectrum somewhere.
Take it or leave it here's a bit of advice for you, this weekend, assuming you won't be at work, carry out some tests. Firstly, make sure you have some sugary drinks and / or glucose sweets in the house, then on Saturday morning at the usual time, take your insulin but take 1.5 times the usual dose & then eat as you normally would. Do this for each injection, take 1.5 times what you would normally take. Now the key here that you will need to monitor your bloods every hour or so to build up a picture.
With any luck you will see your BS fall, maybe a little, maybe a lot. If at the end of the day your bloods have decreased but are still a little high then on Sunday morning increase your insulin some more & repeat the testing. Take control Hazy, be the boss. Only you will know when you feel right but you need to wrestle control back from the diabetes, control it don't let it control or run your life.
There is no table that anyone can consult that tells them how much insulin a person needs, everyone is different & from experience the sands are constantly shifting on the amount you should take. I gave up on my consultant after about 2 years, my knowledge of my condition was superior to his.
I'm screened every year at my GP's surgery & LUCKILY I have met a fantastic practice nurse who I feel 100% at ease with, she doesn't try to tell me what I should or shouldn't be doing but she actually cares about me or at least that is the feeling she instils in me. My current HbA1c is running at 7 which I am well chuffed with & that has been achieved my ME not the Dr's or consultants.
Good luck Hazy, don't feel like you are alone in this but realise that it is only YOU that can be in control
Gaz xx
I was diagonised with IGT (pre diabetes) in June 09 by the DN. I see her once a month and she checks my blood pressure etc. In Nov she decided to run the 12 week test thing, cant remember the letters and numbers. I happened to be at the local hospital for something totally unrelated and mentioned I was awaiting results of this test. because I was due to have surgery the following week the consulant called through to the path lab and got my results. He immediatly told me I must go to see my GP and get it sorted NOW! They made an appointment for me that day with the diabetes "specialist" doctor. I explained to her I had IGT, her response was "what does that mean?" when I replied impaired glucose tolerance, she asked me who told me it was called that! When I asked if the results of the test (6.5) meant I was diabetic she said "probably". She prescribed 2 x 500mg metformin and when I asked "what now?" She said I suppose you had better make an appointment with the diabetes nurse, who told me 2 days later I wasn't diabetic and only needed to take 1 metormin a day. It's no wonder people resort to forums such as this.
As has been discussed about food what is good for one is bad for another and its the same with medication Doctors can't just assume that taking this, that and the other will work and what suprises me most is that being type 2 they say there is no need to test. How the hell do you find out what foods suit you wait 3 months before you have the next blood test - in that 3 months your BS could be sky high because you haven't tested and know what foods to avoid that your body is reacting to. What do the doctors do they increase your meds. We should be trying to control our BS to help us get away from meds - which is cheaper the medication or the tabs for testing that they don't want to give you on prescription when the rules of the NHS is that you be prescribed the tabs. High BS' can lead to loss of nerves in hands and feet affect your eyes. It has amazed me to read how unimportant some of your doctors seem to think diabeties is - what is wrong with them. Every time I have a different food I test to see how I react to it but my free tabs will shortly come to an end that I got with my free Contour and I am going to make an appointment with the doctor to see if I can get them on prescription. I used to take Asprin but started to get acid so stopped. Don't get acid/heartburn hardly at all now. :shock:
I believe that the internet has been responsible for enabling we 'patients' to recognise the inadequacies of the medical professionals in today's world.
Also, drug companies invest a great deal of money in research and require to make a profit (not being charities) which causes them to heavily market drugs and dosages that may not actually be beneficial to the patient.
In the case of cholesterol, there is an alternative theory which is becoming more and more supported by mainstream medical bodies. It suggests that high cholesterol is a symptom of (reaction to) something and not actually the cause of anything. See...
http://www.cholesterol-and-health.com/M ... terol.html
ravnskov.nu/cholesterol.htm
I believe it and do not attempt to reduce my cholesterol, but instead try to shape it into something more helpful. IE: HDL must be at least 3 times LDL, simply because after LDL has done it's work it is carried out of the blood stream by HDL at the rate of 3 to 1. Consequently a ratio of less than 3 to 1 will leave LDL to gather in the arteries. Logical to me.
So, for me Statins do not exist. I use a natural vitamin (Niacin) which increases HDL such that in can remove all the new LDL and make inroads into the LDL previously deposited. Over 4 years my overall level has reduced from 10+ to 5.5. The GP hates to see the levels slowly dropping and continues to argue for Statins.
She also continually encourages me to take tablets for my diabetes (T2). I refuse and control with diet. I also discovered (by testing continuously) that wheat causes my sugar to rise much more than any other carbs. My doctor suggested that a wheat allergen can indeed cause such problems!
@#*$&~#
Why didn't she tell me this when I was first diagnosed :¬(
Also, drug companies invest a great deal of money in research and require to make a profit (not being charities) which causes them to heavily market drugs and dosages that may not actually be beneficial to the patient.
In the case of cholesterol, there is an alternative theory which is becoming more and more supported by mainstream medical bodies. It suggests that high cholesterol is a symptom of (reaction to) something and not actually the cause of anything. See...
http://www.cholesterol-and-health.com/M ... terol.html
ravnskov.nu/cholesterol.htm
I believe it and do not attempt to reduce my cholesterol, but instead try to shape it into something more helpful. IE: HDL must be at least 3 times LDL, simply because after LDL has done it's work it is carried out of the blood stream by HDL at the rate of 3 to 1. Consequently a ratio of less than 3 to 1 will leave LDL to gather in the arteries. Logical to me.
So, for me Statins do not exist. I use a natural vitamin (Niacin) which increases HDL such that in can remove all the new LDL and make inroads into the LDL previously deposited. Over 4 years my overall level has reduced from 10+ to 5.5. The GP hates to see the levels slowly dropping and continues to argue for Statins.
She also continually encourages me to take tablets for my diabetes (T2). I refuse and control with diet. I also discovered (by testing continuously) that wheat causes my sugar to rise much more than any other carbs. My doctor suggested that a wheat allergen can indeed cause such problems!
@#*$&~#
Why didn't she tell me this when I was first diagnosed :¬(
Yep, sometimes I'm convinced they're trying to kill me! They put me on ACE inhibitors when I was about 20, apparently it protects against kidney damage. However, my blood pressure has always been at the low end of normal so the meds sent it through the floor. I used to fall over every time I stood up, which was kind of annoying. So I asked the doctor and he said I should eat more salt! Right. So I asked a different doctor and he said they should never have put me on the pills because I'd never had any sign of kidney problems.
Also when my surgeon threatened to inject my shoulder during my operation, I wanted to make sure he wasn't going to inject steroids, as that nearly broke me before. He said 'no way! Why on earth would I give you steroids? You're diabetic! You can't have steroids!'. Hmm. That didn't stop them the last two times! Sometimes I'm just convinced they've been at the drugs
interesting about the niacin. How much do you take? I take a b complex supplement cos I read that diabetics with comications tend to have low levels of b vitamins. I have no idea if there's a causal link but I figured it couldn't hurt to take some vitamins just in case. Is it possible to OD with b vits? Is it better to take niacin separately instead of in a b complex? Congrats on reducing your cholesterol! Isn't it nice when you prove them wrong?
Also when my surgeon threatened to inject my shoulder during my operation, I wanted to make sure he wasn't going to inject steroids, as that nearly broke me before. He said 'no way! Why on earth would I give you steroids? You're diabetic! You can't have steroids!'. Hmm. That didn't stop them the last two times! Sometimes I'm just convinced they've been at the drugs
interesting about the niacin. How much do you take? I take a b complex supplement cos I read that diabetics with comications tend to have low levels of b vitamins. I have no idea if there's a causal link but I figured it couldn't hurt to take some vitamins just in case. Is it possible to OD with b vits? Is it better to take niacin separately instead of in a b complex? Congrats on reducing your cholesterol! Isn't it nice when you prove them wrong?
Hi tmylward,
Like badmedisin I was interested in how you are using Niacin and how you have had such success with getting your ratio of HDL high. I was totally ignorant of the 3:1 ratio and the fact that you can make in roads on LDL already layed down if you can get that HDL higher than the 3:1 ratio. As someone recently diagnosed with PVD/PAD I am currently on the look out via these boards and the internet for nuggets of information to slow down the progression of PVD/PAD but in order to do that I have a LOT of research to do. However even at such an early stage I have found that a lot of people that combine walking with B vitamins, Niacin and Thiamine have good results and that for a lot of people circulation boosters help too.
Continued good luck with your cholesterol, and thanks for your post
All the best.
Richard.
Like badmedisin I was interested in how you are using Niacin and how you have had such success with getting your ratio of HDL high. I was totally ignorant of the 3:1 ratio and the fact that you can make in roads on LDL already layed down if you can get that HDL higher than the 3:1 ratio. As someone recently diagnosed with PVD/PAD I am currently on the look out via these boards and the internet for nuggets of information to slow down the progression of PVD/PAD but in order to do that I have a LOT of research to do. However even at such an early stage I have found that a lot of people that combine walking with B vitamins, Niacin and Thiamine have good results and that for a lot of people circulation boosters help too.
Continued good luck with your cholesterol, and thanks for your post
All the best.
Richard.
