diabetic diarrhoea

Katrina5664

Active Member
Messages
31
Type of diabetes
Type 1
Thank you everyone. I have been tested for coeliac and indeed although I did not test positive tried a gluten free diet for 3 months and it did not make a difference - I have still got loads of GF flour in the cupboard from the experiments with GF bread. Going back on to gluten containing products made no difference to the problem. Basically I have been told to manage it with immodium type tablets end of story. I will get hold of the DSN tomorrow and see if she has any ideas - plastic pants sound good (ho not ho)
 

spook_kate_

Well-Known Member
Messages
650
Type of diabetes
Researcher
Treatment type
Other
Hi @Katrina5664, yes diabetic diarrhoea is gastroparesis, a complication of the autonomic system sometimes known as Dan - diabetic autonomous neuropathy. Times of stress, rich, creamy food or for no reason, diarrhoea happens. Gastroparesis is nerve damage, causing diarrhoea/constipation, belching, farting and tender stomach areas, bloatedness. Feeling stuffed after 3 mouthfuls.. Totally charming. Not!!

It can come and go, motilium and immodium can help, quitting wheat does to, well in some people

How you doing now??
 
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Katrina5664

Active Member
Messages
31
Type of diabetes
Type 1
Hi @Katrina5664, yes diabetic diarrhoea is gastroparesis, a complication of the autonomic system sometimes known as Dan - diabetic autonomous neuropathy. Times of stress, rich, creamy food or for no reason, diarrhoea happens. Gastroparesis is nerve damage, causing diarrhoea/constipation, belching, farting and tender stomach areas, bloatedness. Feeling stuffed after 3 mouthfuls.. Totally charming. Not!!

It can come and go, motilium and immodium can help, quitting wheat does to, well in some people

How you doing now??
Sorry to take so long to reply - laptop packed up. I am keeping it fairly well under control in that it usually only flares up at about 8 in the evening for a couple of hours which is when I think my Lantus runs out and pushes my b s up. I am looking into changing the one dose of Lantus to two - splitting my dose - to see if I get better coverage.
How are you doing?
 
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Tony337

Well-Known Member
Messages
727
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Not being on holiday....
mmm Hello Katarina
I have coeliacs but also Bile acid malabsorption which gives you bad guts and not alot of people have come across it.
You need a seHCAT scan which is also know as a nuclear test a phrase i prefer as it sounds much more impressive.
(truth be told they give you a radioactive pill and you go back in a week and scan you to see if theres any sign of radioactivity and this will show whether you have Bile acid malabsorption)
Suffice to say its an autoimmune problem and if it is that then its treated with powders the name of which i cant say or spell!

I wish you well but your GP should be sending to to a gastro type specialist with your issue as i know through experience can be very debilitating.

Kindest regards
Tony
 
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Struma

Well-Known Member
Messages
536
Type of diabetes
LADA
Treatment type
Other
Hi @Katrina5664, yes diabetic diarrhoea is gastroparesis, a complication of the autonomic system sometimes known as Dan - diabetic autonomous neuropathy. Times of stress, rich, creamy food or for no reason, diarrhoea happens. Gastroparesis is nerve damage, causing diarrhoea/constipation, belching, farting and tender stomach areas, bloatedness. Feeling stuffed after 3 mouthfuls.. Totally charming. Not!!

It can come and go, motilium and immodium can help, quitting wheat does to, well in some people

How you doing now??
From reading this forum, autonomic diarrhoea and gastroparesis might not be the same.
Perhaps these might help:
http://www.diabetes.co.uk/diabetes-complications/autonomic-neuropathy.html
http://www.diabetes.co.uk/diabetes-complications/diabetes-and-gastroparesis.html
 
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Katrina5664

Active Member
Messages
31
Type of diabetes
Type 1
mmm Hello Katarina
I have coeliacs but also Bile acid malabsorption which gives you bad guts and not alot of people have come across it.
You need a seHCAT scan which is also know as a nuclear test a phrase i prefer as it sounds much more impressive.
(truth be told they give you a radioactive pill and you go back in a week and scan you to see if theres any sign of radioactivity and this will show whether you have Bile acid malabsorption)
Suffice to say its an autoimmune problem and if it is that then its treated with powders the name of which i cant say or spell!

I wish you well but your GP should be sending to to a gastro type specialist with your issue as i know through experience can be very debilitating.

Kindest regards
Tony
Thanks Tony
Think I would need to change docs to get that done - I was basically told to take the tablets and manage it. But will take it up when I go for my review at the hospital in June. If I can keep to being at its worst late evening until then at least I can enjoy taking my dogs out morning and afternoon.
Katrina
 
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Katrina5664

Active Member
Messages
31
Type of diabetes
Type 1
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spook_kate_

Well-Known Member
Messages
650
Type of diabetes
Researcher
Treatment type
Other
Sorry to take so long to reply - laptop packed up. I am keeping it fairly well under control in that it usually only flares up at about 8 in the evening for a couple of hours which is when I think my Lantus runs out and pushes my b s up. I am looking into changing the one dose of Lantus to two - splitting my dose - to see if I get better coverage.
How are you doing?
Hey, not so bad thanks!! Generally go through flare ups 2 days a week . Keeps me on my toes
 
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Linda6890

Newbie
Messages
3
Type of diabetes
Prediabetes
Thank you everyone I tried the intolerance route and nothing made any difference. I was diagnosed last year (at the age of 60) after an emergency operation for an infected insect bite and they put it down to the amount of antibiotics I had to have. But according to the experts this should now not affect this area. I have had a colonoscopy and there are no problems there.
Katrina
I don't know if anyone else has suggested this....

If you were on too much antibiotics for too long, you can kill the friendly bacteria in your bowels. Try taking yourt tablets to put the bacteria back there.

I suffer from a similar problem only I know mine is a gluten-sensitivity.
 
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Linda6890

Newbie
Messages
3
Type of diabetes
Prediabetes
I don't know if anyone else has suggested this....

If you were on too much antibiotics for too long, you can kill the friendly bacteria in your bowels. Try taking yourt tablets to put the bacteria back there.

I suffer from a similar problem only I know mine is a gluten-sensitivity.
Sorry that should be yogurt...
 
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Zebs29

Newbie
Messages
4
Type of diabetes
Type 1
Hi. Have you been tested for Small Intestine Bacterial Overgrowth (SIBO). GP needs to refer you for gastroenterology dept a hydrogen breath test. If it is positive. a short course of antibiotics makes a big difference. Its common in diabetes. It can reoccur though. I was told I had autonomic neuropathy and also IBS years ago and suffered thinking nothing can be done. I had multiple food sensitivities causing diarrhea and wind. They have pretty much gone now. Good luck. I hope you get some answers soom
 
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Red shaw

Member
Messages
19
Hi Katrina
Whilst I realise you probably do have this horrible complication of diabetes, have you cut out onions, spring onions, leeks, shallots and basically all of the onion family? My sister has a violently horrible intolerance of all things onion and has been severely ill in the past from it. It is hidden in most processed food, so you would need to check. I mentioned it to a paediatrician once (my daughter had stomach problems) and it is a known phenomenon. I am mildly intolerant but manage a little bit of onion. I was very, very ill after a vegan meal at a wedding a couple of years ago.
I really hope you can find a simple cause for this and get rid of the symptoms.
 
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purpleellie30

Newbie
Messages
1
Type of diabetes
Type 2
I was recently diagnosed with type 2 and started on 500mg x 2 per day of metformin and have suffered going some days 6+ times and not much notice! To the point unless I know where the loo is I either a, don't go out or b, don't eat or drink. No fun! I was diagnosed with ibs back in the 90's but worked out what to avoid and haven't really suffered in about 10 yrs until I started taking metformin gp said to give it time to settle hope he's right! :-(
 
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Bluetit1802

Legend
Messages
25,216
Type of diabetes
Type 2 (in remission!)
Treatment type
Diet only
I was recently diagnosed with type 2 and started on 500mg x 2 per day of metformin and have suffered going some days 6+ times and not much notice! To the point unless I know where the loo is I either a, don't go out or b, don't eat or drink. No fun! I was diagnosed with ibs back in the 90's but worked out what to avoid and haven't really suffered in about 10 yrs until I started taking metformin gp said to give it time to settle hope he's right! :-(

If it doesn't settle, ask your doctor for the slow release version. This is kinder on the tummy. Meanwhile, make sure you drink a lot of fluids
 
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novoguy

Active Member
Messages
40
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
smoking
Yes I agree the slow release metforman is much better.