Response to Petition for CGM for type 1's

[Squire Fulwood]

I signed a petition for CGM's for type 1's and the Government has now responded.

https://petition.parliament.uk/petitions/151064?reveal_response=yes

 

[col101]

Just ready the response, standard toeing the NICE party line
Not sure what the "customer service platform" amounts to in practice though. Wonder if the PM has a CGM?

 

[Squire Fulwood]

This is my favourite bit.

"NICE’s guidance is based on a thorough assessment of the available evidence"

 

[Diakat]

I liked the bit about them concentrating on prevention. If we knew how to prevent type 1 CGMs wouldn't be requested by us.

 

[tim2000s]

This is my favourite bit.

"NICE’s guidance is based on a thorough assessment of the available evidence"

It misses any statement about "and cost benefit" because that's the key driver of CGM.

 

[Squire Fulwood]

It misses any statement about "and cost benefit" because that's the key driver of CGM.

True but I was actually being cynical about NICE guidance in general. Evidence based advice seems to be a modern casualty if anything Dr. Kendrick says is true.

 

[Juicyj]

As the NHS are keen for type 1 diabetics to avoid hypos then surely a CGM is the problem solver and in regards to using it 70% of the time - there isn't an opportunity to - it's all or nothing with using a CGM, and I think I can speak for the majority here that we would all utilise it 100% if given the chance.

 

[DunePlodder]

"generally no more effective than current methods of self monitoring".
I presume they are assessing it purely on the basis of HbA1c? For me the improvement in my life has been enormous. The number of hypos massively reduced, serious ones eliminated. I can go to bed confident that I'll be warned about an impending low. HbA1c hasn't improved much but the range of values is much much tighter.
Admittedly you have to put some work in, but if you do the benefits are clear. If they weren't, I wouldn't be spending well over a £1000 a year which I can ill afford.

 

[CarbsRok]

This is my favourite bit.

"NICE’s guidance is based on a thorough assessment of the available evidence"

Which is about 5 years out of date.

 

[anniehi41]

If you meet all the NICE Guidelines the CCGs still ignore them and they take no notice of your consultant either, they just say no. They know nothing about diabetes and this is apparent in their response to the petition for a CGM.

 

[Squire Fulwood]

Which is about 5 years out of date.

Gives you confidence don't it.