Gluten sensitivity and type one diabetes

[M80]

hi!
I have read a book recently and cooked from it, a surprise that came out of that was that taking away gluten is stabilising my bs more than reducing carbs.The book is great but food limited I think.So I could not go by just that meal plan.Too many eggs and cans of tomatoes.
I am happy because finally my bs is going normal.But also bit stunned, I have had tests two times for celiac and both times negative.(book by Vickie De Beer and Kath Meghaw called type one and 2 diabetes cookbook)
Anyone with same experience?

 

[AndBreathe]

I'm not T1, so please indulge me.

I've recently had the gluten discussion with the Endo. I tested negative, but that was absolutely expected as I was already eating a LC diet, which, in my case, meant I was significantly reduced gluten anyway. The endo agreed it would be potentially unpleasant to gluten-up, just to try to force a diagnosis.

Allegedly a very large proportion of folks with auto-immune conditions do very well when avoiding gluten. I've been eating that way for a short while now. I was sceptical to begin with (on the basis I must be having "hardly any anyway", but I have noticed some unexpectedly positive effects, and a sledge hammer reaction from something I ate when out for lunch recently. Looks like I'm probably stuck with the GF way of living for now.

I'll certainly be interested to see how you get along with it. As I already LC'd it's not massively life changing for me, but it does remove some options. Life could be a lot worse.

 

[ExD]

Try this site http://members2.boardhost.com/glutenfree/ or if that link doesn't work (mine seldom do) try typing - the coeliac, dh and gluten free forum - into google. They helped me a lot but I'm not type 1.
LCHF dieting can be adapted very easily.

 

[spook_kate_]

hi!
I have read a book recently and cooked from it, a surprise that came out of that was that taking away gluten is stabilising my bs more than reducing carbs.The book is great but food limited I think.So I could not go by just that meal plan.Too many eggs and cans of tomatoes.
I am happy because finally my bs is going normal.But also bit stunned, I have had tests two times for celiac and both times negative.(book by Vickie De Beer and Kath Meghaw called type one and 2 diabetes cookbook)
Anyone with same experience?

Hi @M80,

Very glad to see your thread. I'm T1 for 32 yrs and only since discovering this forum and adopting lowish carb high fat diet do I feel like I'm finally thriving, happier and healthier too. I found I react more favourably to gf products as well as my levels less up and down. Amazing how bad foods/processed foods have become or maybe it's just me and growing older!!

 

[M80]

Thank you all for replies! I will look at the link. Also agree to lowish carb and high fat, after reading and cooking from the book mentioned in my first post, I have swopped to more protein than before. What was good was to get some instruction on bolusing for protein. I used to be of the impression this was not necessary but it is,if only very little.
I am 36, I have done lchf before quite strictly and have previously also done both gluten and milk free meal plans.I do not like the word diet,it is not a diet.
When I did gluten free before, my weight was low despite eating big meals.My skin had a weird itch that came and went.After some years gluten free and better,I wanted to try to see if I could have it (gluten)back and felt it went well. (My weight went up by kilo each week initially when I needed that and went gf ,classic symptom that the gluten does affect my intake or lack of,nutrition.) Now, a pregnancy and no weight issues (normal) later, there is still issues with one bit of the skin that never heals.Suspect it is the Dermatitis Herpitatis or something associated with gluten. Because that feels calmer,and the Rosacea that appeared a few years back is also less of an issue.
Anyway, the biggest plus, is my bs. I really really try, but it has been like there is something just stressing it despite my best efforts. In only 2 weeks it has gone down in average under 10.And I am confident in 2 more weeks it might be normal. It is possible I think, the body managed to store up nutrients when I went gf before, but I have now exhausted that. And my reaction is back up (stress) when eating it. I am not celiac and can eat something that has had breadcrumbs in it but taken out etc, maybe that is why the tests have been negative? But there is a very strong link to my blood sugar and the gf diet. I know from experience though to avoid lots of gf products.They are very sweet and as far from fresh as you get. Mould thrives in these products that have a long shelf life and are high in sugar.Also too much egg is a negative for me, especially if not fresh but used as a binder in food.

Have a good feeling about this.Will let you know how it goes

 

[ExD]

Your itch could have been a touch of dermatitis herpetifloris (I haven't spelled that right) which is a kind of offshoot/side effect of Coeliac Disease, it can be very very distressing and some people who are not controlling their CD effectively can suffer from it for years. When its really bad it looks a bit like nettle rash and can last for months.
Did you have an endoscopy to try to diagnose your CD or just blood tests? Did you keep on eating gluten before your endoscopy
If you do have CD, diagnosed or not, you must cut out ALL gluten - merely avoiding it will still damage the villi in your intestines and eventually make you very ill or even shorten your life.
Sorry, don't mean to sound scary.

 

[M80]

Hello again ExD, I only had bloodtest, when i was off completely for 2 years I was very strict and I can not say I am keen on going there again.Although it did heal me in the long run it was very hard, as a type 1 diabetic as well.Have wondered if it wasDH the skin thing, and it is possible, however none of the 4-5 specialists I saw confirmed this. They have nor helped much.
Anyway, after a few weeks off gluten I found myself just too restricted and felt like eating dark chocolate and drinking wine every occasion to compensate.And my bs went back up.So I decided it is just not working for me to be gf.
However, I have now read about the low fodmap way and a lot of the things seem to fit.I am definitively better when I avoid gluten (or wheat mainly) and my bs is much more stable. It does not seem to be a coeliac issue though, I have not got those symptoms.It is possible it has to do with not being able to digest because not of the gluten it says in the low fodmap book, but the way the sugar molecules are.I definitively feel my bs is not reacting normally to certain foods.Even if I count the carbs right, my body gets stressed.And the bs goes higher than expected. So the good thing about fodmap is it is not so restrictive.
It also seems to tie in with histamine intolerance (I know there is a lot of different things now)that I have suspected. However instead of following lots of different lists I will try to find a balance that excludes nothing but reduces the problematic things like gluten and adds more of the build up foods like veg low on fodmap/histamine.(www.healinghistamine.)