PIP Petition for Type 1.

[Lozchan]

Hello everyone. This may have been tried several times before. But I've just had the go ahead to have a petition published regarding the PIP. My son is 25 been type 1 since 10 he always was awarded the DLA but since the new PIP he has been refused. I know of other type 1 who have been refused too. So I decided to at least try to get something changed. If anyone on here agrees with me, please,would you be kind enough to sign the petition and perhaps,post it anywhere that you can. It is an unfair system, thank you.https://petition.parliament.uk/petitions/189976

It would mean a lot to many people who have since been refused the PIP life can be tough enough without having a small bit of independence taken away from you

Many thanks Lorraine.

 

[TorqPenderloin]

This is a serious question, but why does your son need the PIP? T1D by itself is not a reason.

Furthermore, if you value independence, why worry about being dependent on the government for income?

 

[ElkBond]

This is a serious question, but why does your son need the PIP? T1D by itself is not a reason.

Furthermore, if you value independence, why worry about being dependent on the government for income?

While I agree with Torq on the t1 disability and PIP. T1 not being a disability that should require a disability allowance unless complications have entered the mix. I do not appreciate his judgemental and condescending last sentence. You don't know the OPs situation or requirements so leave it out in future.

 

[nmr1991]

From what is posted on the petition you stated he also has a neurological condition (which affects people in different ways), i can only gather that your son might have some sort of anxiety around using needles etc or has some sort of hypersensitivity or doesn't respond well to medication (which is hard to determine because he's been a diabetic for 15 years), nonetheless you need to tell us specific details why he should be eligible for PIP, i applied myself once but was not successful, so i know from experience.

I guess everyone with type 1 would apply for PIP if it were that simple since it doesn't affect benefit cap and you can claim it while you're working.

 

[tim2000s]

Sorry @Lozchan, but from a personal perspective, I don't think, generally, people with Type 1 should be receiving PIP unless there are some very extenuating circumstances. Whilst it requires you to pay attention and look after yourself, there is no reason for it to be the reason for receiving PIP.

Other circumstances, however, can be good reasons, and I think that you need to focus more on those than T1D as the reason for getting PIP.

 

[hankjam]

Not knowing much about the particulars, I would imagine that if the son had DLA for 10 years there might be something else in addition to T1....

the PIP application form is a piece of work that F Kafka would have struggled with...

Wish you well @Lozchan

 

[catapillar]

You're petition doesn't seem to make a lot of sense. What is it that you are petitioning for?

PIP is supposed to help with extra costs caused by a long term condition. Usually I can't really see type 1 causing extra costs when all prescriptions are free on the NHS. What extra costs are being caused?

PIP is supposed to help with care needs or mobility needs caused by a long term condition. Usually type 1 causes neither care needs nor mobility needs.

If your petition is for everyone with type 1 to be able to tick a box and get a benefit, while that would be lovely, I can't see any reason why that's necessary or fundable. PIP decisions are made on an individual basis, as they should be, it seems your problem is simply that you are unhappy with the determination that has been made for your son, which doesn't seem to be anything to do with his diabetes but more about how his other health issues make managing his diabetes more difficult and mean he requires assistance with it. You don't need a petition, you need to be considering getting advice from charitable organisations on how PIP works and considering an appeal.

 

[tim2000s]

Hi @Lozchan I've just seen your other topic and I think you are approaching this the wrong way. In that topic you stated:

My son has constant hypo unawareness yet the medical assessor scored him 0 on the new assessment. And basically said he can look after himself!!! Don't think so!! As he fits when he hypos and then goes unconscious. Thanks for any advise or help.

According to the NICE guidelines, with this statement, he qualifies for CGM (and even a sensor augmented pump as @catapillar has) and you should be pursuing this with your hospital. It's a clear case that the NICE guidelines were provided for. You have mentioned he is on the autistic spectrum, but you haven't mentioned where. Does it stop him from using something like CGM? Does it require him to have constant supervision or care? Your petition talks about the Abbott Freestyle Libre in a round about way. Are you suggesting that he is capable of using this and it would make his life easier? If so then pursue CGM with the NHS.

The reason many of us are questioning your petition is that it's not clear why you think your son needs PIP, and what you are describing as a "disability" is in fact covered by existing guidance and should be provisioned by your hospital. If it isn't, you should get in touch with INPUT who can help you get that cover.

 

[Lozchan]

So are you all basically saying then that if PIP was awarded to diabetics you would refuse it???? How many of you can afford £100 per month for the freestyle libre?? Yes it would make life easier for my son. He is autistic, OCD, ADHD, Tourette's, ASD, totally dependent on me, to remind him to do injections, eat, etc etc etc. fantastic if you can manage your diabetes yourselves. He can't and never has. I constantly find him in a fit, it may not be the answer but it would help. Yes he did have DLA a for 10 years, now it's 0, if any have you have tried to apply for PIP you would know how awful that experience is and how degrading the whole process is. I think diabetics should be be entitled to it. Regardless of circumstances. Even more so when there are other conditions that run alongside it. Perhaps if you are the parent of a diabetic you would understand more. Or a carer. As I was told by a specialist not that long ago, it is normally the ones who look after the diabetics that stress out more then the actually diabetic themselves. When you see your child fitting and becoming unconcious only then can anyone really understand where I'm coming from. But according to the
PIP panel he can do everything for himself. Amazing. I maybe naive in thinking that people would be interested in signing this petition I am surprised by the negativity here. But heyho, that's life. It I still stand by what I've published. Not everyone can afford £100 for the freestyle libre.each month. No my son doesn't have an fear of needles, or finger pricking, he just doesn't d the blood test, I have to do that most times, and try and do That when someone is hypoing isn't a bundle of laughs. Anyway, thanks for your opinions.

 

[ladybird64]

@Lozchan, sorry but you're way off the mark here. No, I don't think all diabetics should receive PIP - why should they? They get free prescriptions (those on medication) which is a lot more than some do.
You haven't been met with negativity but honesty. You've also made a heck of a lot of assumptions about people here - there are plenty that have other health conditions to contend with too, plus adults with diabetes who have diabetic children. I explained in my other post why I understand what its like to come up against the PIP process - but it doesn't mean I agree with benefits being given "just because" someone has a particular condition. Are you reviving any support from an adult Social Services team, or diabetic clinic to offer help in any way?

 

[Nicksu]

One of my nephews has not lost his DLA despite the fact that he had DLA for supposed life. He has learning difficulties but because they have moved the goalposts he now does not qualify for PIP under the new rules.

 

[slip]

Tims post #8 is what you should be following up on.

Best of luck

 

[tim2000s]

@Lozchan - Your son and you should be following up on PIP on the basis of his need for constant care and not for diabetes. Please read my earlier post regarding CGM - you should be having that conversation with your hospital (and as I said, that's a very different conversation) as there is already contingency for people in his situation.

 

[ladybird64]

Also meant to mention - did you have supportive letters from any medical team your son sees? If you had something from the learning disability team, or psychology team, it would hold some weight. That would be the focus as to why his diabetes is uncontrolled, not the diabetes itself, but his inability to take care of it. DLA awards mean nothing now. My daughter was on the lifetime award for care and mobility, the latter which has been completely withdrawn.

 

[Lozchan]

Hi, I'm not out for any arguments here, if I've caused any upset then I apologise. I hadn't made assumptions. It's obviously a very tetchy subject. I've only come across a handful of people who've been refused the PIP as someone has said the goalposts have been moved. The tribunal panel had all my sons medical records from the past years, everything that the pyscholgists said, that he's incapable of looking after himself, to the amount of hypos. He fractured his spine last January due to a severe hypo, even that threw no weight into his case. All they went on was the assessment last June and the way he answered the medical assessor. I get no support from any services anymore, because as an adult I'm told he has to initiate the help. I don't count anymore. From receiving the DLA to nothing is hard. I am his registered carer, but that doesn't count. I wasn't getting careers allowance anyway. I just want my son to receive what he was getting before the PIP came into play. I will look into the CGM I ve been trying to persuade him to have a pump, but he has to want that too. I know there are many others who have other medical conditions as well has diabetes. But I still think every diabetic should recieve the PIP. That's only my opinion tho. I'm going to get him an alarm that looks like a wristwatch for night hypos. At least then that should help. And I'll,have to self fund the scanning device, at least then I won't have to have a battle with him to do blood tests. I'm sorry for those of you who lost their awards too. I just don't think it's fair. It's hard enough as it is. Anotherfriend went to tribunal and engaged a solicitor her son is type 1 and autistic too. They lost as well. but hey onwards and upwards.

 

[ally1]

I used to get DLA indefinable.
Had to apply for PIP, and was refused on all 3 occasions, even losing going to trunial 3 times.
I know very little about type1, as I am type2
I would never claim for being diabetic.
I had it for being bipolar which has its challenges. The DWP, are drastically cutting back on who can claim PIP, which I do agree with in some ways, but I do know of 9 people who have claimed for PIP, not because of being diabetic, but for other reasons and only one of those has been awarded PIP.

 

[ladybird64]

Hi, I'm not out for any arguments here, if I've caused any upset then I apologise. I hadn't made assumptions. It's obviously a very tetchy subject. I've only come across a handful of people who've been refused the PIP as someone has said the goalposts have been moved. The tribunal panel had all my sons medical records from the past years, everything that the pyscholgists said, that he's incapable of looking after himself, to the amount of hypos. He fractured his spine last January due to a severe hypo, even that threw no weight into his case. All they went on was the assessment last June and the way he answered the medical assessor. I get no support from any services anymore, because as an adult I'm told he has to initiate the help. I don't count anymore. From receiving the DLA to nothing is hard. I am his registered carer, but that doesn't count. I wasn't getting careers allowance anyway. I just want my son to receive what he was getting before the PIP came into play. I will look into the CGM I ve been trying to persuade him to have a pump, but he has to want that too. I know there are many others who have other medical conditions as well has diabetes. But I still think every diabetic should recieve the PIP. That's only my opinion tho. I'm going to get him an alarm that looks like a wristwatch for night hypos. At least then that should help. And I'll,have to self fund the scanning device, at least then I won't have to have a battle with him to do blood tests. I'm sorry for those of you who lost their awards too. I just don't think it's fair. It's hard enough as it is. Anotherfriend went to tribunal and engaged a solicitor her son is type 1 and autistic too. They lost as well. but hey onwards and upwards.

@Lozchan, we really are trying to be helpful, honestly lol. It is unfair that those in genuine need are getting this kind of treatment. We can agree to disagree on PIP for all, but thanks for giving some more info.
If he has ASD, then that may well class as a learning disorder, as well as a communicative issue - and therefore it is worth getting some specialist advice. Was he getting any kind of services from Social Services before? If not, it might be that he is eligible for a care assessment - whatever the case, you need some support.
Many Carers are outside of the official loop during to carer being refused PIP (probably one of myriad reasons they are refusing so many). I'm wondering if it might be getting some expert advice from Carers UK? They have an online forum and a helpline, but that's always busy.
If you email them, giving all the info you've given above, you might get some advice on what can be your next move.

I know it's demoralising, and I hope you understand why I've no faith in epetitions. Better to concentrate on getting a better result for you and your son.

Good luck xx