Degludec (Tresiba) and muscle/ joint pain

[Po girl]

Hi to all out there!
I've not posted for a long time so new to this still. I've had T1 for 43yrs and have always managed it with insulin. I'm 59yrs old and have had good control over the years but apparently have some slight retinopathy in left eye but not affecting vision so far, and also Osteo arthritis, Carpel tunnel, and trigger fingers which I've been told are common with diabetes?
My issue is much worse than this - I have been suffering neck and shoulder pain from frozen shoulders etc over the years which have been operated on, but last year due to an increase in pain which had spread to most of the upper body I was diagnosed with Fibromyalgia.
Previous to this I had been changed onto Tresiba about 8mths before, and before this I was on Levemir for years. I was taken off it because I had some lows ? Control was good though and I had maintained a good weight for years and was very active.
In the last year I have been trying to wean off strong pain relief medication but it continues to worsen.
My quality of life is poor, I don't sleep well, it's hard to maintain full time work, and exercise is painful - during and afterwards!
What has happened to me ... Is it the Tresiba - had anyone else has issues with it?

 

[kaylz91]

I was put on Tresiba at my diagnosis 8 months ago, although I have nothing to compare it to I have had no issues with it x

 

[ickihun]

Sounds like statin side affects rather than insulin. But I could be wrong. I haven't used tresiba. I'm on toujeo300. I'm having aches and pains but not as bad as pins and needles and foot cramps from a statin.
I'm very overweight so its thought some aches and pains from excess weight.
I'm assuming your a healthy weight?

 

[donnellysdogs]

I take it they have mri'd your back, neck, spine at some point with frozens shoulders, osteo etc?

I've hadeverything you mention in practically the same years-could be twins on all of it.. including the pain.

Mine that I was not aware of was largely down to aspartame, sweeteners. Diagnosed apparently 2003 , not told till 2015.

Also go degeneration in hands, knees and spine. Had all the MRI's/xrays done to check it wasnt mestastis.

Statins caused huge pain too.

I'm intolerant to the the gabapentins etc, ended up on diazepam and butrans patches for a very long time. That was due to muscle spasms in neck from biopsies.

However, got off all and never have any painkillers at all.

Survive on turmeric for its anti inflammatory natural qualities. Have at least a teaspoon a day with ginger and cinnamon.

Due to the damage to stomach and colon in past 5 years have mainly mushy veg for food.

I am also on tresiba. 3 times on and off in last 3 years and cannot say my pains and aches are worse for it. Been back on it again since October.

I had a good referral to pain physio and psychoanalyst. They noticed the way my shoulder had dropped an inch and the way I stood because of pain. With their help I still have pain but can do the self help things to minimise it although it doesnt go. ACT therapy is good for pain and living with it.

As said though, I havent found tresiba worsened me.

 

[noblehead]

What has happened to me ... Is it the Tresiba - had anyone else has issues with it?

The member @robert72 has been using Tresiba for the last couple of years and may reply to your thread, but I've not seen anyone mention that they get joint pain using the insulin but that's not to say it can't happen.

 

[robert72]

hi @Po girl

Just to say that I've been on Tresiba for three years now and haven't experienced any pains as a result. Hope you can find out what's causing your issues.

 

[Po girl]

Thanks to all for your responses - I'm just a little overweight and don't take statins at all. I do have turmeric with black pepper each day but nothing helps. As for artificial sweeteners I try and avoid as much as I can so only have the occasional yogurt that may have it in?
I've had the ops on my shoulders and there's no more the can do for my neck pain but it's bearable. It's the all over burning feeling of pain, being lethargic and muscle and joints just not as active as they were up to starting Tresiba.
I've made an appointment to go and discuss with my diabetes specialist nurse to see if there is another insulin I could try?
Oh yes I did try Toujeo for a while before the Tresiba but control not good.
Not sure what else I can do?

 

[ann34+]

Hi to all out there!
I've not posted for a long time so new to this still. I've had T1 for 43yrs and have always managed it with insulin. I'm 59yrs old and have had good control over the years but apparently have some slight retinopathy in left eye but not affecting vision so far, and also Osteo arthritis, Carpel tunnel, and trigger fingers which I've been told are common with diabetes?
My issue is much worse than this - I have been suffering neck and shoulder pain from frozen shoulders etc over the years which have been operated on, but last year due to an increase in pain which had spread to most of the upper body I was diagnosed with Fibromyalgia.
Previous to this I had been changed onto Tresiba about 8mths before, and before this I was on Levemir for years. I was taken off it because I had some lows ? Control was good though and I had maintained a good weight for years and was very active.
In the last year I have been trying to wean off strong pain relief medication but it continues to worsen.
My quality of life is poor, I don't sleep well, it's hard to maintain full time work, and exercise is painful - during and afterwards!
What has happened to me ... Is it the Tresiba - had anyone else has issues with it?

Hi, the frozen shoulder would have been diagnosed by xray, i imagine, were you referred for this latest pain which was diagnosed as fibromyalgia? It is not a very meaningful term. We all age much as the rest of the population, and get some of the usual ageing problems, especially if we have a genetic tendency - eg. OA, which, i am told by a doctor, most of the population has signs of on Xray by 60-65, tho some are spared the pain for years. Then, for many Type one's, there may be the likelihood of more autoimmune disease. Look at your relatives' histories - any eg. PMR? This is common anyway, in older people, it often starts round the shoulders, it is an autoimmune disease which can be very variable and, in some, very debilitating, it burns itself out over several years - two of my relatives had it - you could check with your GP if not done so already? In rushed surgeries the tendency may be to focus on diabetes related things - it may not be...? I hope things sort out

 

[Po girl]

Hi, the frozen shoulder would have been diagnosed by xray, i imagine, were you referred for this latest pain which was diagnosed as fibromyalgia? It is not a very meaningful term. We all age much as the rest of the population, and get some of the usual ageing problems, especially if we have a genetic tendency - eg. OA, which, i am told by a doctor, most of the population has signs of on Xray by 60-65, tho some are spared the pain for years. Then, for many Type one's, there may be the likelihood of more autoimmune disease. Look at your relatives' histories - any eg. PMR? This is common anyway, in older people, it often starts round the shoulders, it is an autoimmune disease which can be very variable and, in some, very debilitating, it burns itself out over several years - two of my relatives had it - you could check with your GP if not done so already? In rushed surgeries the tendency may be to focus on diabetes related things - it may not be...? I hope things sort out

Hi, the frozen shoulder would have been diagnosed by xray, i imagine, were you referred for this latest pain which was diagnosed as fibromyalgia? It is not a very meaningful term. We all age much as the rest of the population, and get some of the usual ageing problems, especially if we have a genetic tendency - eg. OA, which, i am told by a doctor, most of the population has signs of on Xray by 60-65, tho some are spared the pain for years. Then, for many Type one's, there may be the likelihood of more autoimmune disease. Look at your relatives' histories - any eg. PMR? This is common anyway, in older people, it often starts round the shoulders, it is an autoimmune disease which can be very variable and, in some, very debilitating, it burns itself out over several years - two of my relatives had it - you could check with your GP if not done so already? In rushed surgeries the tendency may be to focus on diabetes related things - it may not be...? I hope things sort out

Hi,
Thanks for all that info. They thought the original neck and shoulder pain about 10yrs ago may be PMR and I was put on Steroids. As you can imagine this played havoc with blood sugar levels and did nothing for pain. The MRI showed the OA in neck. This has been long term but manageable pain which flutauates.
I don't have depression but this pain is an all over pain - mainly in the upper limbs and back and it burns - it does cause sweats when it is at its worse. These symptoms have only progressed since I started on the Tresiba - it's different than anything in the past and maybe it is Fibromyalgia but I feel I need to try alternative insulin before I'm convinced.
I don't want to spend the rest of my life feeling like this each day - lots of grandchildren to enjoy!

 

[ann34+]

well, i would try other insulins, then - i'm on porcine, the others i tried - over years, tho long ago now - did me no good and i felt very tired all the time - tho that could have been more hypos and variable blood sugar levels, PS do you use blood pressure meds? eg. i've had lisinopril rash, exhaustion, etc, and other bp meds had skin effects....

 

[DebbieAnne]

Thanks to all for your responses - I'm just a little overweight and don't take statins at all. I do have turmeric with black pepper each day but nothing helps. As for artificial sweeteners I try and avoid as much as I can so only have the occasional yogurt that may have it in?
I've had the ops on my shoulders and there's no more the can do for my neck pain but it's bearable. It's the all over burning feeling of pain, being lethargic and muscle and joints just not as active as they were up to starting Tresiba.
I've made an appointment to go and discuss with my diabetes specialist nurse to see if there is another insulin I could try?
Oh yes I did try Toujeo for a while before the Tresiba but control not good.
Not sure what else I can do?

Hi
I recently got swapped to Tresiba (Degludec) 30units each night, also on nova rapid and slow release metphormin I used to take LANTUS on an evening, but this was changed last week. I DO suffer from joint pain. However, this is linked, I'm told to a new diagnosis of Fibromayalgia. However since starting this Tresiba, I've experienced a lot of joint cramps. I'll be discussing with my GP on Monday. Hope you're feeling better soon

 

[borderter]

Hi
I recently got swapped to Tresiba (Degludec) 30units each night, also on nova rapid and slow release metphormin I used to take LANTUS on an evening, but this was changed last week. I DO suffer from joint pain. However, this is linked, I'm told to a new diagnosis of Fibromayalgia. However since starting this Tresiba, I've experienced a lot of joint cramps. I'll be discussing with my GP on Monday. Hope you're feeling better soon

did you stop tresiba and did this stop pain right away

 

[mysticknight07]

Hi to all out there!
I've not posted for a long time so new to this still. I've had T1 for 43yrs and have always managed it with insulin. I'm 59yrs old and have had good control over the years but apparently have some slight retinopathy in left eye but not affecting vision so far, and also Osteo arthritis, Carpel tunnel, and trigger fingers which I've been told are common with diabetes?
My issue is much worse than this - I have been suffering neck and shoulder pain from frozen shoulders etc over the years which have been operated on, but last year due to an increase in pain which had spread to most of the upper body I was diagnosed with Fibromyalgia.
Previous to this I had been changed onto Tresiba about 8mths before, and before this I was on Levemir for years. I was taken off it because I had some lows ? Control was good though and I had maintained a good weight for years and was very active.
In the last year I have been trying to wean off strong pain relief medication but it continues to worsen.
My quality of life is poor, I don't sleep well, it's hard to maintain full time work, and exercise is painful - during and afterwards!
What has happened to me ... Is it the Tresiba - had anyone else has issues with it?

I just started taking Tresiba and Victoza. On the left side I inject Tresiba and now Im having stomache muscle pains and a little spot of redness on my left side. I will probably get a appt with the dr and try to get it on a monday cause this stomache muscle pain really hurts. I been taking pain pills but, its not helping much I can sleep though thanks to God. Did you experience any of this. Let me know and if you did how are you treating it?

(edited by mod)

 

[Antje77]

I just started taking Tresiba and Victoza. On the left side I inject Tresiba and now Im having stomache muscle pains and a little spot of redness on my left side. I will probably get a appt with the dr and try to get it on a monday cause this stomache muscle pain really hurts. I been taking pain pills but, its not helping much I can sleep though thanks to God. Did you experience any of this. Let me know and if you did how are you treating it?

Hi @mysticknight07 , and welcome to the forum!
I'm sorry to hear about your problems with Tresiba.
However, you responded to a thread that hasn't been active for over a year (you can see the dates of posts below the posts).
You'll likely get more responses if you start your own thread with your questions on Tresiba.
Good luck!

 

[Po girl]

I just started taking Tresiba and Victoza. On the left side I inject Tresiba and now Im having stomache muscle pains and a little spot of redness on my left side. I will probably get a appt with the dr and try to get it on a monday cause this stomache muscle pain really hurts. I been taking pain pills but, its not helping much I can sleep though thanks to God. Did you experience any of this. Let me know and if you did how are you treating it?

(edited by mod)

 

[Po girl]

Hi,
I didn’t find any answers to my pain and it continues. I’m still on Tresiba and still have suspicions over it - no muscle pain direct from the areas I inject though.
It seems long term T1 tend to suffer from joint, nerve or tendon pain?
I’m trying to cope on Tramaset at night instead of Tramadol now as I seem to be developing Gastroparesis so that doesn’t help.
I suppose I could be worse off from having T1 for 46 yrs now and I think I’ll consider changing from Tresiba now just to give it a try and see if it does make a difference?
Thanks everyone